Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Aletta, Your description of finding some relif from your pain made me drool with envy. I went to the doctor yesterday and brought a list of my symptoms: I think if I could just have something to stop the constant pain that sleeping all the time or even being drugged would be preferable to what I am currently experiencing. I think that I might have sent the first message before I finished writing it. If so, just delete it. Deborah Setzer 1.Intermittent Bilateral action tremor a.Occasional resting tremor b. Hands, fingers, legs and head affected c. Worsens with stress and fatigue 2. rigidity a. started on left side now bilateral b. Muscle soreness (constant, deep nagging pain: can become unbearable, always present but varies in intensity. It is physically exhausting) i. thighs, calves, sole of feet, hands, forearms, upper arms, neck, shoulder, face c. Pain in the joints of the fingers, wrists, neck, shoulders, elbows, ankles, knees, toes and top and bottom of feet and where skull attaches to spinal cord i. This is a sharp, shooting pain that feels like someone is hitting the joints with a baseball bat when I try to move them. ii. Worse in the morning and evening than during the day d. Neck dystonia and inability to hold head erect for more than 15 minutes without it pulling to one side. 3. Bradykinesia a. Minimally responsive to Sinemet b. Shuffle step with left side more pronounced c. Difficulty initiating or following through with movements i. Especially with the hands 4. Postural Instability a. Lose balance when changing positions or standing still b. Worse with shoes on 5. Occasional freezing episodes a. Increase when pain is high or when fatigues 6. Occasional slurred speech and stuttering a. Soft voice b. Need to repeat what is said often 7. Frequent choking: Occurs at least 6 or more times in a 24 hour period a. On own saliva b. While eating c. While drinking d. While sleeping e. While breathing 8. Micrographia 9. Autonomic Nervous System Problems a. Feeling that hands are tingling or burning b. Feeling flushed or feverish c. Visual disturbances i. Blurred vision ii. Difficulty focusing on an object iii. Hypersensitive to light iv. Occasional double vision v. Occasional inability to read and understand the meaning of words d. Dizzy or lightheaded e. Shortness of breath f. Nausea g. Feeling faint h. Ringing in the ears i. Poor temperature regulation i. Cold when others are hot ii. Hot when others are cold iii. Cold, purple hands and feet 1. may even be running a temperature at the same time iv. difficulty defecating v. urinary frequency at night 1. waking 3 or more times to go to the bathroom each night 2. lack of signal to urinate during the day j. Short term memory problems i. Brain fog ii. Difficulty concentrating k. Hypersensitive to sound l. Hypotension m. No sex drive 10. Mood instability a. From tearful to intolerant b. Intermittent depressive episodes c. Occasional delusional/persecutory feelings 11. Lethargy 12. Occasional dyskinesia 13. Don’t want to be touched a. pressure from touch causes pain i. legs, arms and top of head ii. any place on the skin 14. Hive-like rash that burns like ant bites and then itches every time I try a new medication Chat with friends online, try MSN Messenger: Click Here Quote Link to comment Share on other sites More sharing options...
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