Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 One of my co-workers who is from Canada told me about this. His sister is a nurse and gives these treatments at aClinic she works at. I looked up the info on a site called brainrecovery.com, which is run by a Dr. Perlmutter. I was going to call his sister but never did. He siad she had a few patients that were doing well with the treatment. However given the variability of sy,ptoms normally plus the placebo effect I have some doubts about it. It does use antioxidants. The main difference is that it is given with an IV into your bloodstream, thus bypassing your digestive system. Mike Plunkett Info on Glutathione I read some information about a drug called Glutathione (an anti oxidadant) on the " ASK THE DOCTOR SITE " . It said it was not FDA approved but " helped " PD patients with their balance.It was given via IV. Does anybody have a refrence to this drug and or other info. Thank you, AL If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Mike, I have great doubts about Dr. Perlmutter's research. We have seen his stuff touted here before. He does not seem to write articles in neurological journals anymore (since 1992 - I think) and writes strictly in non-conventional journals who do not seem to have medical doctor reviewers. Dr. Perlmutter himself did get a medical degree. But he is not a movement disorder specialist to my knowledge. I have not seen scientific double blind studies proving the value of his techniques. I have not seen studies that showed any proven chemical changes in the brain either. I am not an expert medical person though. If Dr. Perlmutter could show Dr. on, Dr. Gilman, Dr. Litvan, Dr. Lowe or other experts in MSA, some studies that proved me wrong and they agreed that it would help, I would be only too happy to apologize publically on this list that I was dead wrong with my personal feelings. Placebo effects have worked on many people for short periods of time in tests before. Take care, Bill Werre ----------------------------------------------------------------------------- Plunkett wrote: > One of my co-workers who is from Canada told me about this. His sister is a > nurse and gives these treatments at aClinic she works at. I looked up the > info on a site called brainrecovery.com, which is run by a Dr. Perlmutter. > I was going to call his sister but never did. He siad she had a few > patients that were doing well with the treatment. However given the > variability of sy,ptoms normally plus the placebo effect I have some doubts > about it. > > It does use antioxidants. The main difference is that it is given with an > IV into your bloodstream, thus bypassing your digestive system. > > Mike Plunkett > Info on Glutathione > > I read some information about a drug called Glutathione (an anti > oxidadant) on the " ASK THE DOCTOR SITE " . It said it was not FDA > approved but " helped " PD patients with their balance.It was given via > IV. Does anybody have a refrence to this drug and or other info. > > Thank you, AL > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 --- Ray and Mike:> Thank you for your information on Glutathione. I found many references for Glutathione , one stack by a Parris M. Kidd Ph.D on the National Parkinsons Foundation site. The theory to a lay person looks reponsible. Dr Lieberman says it is important to go by IV as the Glutathione is not absorped in the stomach. He did not recommend the treatment only commented on what it was. I have contacted a person who was treated by Dr Lerlmutter using this technique by email and he has given me an invite to call him. Which i will do. i will also call Dr. Pearlmutter. I also looked up Pearlmutter's site at brainrecovery.com very impressive but not many supporting movement specialists names or neurology magazines as you rightfully mention. Since my wife does not seem to respond to anything except exercise, rest and encouragement I am going to pursue all the avenues even if they are not blessed by the so called leaders of PD and PD+. Excuse me for being non professional but I really feel that PD and PD+ are not professional in their attack on my wife. I feel that to only visit the Movement Specialist every 3 months and have them tell me she is holding her own come back in 3 months is not the way I want to proceed. I may be a fool but " In all the HS out there, there must be a PONY some where " . Thus I will keep asking for any inputs proven or not until I find something better then come back in 3 months. Thanks for Your Patience, AL I have great doubts about Dr. Perlmutter's research. We have seen his stuff > touted here before. He does not seem to write articles in neurological > journals anymore (since 1992 - I think) and writes strictly in non- conventional > journals who do not seem to have medical doctor reviewers. Dr. Perlmutter > himself did get a medical degree. But he is not a movement disorder specialist > to my knowledge. I have not seen scientific double blind studies proving the > value of his techniques. I have not seen studies that showed any proven > chemical changes in the brain either. I am not an expert medical person > though. If Dr. Perlmutter could show Dr. on, Dr. Gilman, Dr. Litvan, > Dr. Lowe or other experts in MSA, some studies that proved me wrong and they > agreed that it would help, I would be only too happy to apologize publically on > this list that I was dead wrong with my personal feelings. > > Placebo effects have worked on many people for short periods of time in tests > before. > > Take care, Bill Werre > > -------------------------------------------------------------------- --------- > Plunkett wrote: > > > One of my co-workers who is from Canada told me about this. His sister is a > > nurse and gives these treatments at aClinic she works at. I looked up the > > info on a site called brainrecovery.com, which is run by a Dr. Perlmutter. > > I was going to call his sister but never did. He siad she had a few > > patients that were doing well with the treatment. However given the > > variability of sy,ptoms normally plus the placebo effect I have some doubts > > about it. > > > > It does use antioxidants. The main difference is that it is given with an > > IV into your bloodstream, thus bypassing your digestive system. > > > > Mike Plunkett > > Info on Glutathione > > > > I read some information about a drug called Glutathione (an anti > > oxidadant) on the " ASK THE DOCTOR SITE " . It said it was not FDA > > approved but " helped " PD patients with their balance.It was given via > > IV. Does anybody have a refrence to this drug and or other info. > > > > Thank you, AL > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Had t respond to this, as my dad also had been told " come back in 3 months " , or worse, it was moved to 6 months!-I kept saying, half jokingly, that he could be DEAD by then. I pushed the primary care physician (pcp) to get dad another evaluation, and when he called the very busy neuro to inform her he was writing a referral for her patient, and why, her schedule miraculously had a cancellation that very week, and he was seen, and she admitted that she was shocked by his decline. She now supports my pursuing another opinion on how to treat him. Keep pushing-squeaky wheel and all. Cindy B. Info on Glutathione > > > > > > I read some information about a drug called Glutathione (an anti > > > oxidadant) on the " ASK THE DOCTOR SITE " . It said it was not FDA > > > approved but " helped " PD patients with their balance.It was given > via > > > IV. Does anybody have a refrence to this drug and or other info. > > > > > > Thank you, AL > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe@y... > > > > > > Quote Link to comment Share on other sites More sharing options...
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