Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 i've just been taking two 5 mg doses, breakfast and lunch for four days but feel more energetic, and move a little longer and feel less depressed. when i have more data i'll let you know, but suggest anyone sitting on the fence give it a try. good luck, nancy spires Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 I completely understand, I would not be able to get through the day without CNS stimulants. The two years before I did were miserable and my decision making was so poor it regularly put me at great risk. I think we have bigger things to concern ourselves with than a 'possible dependance'. Keep us posted. I find taking it once daily is just as effective as twice daily . I find my extremities have better circulation in the first four hours after taking it - which is why I schedule most of my activities then. At Wednesday 5/22/02 08:18 PM, you wrote: i've just been taking two 5 mg doses, breakfast and lunch for four days but feel more energetic, and move a little longer and feel less depressed. when i have more data i'll let you know, but suggest anyone sitting on the fence give it a try. good luck, nancy spires aletta mes vancouver, bc Canada web: http://aletta.0catch.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 I completely understand, I would not be able to get through the day without CNS stimulants. The two years before I did were miserable and my decision making was so poor it regularly put me at great risk. I think we have bigger things to concern ourselves with than a 'possible dependance'. Keep us posted. I find taking it once daily is just as effective as twice daily . I find my extremities have better circulation in the first four hours after taking it - which is why I schedule most of my activities then. At Wednesday 5/22/02 08:18 PM, you wrote: i've just been taking two 5 mg doses, breakfast and lunch for four days but feel more energetic, and move a little longer and feel less depressed. when i have more data i'll let you know, but suggest anyone sitting on the fence give it a try. good luck, nancy spires aletta mes vancouver, bc Canada web: http://aletta.0catch.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Hey Rosie, I know you are taking ritalin for staying awake just like me. I was wondering if you experience any side effects. I get hot and cold flashes. Sometimes I feel really cold like there is a blade of cold ice going right through the middle of my body and then other times I get hot flashes like there is a fire going through the middle of my body. I know this sounds really wierd, but I never had them until I started the ritalin. I can put up with them because I really love the way it keeps me alert during the day. I wish the doctor put me on this drug a long time ago. But I was just wondering if you had the same side effects. (I did experience the hot flashes once in awhile but I attributed that to perimenopause, this is a different kind of hot flash.)Its hard to explain. I will stop now , I sound like a nut! Hugs, Debbie Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Debbie I'm not on Ritalin but my legs freeze & the rest of me is burning up. I don't know if it's the Cytoxan or the sarc but it's miserable. grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 , Maybe it's not the Ritalin after all. It's just the wierdest sensations I have ever had. Thanks for your input . I appreciate it. I agree it is miserable. Hugs, Debbie wrote: DebbieI'm not on Ritalin but my legs freeze & the rest of meis burning up. I don't know if it's the Cytoxan or thesarc but it's miserable.grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 Debbi I noticed the feverish feeling in m\y head last summer after my treatment. Ive been calling it my chemo brain because it showed up the worst after a ttreatment & when the weather was pretty hot. This dump doesn't have a window I can open & the a/c is crappy at best. I pulled a Rose last year & had an ice pack secured to my head using various clothing that was close to me. Unfortunately it seems like we're going intto hot weather quickly. So much for spring. grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hi , Maybe I should pull a Rose , huh? But how could I do it all over my body but sit in a tub of ice? lol What a thought! You are right, I don't look forward to the hot weather, I can tell it's going to make it worse. Debbie wrote: DebbiI noticed the feverish feeling in m\y head last summerafter my treatment. Ive been calling it my chemo brainbecause it showed up the worst after a ttreatment & when the weather was pretty hot. This dump doesn'thave a window I can open & the a/c is crappy at best.I pulled a Rose last year & had an ice pack secured tomy head using various clothing that was close to me.Unfortunately it seems like we're going intto hotweather quickly. So much for spring.grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Uh, say , you do know that the Mamadawg Ice Bra is patented? Royalties are paid directly to me, please. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: RE: RitalinDate: Sat, 15 Apr 2006 05:25:16 -0700 (PDT)DebbiI noticed the feverish feeling in m\y head last summerafter my treatment. Ive been calling it my chemo brainbecause it showed up the worst after a ttreatment & when the weather was pretty hot. This dump doesn'thave a window I can open & the a/c is crappy at best.I pulled a Rose last year & had an ice pack secured tomy head using various clothing that was close to me.Unfortunately it seems like we're going intto hotweather quickly. So much for spring.grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Debbie, I'm glad the Ritalin is working for you. I haven't noticed any symptoms like you described associated with the Ritalin. I've had the heat intolerance, basically from the neck up, for about 3 years, long before I took Ritalin. I don't get the cold flashes. I also had hot flashes from menopause, and it was nothing like this heat. I carry my battery-powered fans everywhere, plus extra batteries. People laugh at me, but I can almost get into a panic attack digging through my tote bag looking for a fan when I get hot. Hopes this helps. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: RitalinDate: Fri, 14 Apr 2006 04:06:20 -0700 (PDT)Hey Rosie, I know you are taking ritalin for staying awake just like me. I was wondering if you experience any side effects. I get hot and cold flashes. Sometimes I feel really cold like there is a blade of cold ice going right through the middle of my body and then other times I get hot flashes like there is a fire going through the middle of my body. I know this sounds really wierd, but I never had them until I started the ritalin. I can put up with them because I really love the way it keeps me alert during the day. I wish the doctor put me on this drug a long time ago. But I was just wondering if you had the same side effects. (I did experience the hot flashes once in awhile but I attributed that to perimenopause, this is a different kind of hot flash.)Its hard to explain. I will stop now , I sound like a nut! Hugs, Debbie Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Debbie, I'm glad the Ritalin is working for you. I haven't noticed any symptoms like you described associated with the Ritalin. I've had the heat intolerance, basically from the neck up, for about 3 years, long before I took Ritalin. I don't get the cold flashes. I also had hot flashes from menopause, and it was nothing like this heat. I carry my battery-powered fans everywhere, plus extra batteries. People laugh at me, but I can almost get into a panic attack digging through my tote bag looking for a fan when I get hot. Hopes this helps. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: RitalinDate: Fri, 14 Apr 2006 04:06:20 -0700 (PDT)Hey Rosie, I know you are taking ritalin for staying awake just like me. I was wondering if you experience any side effects. I get hot and cold flashes. Sometimes I feel really cold like there is a blade of cold ice going right through the middle of my body and then other times I get hot flashes like there is a fire going through the middle of my body. I know this sounds really wierd, but I never had them until I started the ritalin. I can put up with them because I really love the way it keeps me alert during the day. I wish the doctor put me on this drug a long time ago. But I was just wondering if you had the same side effects. (I did experience the hot flashes once in awhile but I attributed that to perimenopause, this is a different kind of hot flash.)Its hard to explain. I will stop now , I sound like a nut! Hugs, Debbie Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 , You try that one out and let us know how it went - ok? Terri G. > > how about one of those ballet unitards filled with > ice? BRRRRRRRRR > > > grannylunatic@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 , You try that one out and let us know how it went - ok? Terri G. > > how about one of those ballet unitards filled with > ice? BRRRRRRRRR > > > grannylunatic@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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