Re: Hi>Connie

[Guest guest]

Connie,

I do not know how I miss your post. I am sorry that you have a need

for this support group. I am also sick and know what you are going

through. It seems like I have gone through so many stages and then I

go through them again. They are all there, anger, frustration,

denial, acceptance, sorrow. I do not want to be a burden to my family

and friends but then I am so glad they are there for me. I know if it

wasn't for my faith in God, my church, family, and friends I couldn't

handle this at all. It seems strange not to be able to run 90 miles

an hour and have to watch others do for me. It is hard to have to

sleep more because I wear myself out faster usually because I am

still trying to go as fast as I can. I have so many things I want to

do that I have always done. I still try to work in my flower gardens

or do research on the internet things that interest me. I spend time

with my friends going out to lunch with them when they call and ask

me. I can no longer drive and haven't been able to for almost a year.

It is frustrating not to be able to just jump in the car and go when

I want to. It is frustrating to see my family struggle more

financially because I am no longer able to help bring home my

earnings. There are a lot of changes. We are there for you. We

understand any feelings that you may have because we have them or at

least have had them. I understand when you said you feel like a 95

year old woman and that they probably have more energy than you. I

understand a lot. I pray for all of you and want the best for you.

God bless with love and gentle hugs,

Belinda

> Connie,

> Hi, welcome to the group. You are not alone. Please do not

hesitate to

> aske questions here, vent fustrations, or just converse. I was

diagnosed

> with MSA two years ago myself and have already fought some of the

battles

> you will fight. Many of the people in this group know the weapons

that need

> to be used in order to get things done.

>

> Write if you wish...

>

>

> Dr. Ray

>

> -- Hi

>

> This is my first time here in a chat room on the

> computer and it will be my first time since I have

> been diagnosed a year ago to know or talk to anyone

> with my same disease. I am so very excited on the one

> hand because I have felt so alone with this disease.

> On the other hand I feel so scared because it might be

> way to much reality for me. Anyways I have had

> symptoms for about seven years they were subtle and I

> didn't pay much attention to them until two years ago

> when my left side quit working. Then it took a year to

> get diagnosed with MSA. My MSA seems to have

> progressed very fast in the last two years and my

> doctor is so depressing because he gives me no hope to

> work with. I've dealt with a lot of losses in the last

> two years. I've went from a totally healthy 45 year

> old women to an old 95 year old woman in just two

> years. Actually some 95 year old women probably get

> around better than myself. The hardest thing for me is

> that I have to depend on others for so much. I feel

> like a burden sometimes to my husband and kids. I am

> very grateful for all the wonderful friends and the

> wonderful family I have. I could not handle this

> horrible cruel mean disease with out there love and

> support. I hope I'm not being way to dramatic but it

> does seem cruel at times to me and cruel to my family

> and friends who have to live with it. greercj

>

> __________________________________________________

>