wnderful

May 20, 2002

That's great. I'll put mine in the mail tomorrow

(assuming those of us north of the 49th are eligible). My X, my

daughters and my son are all more than willing to participate in any way

they can. My daughter has started her application for studies in

medical technology I'm so proud, maybe one day she'll work at the NIH or

the Mayo. That will give this miserable illness some meaning and make it

easier to put up with. Have you suggested to Dr. Schults that he

may find out archives of interest?

I had a little too much time on my hands today, I wasn't feeling up to

going to my daughter's. So I remebered some of the extreme days

this illness has given me. I remembered when my fingertips became

unable to feel things well. I thought perhhaps I have calouses and

my eyes just are not good enough to see it. So I took out and emery

pad and files, and filed until all of my fingertips bled. I was

crying, because no matter how horribly I had mangled my fingers they

still did not feel. Amazing what over time can become

acceptable.

I still can't feel with my fingertips, but I know I can make them do what

I want if I work at it. Your memory fills in the gaps, but after a

few years I really don't remeber how hair feels, or denim, or

butter.

Upped the Neurontin today 400mg 3x day. Whenever I do this

(stepping it up), I feel so much better, especially the tingling and body

temp. Is there any lieterature suggesting that Gba promotes

autonomic function?

At Monday 5/20/02 02:59 PM, you wrote:

I received this email today from

Dr. Cliff Shults of the North

American Multiple System Atrophy Study Group. Your assistance is

urgently needed to help Dr. Shults and his group obtain approval from

the NIH for their proposed study.

aletta mes

vancouver, bc Canada

web:

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