RE: narcolepsy, sleep apnea test, ProVigil

[Guest guest]

Lou, the sleep study process will monitor his sleep with electrodes

which will detect sleep issues you and he may not otherwise be aware of,

including the apnea. He apparently has sleep disturbances, so best to check

the other sleep issues out with sleep study.

Jerry Cash

narcolepsy, sleep apnea test, ProVigil

Thanks to all who replied about the sleep episodes during the day that

happen to Sam. What would a test for sleep apnea show? He has no apnea

episodes that I am aware of--has been active at night for many, many year,

laughing, stating formulas, and striking out. He has even walked in his

sleep a few times. I understand that narcolepsy is falling asleep

suddenly. Perhaps ProVigil would help him stay awake--would it make him

less tired and weak? Thanks to everyone--the encyclopedia of practical MSA

knowledge. Lou R.

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[Guest guest]

Greetings Lou !

You noted:

> He has no apnea episodes that I am aware of --

> has been active at night for many, many year,

> laughing, stating formulas, and striking out.

> He has even walked in his sleep a few times.

It sounds more like REM Behavior Disorder. Unfortunately, this can also

lead to excessive daytime sleepiness. There are medications to control it.

It would be wise to talk with a sleep specialist about this. Bringing it

under control can improve his ability to cope with other symptoms. Might

not change them, but the world always looks better with good sleep under

your belt.

Regards,

=jbf=

B. Fisher

[Guest guest]

Lou

It sounds like Sam has a REM behavior disorder. The standard

medication for that is klonopin (which Rob takes) but I know from the

list that some people don't tolerate it well. He may or may not have

apnea on top of that, but the REM behavior disorder alone is enough

to leave him feeling not rested and sleepy after a night of " acting

out " his dreams. A sleep study would show the REM behavior problem

and also find the apnea if there is any.

ProVigil might help Sam, but it seems to me that they would want to

get him better quality sleep (through klonopin and CPAP, if

necessary) and see if he's helped by that first.

Carol & Rob

> Thanks to all who replied about the sleep episodes during the day

that

> happen to Sam. What would a test for sleep apnea show? He has no

apnea

> episodes that I am aware of--has been active at night for many,

many year,

> laughing, stating formulas, and striking out. He has even walked

in his

> sleep a few times. I understand that narcolepsy is falling asleep

> suddenly. Perhaps ProVigil would help him stay awake--would it

make him

> less tired and weak? Thanks to everyone--the encyclopedia of

practical MSA

> knowledge. Lou R.

[Guest guest]

Lou

It sounds like Sam has a REM behavior disorder. The standard

medication for that is klonopin (which Rob takes) but I know from the

list that some people don't tolerate it well. He may or may not have

apnea on top of that, but the REM behavior disorder alone is enough

to leave him feeling not rested and sleepy after a night of " acting

out " his dreams. A sleep study would show the REM behavior problem

and also find the apnea if there is any.

ProVigil might help Sam, but it seems to me that they would want to

get him better quality sleep (through klonopin and CPAP, if

necessary) and see if he's helped by that first.

Carol & Rob

> Thanks to all who replied about the sleep episodes during the day

that

> happen to Sam. What would a test for sleep apnea show? He has no

apnea

> episodes that I am aware of--has been active at night for many,

many year,

> laughing, stating formulas, and striking out. He has even walked

in his

> sleep a few times. I understand that narcolepsy is falling asleep

> suddenly. Perhaps ProVigil would help him stay awake--would it

make him

> less tired and weak? Thanks to everyone--the encyclopedia of

practical MSA

> knowledge. Lou R.

[Guest guest]

" has been active at night for many, many year,

> laughing, stating formulas, and striking out. He has even walked in his

> sleep a few times. "

I must reply to your concern. We lived with those activities at night for

years, because no one knew what to call it. It is not normal. Get some

help. Finally, now they have medical professionals who study sleep

disorders. Run to a sleep disorder facility and see what they have to say.

I will be happy to share more with you if that would help.

Marilyn in TN

[Guest guest]

" has been active at night for many, many year,

> laughing, stating formulas, and striking out. He has even walked in his

> sleep a few times. "

I must reply to your concern. We lived with those activities at night for

years, because no one knew what to call it. It is not normal. Get some

help. Finally, now they have medical professionals who study sleep

disorders. Run to a sleep disorder facility and see what they have to say.

I will be happy to share more with you if that would help.

Marilyn in TN

[Guest guest]

Carol's comments are much more professional than my earlier ones to you. I

answered quickly because of the emotional involvement we lived through.

Marilyn in TN

>

> Reply-To: shydrager

> Date: Wed, 20 Mar 2002 18:14:37 -0000

> To: shydrager

> Subject: Re: narcolepsy, sleep apnea test, ProVigil

>

> Lou

>

> It sounds like Sam has a REM behavior disorder. The standard

> medication for that is klonopin (which Rob takes) but I know from the

> list that some people don't tolerate it well. He may or may not have

> apnea on top of that, but the REM behavior disorder alone is enough

> to leave him feeling not rested and sleepy after a night of " acting

> out " his dreams. A sleep study would show the REM behavior problem

> and also find the apnea if there is any.

>

> ProVigil might help Sam, but it seems to me that they would want to

> get him better quality sleep (through klonopin and CPAP, if

> necessary) and see if he's helped by that first.

>

> Carol & Rob

>

>

>> Thanks to all who replied about the sleep episodes during the day

> that

>> happen to Sam. What would a test for sleep apnea show? He has no

> apnea

>> episodes that I am aware of--has been active at night for many,

> many year,

>> laughing, stating formulas, and striking out. He has even walked

> in his

>> sleep a few times. I understand that narcolepsy is falling asleep

>> suddenly. Perhaps ProVigil would help him stay awake--would it

> make him

>> less tired and weak? Thanks to everyone--the encyclopedia of

> practical MSA

>> knowledge. Lou R.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Carol's comments are much more professional than my earlier ones to you. I

answered quickly because of the emotional involvement we lived through.

Marilyn in TN

>

> Reply-To: shydrager

> Date: Wed, 20 Mar 2002 18:14:37 -0000

> To: shydrager

> Subject: Re: narcolepsy, sleep apnea test, ProVigil

>

> Lou

>

> It sounds like Sam has a REM behavior disorder. The standard

> medication for that is klonopin (which Rob takes) but I know from the

> list that some people don't tolerate it well. He may or may not have

> apnea on top of that, but the REM behavior disorder alone is enough

> to leave him feeling not rested and sleepy after a night of " acting

> out " his dreams. A sleep study would show the REM behavior problem

> and also find the apnea if there is any.

>

> ProVigil might help Sam, but it seems to me that they would want to

> get him better quality sleep (through klonopin and CPAP, if

> necessary) and see if he's helped by that first.

>

> Carol & Rob

>

>

>> Thanks to all who replied about the sleep episodes during the day

> that

>> happen to Sam. What would a test for sleep apnea show? He has no

> apnea

>> episodes that I am aware of--has been active at night for many,

> many year,

>> laughing, stating formulas, and striking out. He has even walked

> in his

>> sleep a few times. I understand that narcolepsy is falling asleep

>> suddenly. Perhaps ProVigil would help him stay awake--would it

> make him

>> less tired and weak? Thanks to everyone--the encyclopedia of

> practical MSA

>> knowledge. Lou R.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>