Re: Conference by NDRF - July

[Guest guest]

Thanks , I don't think the NDRF page is up to date as it lists

different speakers and doesn't mention Bush. Does the pamphlet set

out a clear agenda? I was told that some people were disappointed with

their last meeting as no one spoke specifically on MSA. Also note that

there is a conference fee of $150 per person to attend. I'm sure it will be

a great conference but I'd want to ask more questions to know exactly what

to expect up front.

Hugs,

Pam

Conference by NDRF - July

> The national Dysautonomia Research Foundation is having a conference

> July 18-20 in Washington DC. Guest speakers are : doctors: Grubb,

> Golstein, Stweart, on, Coghlan, Freeman, and more.

> Topics are MSA, PAF, Neurally mediated syncope, and many more. I am

> on their mailing list and the card I received today states that the

> guest speaker, Friday is President Bush. I imagine it is

> senior. ( that should get us publicity) Go to www.ndrf.org or call

> ifinterested. It is being held at the Omni Shoreham

> Hotel.That's all folks B.

[Guest guest]

-

Hi I don't havea scanner but I will giveyou the info on the small

flyer I received;

National Dyautonmia Research Foundation

Thursday July 18 - Saturday July 20, 2002

Washinton DC

Omni Shoreham Hotel

Speakers :

Doctors: Blair Grubb, Low, Goldstein, n Sewart,

davison,Cecil Coghlan, Roy Freeman, Ken davis, levy,

Suzeette Levy

Topics: Orthostatic intolerance, Neurally Mediated Syncope, Multiple

System Atrophy, Exercise, Neurotransmitters, Autonomic nervous

sytem,pure autonomic failure, chronic fatigue,open questions and

answers, drug therapy, caregiving, coping strategies, support groups

guest Speaker: PresidentGeoprge Bushat at the Presidential dinner,

Friday the 19th

It says please visit webwww.ndrf.orgor call for additional

information.

hope this helps. ( my keyboard is sticking so this took forever)

-- In shydrager@y..., " Pam Bower " wrote:

> Thanks , I don't think the NDRF page is up to date as it lists

> different speakers and doesn't mention Bush. Does the

pamphlet set

> out a clear agenda? I was told that some people were disappointed

with

> their last meeting as no one spoke specifically on MSA. Also note

that

> there is a conference fee of $150 per person to attend. I'm sure

it will be

> a great conference but I'd want to ask more questions to know

exactly what

> to expect up front.

>

> Hugs,

> Pam

>

> Conference by NDRF - July

>

>

> > The national Dysautonomia Research Foundation is having a

conference

> > July 18-20 in Washington DC. Guest speakers are : doctors: Grubb,

> > Golstein, Stweart, on, Coghlan, Freeman, and more.

> > Topics are MSA, PAF, Neurally mediated syncope, and many more. I

am

> > on their mailing list and the card I received today states that

the

> > guest speaker, Friday is President Bush. I imagine it is

> > senior. ( that should get us publicity) Go to www.ndrf.org or call

> > ifinterested. It is being held at the Omni Shoreham

> > Hotel.That's all folks B.

[Guest guest]

Thanks ! Sorry about your sticky keyboard... did you spill juice on

it?

Hugs,

Pam

Re: Conference by NDRF - July

> -

>

> Hi I don't havea scanner but I will giveyou the info on the small

> flyer I received;

>

> National Dyautonmia Research Foundation

> Thursday July 18 - Saturday July 20, 2002

> Washinton DC

> Omni Shoreham Hotel

> Speakers :

>

> Doctors: Blair Grubb, Low, Goldstein, n Sewart,

> davison,Cecil Coghlan, Roy Freeman, Ken davis, levy,

> Suzeette Levy

>

> Topics: Orthostatic intolerance, Neurally Mediated Syncope, Multiple

> System Atrophy, Exercise, Neurotransmitters, Autonomic nervous

> sytem,pure autonomic failure, chronic fatigue,open questions and

> answers, drug therapy, caregiving, coping strategies, support groups

>

> guest Speaker: PresidentGeoprge Bushat at the Presidential dinner,

> Friday the 19th

>

> It says please visit webwww.ndrf.orgor call for additional

> information.

>

> hope this helps. ( my keyboard is sticking so this took forever)

[Guest guest]

---

No it is not sticky on the surface, I belive it has seen better days

and needs replacing. It is not working properly.

In shydrager@y..., " Pam Bower " wrote:

> Thanks ! Sorry about your sticky keyboard... did you spill

juice on

> it?

> Hugs,

> Pam

>

> Re: Conference by NDRF - July

>

>

> > -

> >

> > Hi I don't havea scanner but I will giveyou the info on the small

> > flyer I received;

> >

> > National Dyautonmia Research Foundation

> > Thursday July 18 - Saturday July 20, 2002

> > Washinton DC

> > Omni Shoreham Hotel

> > Speakers :

> >

> > Doctors: Blair Grubb, Low, Goldstein, n Sewart,

> > davison,Cecil Coghlan, Roy Freeman, Ken davis, levy,

> > Suzeette Levy

> >

> > Topics: Orthostatic intolerance, Neurally Mediated Syncope,

Multiple

> > System Atrophy, Exercise, Neurotransmitters, Autonomic nervous

> > sytem,pure autonomic failure, chronic fatigue,open questions and

> > answers, drug therapy, caregiving, coping strategies, support

groups

> >

> > guest Speaker: PresidentGeoprge Bushat at the Presidential dinner,

> > Friday the 19th

> >

> > It says please visit webwww.ndrf.orgor call for additional

> > information.

> >

> > hope this helps. ( my keyboard is sticking so this took

forever)