Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Janet, Connie H is the one to talk to. She will give you everything that you need. PLease contact her...!! It will be much easier than checking the archives. I will send you what she has sent me too. Hope this helps. hugs C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Hi Everyone :-) Some of you might remember me....yep, it's the long lost Connie H. and she's feeling like she's abandoned the group. I've been reading the posts, well, most of them, but lately have gotten a little behind the times. OK claudia....what's this about Mixed Connective Tissue Disease? Is that what they " gave you " ? I think they should call all rheumatic diseases " mixed " for a couple of reasons. One, the doctors always seem to be " mixed up " and all of our symptoms seem to be " mixed together " whether we have just RP or a combination. Well, , this could is a good thing, believe it or not. I've seen MCTD respond very well to the antibiotic protocol (AP). NOW, we just need to find you that doctor. And what's this about some stomach bug in your urine?? H. pylori maybe? That's the one that can survive stomach acid and has been implicated in stomach ulcers. Maybe, just maybe, they will treat the H. Pylori (if that's what it is) and put you on the AP. I have a friend here in town who has fibro....AND it was just discovered that she has H. Pylori, too....coincidence?? Janet.....how are things? As I recall, you and Pete just went to the doctor, right? Did you discuss the AP? I remember that you were interested in the Zithromax...I think that's what I remember! I'd be glad to tell you everything I know (won't take long :-) I've been thinking of ALL of you guys! If I start naming names, I'll forget someone unintentionally.....I hope you all know how much I CARE! Since I fell down the stairs in January (along with Liz's and Don's falls!) my back has been giving me trouble. It's fine later in the day, but is really stiff in the mornings, often waking me up way too early. Well, Dr. Franco suggested I see the Chiropractor and I did. I got great relief, but it wouldn't last. Finally....the Chiro and I were trying to figure it out and I remembered that Bromelain (pineapple enzyme) is supposed to help with inflammation. He agreed it would be worth a try. So far so good, but we're only on day two. It didn't stop my ears from hurting today, but my back is seemingly better. As for my ears....from one who " might have RP " , even after quitting the Olive Leaf Extract (kind of like an antibiotic, only herbal) and CoEnzymeQ 10 my ears still get red for an hour or so most evenings. Who knows! If that's the extent of it, it's fine by me. All I know is that my other rheumatic disease is well under control with the AP. Maybe the " might be RP " is being harnessed, as well. Anyway...I'm going to Yakima to have lunch with my Mom and sister tomorrow. It's about an hour+ drive. So, I won't be available during the daytime.....but I'll check in soon. Take care and a zillion hugs to all, Connie H. > Janet, Connie H is the one to talk to. She will give you everything that you > need. PLease contact her...!! It will be much easier than checking the > archives. I will send you what she has sent me too. Hope this helps. > > hugs > C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Janet, I don't know if there is an easy way to do this. I tried typing in " myocin " in the search archives box but came back with " 0 " results. I then tried " antibiotic therapy " and did come back with a few results. I will send your question on to Roy too, but all I can tell you is to try the search archives button. W Also try writing and asking Connie personally about this since she's the one that seems most familiar with it. >>>>>>>>>>>>>>>>>>>> Could someone tell me the easiest way to do this???Thanks so much Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Janet, I don't know if there is an easy way to do this. I tried typing in " myocin " in the search archives box but came back with " 0 " results. I then tried " antibiotic therapy " and did come back with a few results. I will send your question on to Roy too, but all I can tell you is to try the search archives button. W Also try writing and asking Connie personally about this since she's the one that seems most familiar with it. >>>>>>>>>>>>>>>>>>>> Could someone tell me the easiest way to do this???Thanks so much Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Janet, I don't know if there is an easy way to do this. I tried typing in " myocin " in the search archives box but came back with " 0 " results. I then tried " antibiotic therapy " and did come back with a few results. I will send your question on to Roy too, but all I can tell you is to try the search archives button. W Also try writing and asking Connie personally about this since she's the one that seems most familiar with it. >>>>>>>>>>>>>>>>>>>> Could someone tell me the easiest way to do this???Thanks so much Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Hi and Janet, , try typing in Minocin or minocycline and see if that helps. Also, Janet, for starters, you might have a look at the following websites: www.rheumatic.org www.roadback.org www.immed.org (click on the bottom of the page, rheumatic diseases or something like that) www.thearthritiscenter.com www.drmirkin.com (search " arthritis " ) Also, try to get from the library Henry Scammell's book, The New Arthritis Breakthrough. It has lots of info plus a lot of patient's stories. Let me know if you need anything, OK? Love and hugs, Connie H. > Janet, > I don't know if there is an easy way to do this. I tried typing in " myocin " > in the search archives box but came back with " 0 " results. > I then tried " antibiotic therapy " and did come back with a few results. > I will send your question on to Roy too, but all I can tell you is to try > the search archives button. > W > Also try writing and asking Connie personally about this since she's the one > that seems most familiar with it. > >>>>>>>>>>>>>>>>>>>> > Could someone tell me the easiest way to do this???Thanks so much Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Hi and Janet, , try typing in Minocin or minocycline and see if that helps. Also, Janet, for starters, you might have a look at the following websites: www.rheumatic.org