Re: God Bless> Jan

[Guest guest]

Jan,

I am so glad that you are going to be ok. I can imagine it is hard

doing things you want to do. Hopefully you will be ok like you said

in 24 hrs. I can imagine that 24 hrs can feel like a long time

though. As far as laundry being hazardous to your health I could have

told you that a long time ago. So can cleaning, cooking, etc,etc. hehe

I am thankful your son is there to help you also. They are a blessing!

Love ya,

Belinda

> > > > I do not know how or why an issue came about to insult

> someone,or

> > > > someones,who were trying to help or relay their experiences.I

> do

> > > not

> > > > know why it is ok for insults to be made and no recourse

should

> > be

> > > > allowed to defend oneself. I know that I am not an authority

on

> > > MSA.

> > > > I only know that neurologist specializing in movement orders

> are

> > > > specialist. I know that I have been told I have CBGD and not

> MSA.

> > I

> > > > Do know that I have pain in every muscle of my body. It is

not

> a

> > > > figment of my imagination. I do not push pain doctors,

opiates,

> > or

> > > > muscle relaxants. I do know if someone asked if someone was

> > taking

> > > > something for pain I told them yes and what I take. I do not

> know

> > > if

> > > > others have pain with MSA if they don't I am so glad they

> don't.

> > I

> > > go

> > > > to a neurologist in Atlanta that worked for the NIH and for

> Emory

> > > > Medical University who has had other patients with movement

> > > disorders

> > > > who knows that I go to a pain doctor and knows the medicines

I

> > > take.

> > > > As far as going to a pain specialist specializing in movement

> > > > disorders, I don't. Please, note OVERDOSING on any kind of

> > > medication

> > > > is NOT recommended. You should only take what is prescribed

for

> > you

> > > > and nothing else. I do not believe and PLEASE NOTE THAT THIS

IS

> > MY

> > > > BELIEF that you can become addicted to medicines if you need

> > them.

> > > I

> > > > also know that MSA, CBGD, PSP, ALS, and other rare brain

> > disorders

> > > > are terminal and there is no quick fix for any of them. I do

> not

> > > put

> > > > doctors down but I can say that I had to go through a few

> doctors

> > > > before I found one who could tell me what he believed was

wrong

> > > with

> > > > me. This doctor could only do that after trying PD drug such

as

> > > > Requip on me to find out I do not have Parkinson's only

> > > Parkinson's

> > > > like symptoms. He also had to watch me for several months

> before

> > > > telling me his diagnoses. This is not an exact science that

can

> > be

> > > > told to someone over 1 visit or even a few visits. I also

> believe

> > > > though just because one doctor is good for 1 person doesn't

> make

> > > that

> > > > doctor good for all people. Just because a doctor can come

> highly

> > > > recommended and you don't feel comfortable working with that

> > doctor

> > > > doesn't mean you are wrong in changing doctors. That is why

> there

> > > is

> > > > more than one neurologist out there. I believe that ALL

> movement

> > > > disorders are NOT something you would wish on anyone NOT even

> > your

> > > > worse enemy. I believe a support group should be there for

> > everyone

> > > > in the group regardless if that person is sick or the

> caregiver.

> > It

> > > > should not be there to critize anyone regardless of who that

> > person

> > > > is or how you personally feel about that person. It might be

> > since

> > > I

> > > > have Corticobasal Ganglionic Degeneration that I should not

be

> in

> > > > this support group. Even though this might be the case, I can

> not

> > > and

> > > > would not tell you which doctor you have to see. I can not

and

> > > would

> > > > not tell you have to take pain medicine. I can not and would

> > never

> > > > try to tell anyone to do something that would harm them. It

is

> > > > fortunate to be in a country that anyone has the right to

make

> > > > choices for theirselves.

> > > > God Bless,

> > > > Belinda