Re: Help with archives please re:antibiotic therapy

March 27, 2001

Hi Everyone :-)

Some of you might remember me....yep, it's the long lost Connie H.

and she's feeling like she's abandoned the group.

I've been reading the posts, well, most of them, but lately have

gotten a little behind the times.

OK claudia....what's this about Mixed Connective Tissue Disease? Is

that what they " gave you " ? I think they should call all rheumatic

diseases " mixed " for a couple of reasons. One, the doctors always

seem to be " mixed up " and all of our symptoms seem to be " mixed

together " whether we have just RP or a combination. Well, ,

this could is a good thing, believe it or not. I've seen MCTD

respond very well to the antibiotic protocol (AP). NOW, we just need

to find you that doctor. And what's this about some stomach bug in

your urine?? H. pylori maybe? That's the one that can survive

stomach acid and has been implicated in stomach ulcers. Maybe, just

maybe, they will treat the H. Pylori (if that's what it is) and put

you on the AP. I have a friend here in town who has fibro....AND it

was just discovered that she has H. Pylori, too....coincidence??

Janet.....how are things? As I recall, you and Pete just went to the

doctor, right? Did you discuss the AP? I remember that you were

interested in the Zithromax...I think that's what I remember! I'd be

glad to tell you everything I know (won't take long :-)

I've been thinking of ALL of you guys! If I start naming names, I'll

forget someone unintentionally.....I hope you all know how much I

CARE!

Since I fell down the stairs in January (along with Liz's and Don's

falls!) my back has been giving me trouble. It's fine later in the

day, but is really stiff in the mornings, often waking me up way too

early. Well, Dr. Franco suggested I see the Chiropractor and I did.

I got great relief, but it wouldn't last. Finally....the Chiro and I

were trying to figure it out and I remembered that Bromelain

(pineapple enzyme) is supposed to help with inflammation. He agreed

it would be worth a try. So far so good, but we're only on day two.

It didn't stop my ears from hurting today, but my back is seemingly

better. As for my ears....from one who " might have RP " , even after

quitting the Olive Leaf Extract (kind of like an antibiotic, only

herbal) and CoEnzymeQ 10 my ears still get red for an hour or so most

evenings. Who knows! If that's the extent of it, it's fine by me.

All I know is that my other rheumatic disease is well under control

with the AP. Maybe the " might be RP " is being harnessed, as well.

Anyway...I'm going to Yakima to have lunch with my Mom and sister

tomorrow. It's about an hour+ drive. So, I won't be available

during the daytime.....but I'll check in soon.

Take care and a zillion hugs to all,

Connie H.

> Janet, Connie H is the one to talk to. She will give you

everything that you

> need. PLease contact her...!! It will be much easier than

checking the

> archives. I will send you what she has sent me too. Hope this

helps.

>

> hugs

> C

April 2, 2001

Connie H. Welcome back! I have one comment about the H. Pilori, I too have

duodenal ulcers, which they assured me would be cured with the antibiotic

Bactrim, which it might have been if the Bactrim hadn't cause huge hives head

to toe! So in my case the H. Pilori was easier to live with than the

treatment! I am still on Zantac 300 mg twice a day, my stomach is fine and I

am (thankfully) not itchy! So FYI, not everyone can handle the cure. But it

was worth a shot, if I just could have stayed on it for 10 days, my ulcers

could have been history! Alas, even thinking about it makes me itchy! Love,

Judy O

April 2, 2001