(No subject)

[Guest guest]

,

I am sorry for all your frustrations. I know that it would be easier

if they just said probable something instead of saying the don't know

for sure. In my experiences I know that not all neurologist know

about movement disorders. Have you been to a neurologist specializing

in that? Until I went to one who did I was asked if I had

psychological problems or does your husband beat you? I was ready to

give up but knew I couldn't. I went through all of that for over 2

years. I couldn't talk, walk very far, etc. It was very frustrating

to say the least for me and my family. They knew I wasn't making all

this up because it wasn't my nature. I was finally diagnosed and

going for a second opinion in June. I can understand your need to

know for your own comfort but do you also need to know for SSI or

another reason? I will be praying for you both.

God bless,

Belinda

> Hello Everyone: Me again

>

> After two years of running to any doctor who would listen we are

completely

> exhausted. My husband was diagnosed by Hospital in St.

Louis, MO

> with MSA (Neurologist Diagnosed him). THe neurologist added that

it was

> really to early for all the signs to appear. Soooooooooooooooo I

took my

> husband to another physician who supposedly specialized in MSA in

> Springfield , IL. Well guess what that specialist says NO to MSA

because

> the only symptom that my husband doesn't have YET out of the list

is low

> blood pressure. The Springfield Dr. says some form of

ATAXIA?????? When I

> asked for more specifics of course I was treated like I had four

eyes.

> Now my husband has had to go back to his family doctor for his

eyelids not

> wanting to stay open, pain in his legs, not being able to get from a

> sitting position to a standing position and bowel/urine

incontinence.

>

> Seems like I only email this group when I have gone to my limit.

Any

> suggestions? We see the Neurologist in Springfield this Thursday

again.

> Wish there was a pill for my husband to take to make this all so

much

> better. If anything I am totally frustrated with wondering does he

have it

> or does he not. Please do not come back and say well autopsy is

the only

> definite way of telling. We had one Dr that we walked out on

because he

> told my husband, " If you would allow me to autopsy your brain I

would be

> able to tell you. " Needless to say we haven't gone back to that

Physician.

>

> Hugs

>

> Yates, CPC

> Office of Corporate Compliance

> Southern Illinois HealthCare

> Compliance Auditor

> 1239 E Main

> Carbondale, IL 62901

> Ex: 67037

> Fax: 618 -351-6380