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Hello Everyone: Me again

After two years of running to any doctor who would listen we are completely

exhausted. My husband was diagnosed by Hospital in St. Louis, MO

with MSA (Neurologist Diagnosed him). THe neurologist added that it was

really to early for all the signs to appear. Soooooooooooooooo I took my

husband to another physician who supposedly specialized in MSA in

Springfield , IL. Well guess what that specialist says NO to MSA because

the only symptom that my husband doesn't have YET out of the list is low

blood pressure. The Springfield Dr. says some form of ATAXIA?????? When I

asked for more specifics of course I was treated like I had four eyes.

Now my husband has had to go back to his family doctor for his eyelids not

wanting to stay open, pain in his legs, not being able to get from a

sitting position to a standing position and bowel/urine incontinence.

Seems like I only email this group when I have gone to my limit. Any

suggestions? We see the Neurologist in Springfield this Thursday again.

Wish there was a pill for my husband to take to make this all so much

better. If anything I am totally frustrated with wondering does he have it

or does he not. Please do not come back and say well autopsy is the only

definite way of telling. We had one Dr that we walked out on because he

told my husband, " If you would allow me to autopsy your brain I would be

able to tell you. " Needless to say we haven't gone back to that Physician.

Hugs

Yates, CPC

Office of Corporate Compliance

Southern Illinois HealthCare

Compliance Auditor

1239 E Main

Carbondale, IL 62901

Ex: 67037

Fax: 618 -351-6380

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