Re: Supplements>Bill and Marty

May 28, 2002

Hi

I was just wondering about COQ10 because my neurologist said he

didn't know if it would help me or not but at this point if I wanted

to try it he didn't see why I shouldn't. He told me alot of things

were discovered by trial and error. I know that it is very expensive

here but if it works I could care less how much it costs. How does it

make you feel when you take it, Bill? Marty, how does your wife feel

when she takes it? My neurologist also said my enzymes were real high

and said I might also have mitochondrial disease. I know I have been

on their web support group site and alot of them said it has helped

them. I guess if your doctor said its ok then listen to your doctor.

God bless,

Belinda

> Hello Marty.

> My Specialist, before he closed his doors during a rather nasty

divorce

> action by his wife, started me off on CoQ10 200mg a day (100 night

and

> morning) He told me that even if I thought they did me no good,

the blood

> tests showed that they were. Ican not tell you which blood tests

at the

> moment. Maybe he will start up again if his wife leaves him

anything.

> Apparently the company he operated was in her name and she closed

the doors

> to him. There are some nice people aren't there? There were no

last

> consultations ar any thing else, just a letter saying my practice is

> closing, I hope to recommence in April. It's getting a bit late

now. He

> also put me on DHEA which appears to be illegal here, so we have to

be

> satisfied with a synthetic product pharmacists make for a lot of

money.

> Regards from Bill Pilgrim

>

> Supplements

>

> > Hi:

> > My wife is currently taking 100mg of Co-enzyme Q10 on her doctors

> > suggestion. In addition to this there are a number of other

supplements I

> > have encountered.

> > These include :

> > Acetyl-carnitine for which there is a published study

> > Acetyl-cystine Some anecdotal reports exist about this

> > Alpha lipoic acid Possible mitochondrial anti-oxidant

> >

> > Does anyone on this list know any more about these? Do any

subscribers

> take

> > them?

> >

> > Thanks,

> >

> > Marty Siegel

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

May 28, 2002

Hi Belinda, Bill:

See interlines below:

At 10:49 PM 5/28/02 +0000, you wrote:

Hi

I know that it is very expensive

here but if it works I could care less how much it costs.

I see that one can get it for $0.50/pill at

100mg.

How does it

make you feel when you take it, Bill? Marty, how does your wife feel

when she takes it? Annette has no side

effects from it. Also it is not clear what the benefit will/might be but

its worth trying. Anything is at this point.

My neurologist also said my enzymes

were real high

and said I might also have mitochondrial disease. I know I have been

on their web support group site and alot of them said it has helped

them. Belinda, do any of those people

have neurological problems?

I guess if your doctor said its ok then listen

to your doctor.

God bless,

Belinda

Regards,

Marty Siegel

May 29, 2002

Marty,

I have enclosed what Mitochondrial Disease is. This also might be why

some of my symptoms are different and why I have a lot of pain. Like

I have said before I have been diagnosed with CBGD and not MSA but I

have been diagnosed with Mitochondrial Disease also.

I agree with you if COQ10 works it doesn't matter what the cost. I am

definitely going to try it. My doctor told me I should I just haven't

yet.

God bless,

Belinda

Mitochondrial Disease

Basis of the Disease

Mitochondrial diseases result from failures of the mitochondria,

specialized compartments present in every cell of the body except red

blood cells. Mitochondria are responsible for creating more than 90%

of the energy needed by the body to sustain life and support growth.

When they fail, less and less energy is generated within the cell.

Cell injury and even cell death follow. If this process is repeated

throughout the body, whole systems begin to fail, and the life of the

person in whom this is happening is severely compromised. The disease

primarily affects children, but adult onset is becoming more and more

common.

Diseases of the mitochondria appear to cause the most damage to cells

of the brain, heart, liver, skeletal muscles, kidney and the

endocrine and respiratory systems.

Depending on which cells are affected, symptoms may include loss of

motor control, muscle weakness and pain, gastro-intestinal disorders

and swallowing difficulties, poor growth, cardiac disease, liver

disease, diabetes, respiratory complications, seizures,

visual/hearing problems, lactic acidosis, developmental delays and

susceptibility to infection.

----------------------------------------------------------------------

----------

> >Hi

> > I know that it is very expensive

> >here but if it works I could care less how much it costs.

>

> I see that one can get it for $0.50/pill at 100mg.

>

> >How does it

> >make you feel when you take it, Bill? Marty, how does your wife

feel

> >when she takes it?

> Annette has no side effects from it. Also it is not clear what the

benefit

> will/might be but its worth trying. Anything is at this point.

>

> >My neurologist also said my enzymes were real high

> >and said I might also have mitochondrial disease. I know I have

been

> >on their web support group site and alot of them said it has helped

> >them.

> Belinda, do any of those people have neurological problems?

>

> >I guess if your doctor said its ok then listen to your doctor.

> >God bless,

> >Belinda

>

> Regards,

>

> Marty Siegel

May 29, 2002