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Subject: Re: Subject: Belinda

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Belinda:

I think this forum has been good for all of us. I've learned what can or may happen to Fred, but it doesn't mean it will happen. Fred was in denial at first and his mother was for a long , long time, but I think she know's now that he is ill. Some of his sister's and a brother , I still don't think they understand it. Maybe they just don't want to. I know now that I can go talk to Fred Neurologist about Fred's illness and he see's where I have learned about it , only because of this group. I think the secret is your outlook on life that makes the different of how long you can do things. The use it or lose it , is alot of it, but also the will to live life still. That is what makes the different on how we face the hard times. I can see that you have the joy of life, just like Annie does. It's made a different in her life and it will in your.

Love Vera

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From: "belnorest" <Belindastime@a...>

Date: Thu Apr 4, 2002 7:04 am

Subject: Re: Subject: Belinda

Vera,

Thank you! I enjoy talking to you also and everyone else. I have

learned alot from this forum and feel at home here. I need this

forum. It has been so much help to me. I want to know the bad as well

as the good. I need to know what to expect or what I might expect to

happen to me. I believe my husband is in denial but he also knows if

I want something bad enough he is not going to stop me. LOL! He knows

too well. I guess I was trying to express my fear of his denial more

than anything. I want to be like I was when I was well. I was a real

powerhouse of a person. I never stopped. I know that most people in

here are just like me. I always took care of everyone and everything.

I know I won't ever be like I was but if I could get some of it back

it would be wonderful. I am not the kind of person who doesn't accept

reality either. Bill said, use it or lose it. Bill, you don't have to

worry about that with me. I will keep trying to use it as long as

there is a breath inside my body! I have a lot to live for and I love

living.

God Bless,

Belinda

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