Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 What kind of rash are you talking about. Elmer had red splotches on his face which was like a dry eczema. I think I've got a picture that shows it well if you want me to send it to you so you can compare if you need to. Just let me know. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 I am also very interested in finding out this same information. I have been fighting reoccuring rashes since my dilantin reaction since February. Right now, I look like I have poison oak/ivy covering my body, especially on my face and chest. Deborah aka Tenacity Charlotte, NC. Sennewald wrote: A while back I recall seeing several emails commenting on the occurrence of rashes for people with MSA.Is there any empirical relationship here? That is, do many folks with MSA have rashes that are related to MSA? Sennewald Charlottesville, Virginia If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 I am also very interested in finding out this same information. I have been fighting reoccuring rashes since my dilantin reaction since February. Right now, I look like I have poison oak/ivy covering my body, especially on my face and chest. Deborah aka Tenacity Charlotte, NC. Sennewald wrote: A while back I recall seeing several emails commenting on the occurrence of rashes for people with MSA.Is there any empirical relationship here? That is, do many folks with MSA have rashes that are related to MSA? Sennewald Charlottesville, Virginia If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Barbara, The rash you describe sounds like hives. This MIGHT be caused by an allergy to one of the medications Chuck is taking. Be on the look out for other signs of medication allergy, especially throat tightening, which might be a sign of a serious reaction requiring immediate medical attention. Although Rob's the one with MSA, I had a rash similar to the first one you described Chuck having. I was in the hospital after a knew replacement and, of course, had been given tons of meds. The rash was like mosquito bites -- very itchy. It ultimately did go away and they never figured out what caused it. But it was VERY uncomfortable. Carol & Rob > In response to the question re rashes. > I have recently posted about Chuck's little insect-bite like spots that > itch like crazy, and stay red for a long time. > Now, in one day, he developed two saucer-sized areas that look like > bruises but have rough skin that also itch. These are on his legs, and > the skin below it feels downright weird---sort of spongy. Right above > the cute little subcutaneous muscle twitches. > We are going to Mayo's this weekend so I hope someone can give him an > answer other than that he has been " bitten by an arthropod " (pathologist > report). As my son says, that means he could have been bitten by a > shrimp! I suppose now they would say he has been > kicked by a porcupine. > > Thanks for the question, > > Barbara Woodford (in Illinois) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Thanks for the info. I have a apt. tomorrow morning at 9 AM. Deborah Reply-To: shydrager To: shydrager > Subject: Re: Rashes and MSA Date: Wed, 24 Apr 2002 14:23:44 -0500 Deborah, These rashes could be causer by skin being dry or with the decline in the immune system, these rashes, could be from a fungus, reaction to one of the medicines, or some other pathogen. I am writing to all really, to suggest that the proper doctor to see for these skin problems is a dermatologist. Usually your pcp or neurologist will hand you a sample and say " Here try this it might work " . Go to a dermatologist. They are trained to identify and treat rashes and other skin reactions. I don't think a rash that you mentioned as " .....I look like I have poison oak/ivy covering my body, especially on my face and chest. " is a dry skin reaction. have a dermatologist look at it ASAP. Too get to any solution, one must first be able to identify the problem. God Bless, Judy & Jim Stark Re: Rashes and MSA I am also very interested in finding out this same information. I have been fighting reoccuring rashes since my dilantin reaction since February. Right now, I look like I have poison oak/ivy covering my body, especially on my face and chest. Deborah aka Tenacity Charlotte, NC. Sennewald perrys@...> wrote: A while back I recall seeing several emails commenting on the occurrence of rashes for people with MSA. Is there any empirical relationship here? That is, do many folks with MSA have rashes that are related to MSA? Sennewald Charlottesville, Virginia If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Wow! I'm not alone with this. Please do let me know if you find any answers on this. I also get both the little spots. When I've looked at them closely, it almost appears as if there are small white BBs under my skin. Talk about itching! Gads it's enough to catch your attention. I also occasionally get the larger rashes, as you noted for Chuck. Please keep us posted, and hope your trip goes well. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 I'm not a doctor, but I read rashes in general can indicate problems of liver function, which should be checked out. Will be interested to see what they say on this. Cindy B. RE: Rashes and MSA > Wow! I'm not alone with this. Please do let me know if you find any > answers on this. I also get both the little spots. When I've looked at > them closely, it almost appears as if there are small white BBs under my > skin. Talk about itching! Gads it's enough to catch your attention. > > I also occasionally get the larger rashes, as you noted for Chuck. Please > keep us posted, and hope your trip goes well. > > > Regards, > =jbf= > > B. Fisher > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 In response to the question re rashes. I have recently posted about Chuck's little insect-bite like spots that itch like crazy, and stay red for a long time. Now, in one day, he developed two saucer-sized areas that look like bruises but have rough skin that also itch. These are on his legs, and the skin below it feels downright weird---sort of spongy. Right above the cute little subcutaneous muscle twitches. We are going to Mayo's this weekend so I hope someone can give him an answer other than that he has been " bitten by an arthropod " (pathologist report). As my son says, that means he could have been bitten by a shrimp! I suppose now they would say he has been kicked by a porcupine. Thanks for the question, Barbara Woodford (in Illinois) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 , The correct answer to your question about a rash, is that, the rash should be seen by and treated by a dermatologist. God Bless, Judy & Jim Stark Re: Rash and MSA > > Hi, > > I just got back from the doctor's office. I was told that my rash is > because of my MSA, specifically that my immune system is not functioning > correctly. I was advised not to even go in our hot tub (which I just got > back into working order day before yesterday) or even a swimming pool > because I am likely to have a reaction to the chemicals in it. > > He said that the MSA is causing a lot of the different major organ > systems in my body to not work right. (Reality check from him because of my > denial) He is a very kind doctor. He always spends a lot of time with me > and answers any questions that I have. He looked truly sad when he told me > that he doesn't have any magic answers. He ordered a number of blood tests > and increased the dosing on 2 of my meds but is being very cautious with > adding any additional medications until after the blood work comes back > because he is afraid that I might get an even worse reaction. > > I don't know why, by now, I haven't figured out when I go to the doctor > they are not going to give me some magic pill that will make me well. > Because of the botched DBS and the resulting infections that I had earlier > this year, they cannot even give me anything to " make me more comfortable. " > Taking 1 darvocette for the pain 3 weeks ago necessitated me going back on > steroids for a week. > > I'm glad ya'll are here. I have to admit something to all of you so that > I can have the courage to face it myself. I won't be able to have the DBS > redone for my MSA. I was scheduled for July 10 (penciled in) but the > reality is that the MSA is progressing, I'm not getting over what my body > went through from the brain infection in January and if I can't even take a > darvocette...I would never live through general anesthesia. Once again, I > find myself back to that point of having to accept that this is as good as > it is going to get and I'm going to have to deal with it. (Denial is so much > more fun than reality)! > > Deborah > aka Tenacity > > > > Sennewald Charlottesville, Virginia > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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