Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 A relative has Parkinson's plus MSA. Her doctor recommended DBS to help her inability to tolerate Sinemet for her Parkinson's. Does DBS help MSA at all? Re: Rash and MSA Hi, I just got back from the doctor's office. I was told that my rash is because of my MSA, specifically that my immune system is not functioning correctly. I was advised not to even go in our hot tub (which I just got back into working order day before yesterday) or even a swimming pool because I am likely to have a reaction to the chemicals in it. He said that the MSA is causing a lot of the different major organ systems in my body to not work right. (Reality check from him because of my denial) He is a very kind doctor. He always spends a lot of time with me and answers any questions that I have. He looked truly sad when he told me that he doesn't have any magic answers. He ordered a number of blood tests and increased the dosing on 2 of my meds but is being very cautious with adding any additional medications until after the blood work comes back because he is afraid that I might get an even worse reaction. I don't know why, by now, I haven't figured out when I go to the doctor they are not going to give me some magic pill that will make me well. Because of the botched DBS and the resulting infections that I had earlier this year, they cannot even give me anything to " make me more comfortable. " Taking 1 darvocette for the pain 3 weeks ago necessitated me going back on steroids for a week. I'm glad ya'll are here. I have to admit something to all of you so that I can have the courage to face it myself. I won't be able to have the DBS redone for my MSA. I was scheduled for July 10 (penciled in) but the reality is that the MSA is progressing, I'm not getting over what my body went through from the brain infection in January and if I can't even take a darvocette...I would never live through general anesthesia. Once again, I find myself back to that point of having to accept that this is as good as it is going to get and I'm going to have to deal with it. (Denial is so much more fun than reality)! Deborah aka Tenacity _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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