www.roadback.org www.immed.org (click on the bottom of the page, rheumatic diseases or something like that) www.thearthritiscenter.com www.drmirkin.com (search " arthritis " ) Also, try to get from the library Henry Scammell's book, The New Arthritis Breakthrough. It has lots of info plus a lot of patient's stories. Let me know if you need anything, OK? Love and hugs, Connie H. > Janet, > I don't know if there is an easy way to do this. I tried typing in " myocin " > in the search archives box but came back with " 0 " results. > I then tried " antibiotic therapy " and did come back with a few results. > I will send your question on to Roy too, but all I can tell you is to try > the search archives button. > W > Also try writing and asking Connie personally about this since she's the one > that seems most familiar with it. > >>>>>>>>>>>>>>>>>>>> > Could someone tell me the easiest way to do this???Thanks so much Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Thank Connie. I guess it helps if you spell it right huh? LOL W >>>>>>>>>>>>>>>>>>>>>> Hi and Janet, , try typing in Minocin or minocycline and see if that helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Thank Connie. I guess it helps if you spell it right huh? LOL W >>>>>>>>>>>>>>>>>>>>>> Hi and Janet, , try typing in Minocin or minocycline and see if that helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 janet and susan have you tried going to the clubs mail site in the yahoo clubs area. where the emails are for the group if you search in there a lot of the old emails are there. if you tell me specifically what to look for i can try to find them from my end and email them back to you. dawn --- Woods susuw@...> wrote: > Janet, > I don't know if there is an easy way to do this. I > tried typing in " myocin " > in the search archives box but came back with " 0 " > results. > I then tried " antibiotic therapy " and did come back > with a few results. > I will send your question on to Roy too, but all I > can tell you is to try > the search archives button. > W > Also try writing and asking Connie personally about > this since she's the one > that seems most familiar with it. > >>>>>>>>>>>>>>>>>>>> > Could someone tell me the easiest way to do > this???Thanks so much Janet > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 janet and susan have you tried going to the clubs mail site in the yahoo clubs area. where the emails are for the group if you search in there a lot of the old emails are there. if you tell me specifically what to look for i can try to find them from my end and email them back to you. dawn --- Woods susuw@...> wrote: > Janet, > I don't know if there is an easy way to do this. I > tried typing in " myocin " > in the search archives box but came back with " 0 " > results. > I then tried " antibiotic therapy " and did come back > with a few results. > I will send your question on to Roy too, but all I > can tell you is to try > the search archives button. > W > Also try writing and asking Connie personally about > this since she's the one > that seems most familiar with it. > >>>>>>>>>>>>>>>>>>>> > Could someone tell me the easiest way to do > this???Thanks so much Janet > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 , Try Minocin oy Minocycline. Sandy > Janet, > I don't know if there is an easy way to do this. I tried typing in " myocin " > in the search archives box but came back with " 0 " results. > I then tried " antibiotic therapy " and did come back with a few results. > I will send your question on to Roy too, but all I can tell you is to try > the search archives button. > W > Also try writing and asking Connie personally about this since she's the one > that seems most familiar with it. > >>>>>>>>>>>>>>>>>>>> > Could someone tell me the easiest way to do this???Thanks so much Janet > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Yep, That's what I told Janet to do too, Dawn. The archives have all our mail there, but trying to find certain things can take a while. We have 31,965 messages stored there and it's hard to find specifics when you don't remember what the subject line was. Thanks Dawn, W >>>>>>>>>>>>>>>>>>>>>>>>>>>> janet and susan have you tried going to the clubs mail site in the yahoo clubs area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Yep, That's what I told Janet to do too, Dawn. The archives have all our mail there, but trying to find certain things can take a while. We have 31,965 messages stored there and it's hard to find specifics when you don't remember what the subject line was. Thanks Dawn, W >>>>>>>>>>>>>>>>>>>>>>>>>>>> janet and susan have you tried going to the clubs mail site in the yahoo clubs area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Yep, That's what I told Janet to do too, Dawn. The archives have all our mail there, but trying to find certain things can take a while. We have 31,965 messages stored there and it's hard to find specifics when you don't remember what the subject line was. Thanks Dawn, W >>>>>>>>>>>>>>>>>>>>>>>>>>>> janet and susan have you tried going to the clubs mail site in the yahoo clubs area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 My God, Janet, is someone actually listening to us?? Hard to believe, isn't it? Good luck with your search, I haven't been around long enough to know much, but I bet R. can help! She's like medical encylopedia, she has so much knowledge she stuns me. There are others who know a lot about it too. Good Luck! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 My God, Janet, is someone actually listening to us?? Hard to believe, isn't it? Good luck with your search, I haven't been around long enough to know much, but I bet R. can help! She's like medical encylopedia, she has so much knowledge she stuns me. There are others who know a lot about it too. Good Luck! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 My God, Janet, is someone actually listening to us?? Hard to believe, isn't it? Good luck with your search, I haven't been around long enough to know much, but I bet R. can help! She's like medical encylopedia, she has so much knowledge she stuns me. There are others who know a lot about it too. Good Luck! Love, Judy Quote Link to comment Share on other sites More sharing options...
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