Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Deborah: I know that Fred is trying to stay on top of this illness by doing things, but my job as a caregiver is to help him keep from hurting himself . Now I know his trying to fight this, That's what I'm trying to help him do also, but when he does things like try to climb a ladder and he know's his balance is bad and falls , hit's his head and then try's to climb the ladder again the next day, well that's where I have to put my foot down and believe me that isn't easy because I haven't big feet. It's not good for Fred to keep hitting his head the way he has. His had three good hit's on the head this last week. Then it's not an easy job being a caregiver like you said. I know your right , you have to fight this illness and stay one step in front of it, but can't the steps be a safe one , without hurting yourself ? Believe me it would be less stress for the caregiver. You don't know how our heart's go into our throat when we see you fall and get hurt.Talk about B/P going up. I'm going to bed now and dream of your vacation. It sound's like a dream come true. Come to think about it , being suffed in Bill suitcase and going to the land of Oz does to. Boy some of us are sure lucky. Only in my dreams ) Vera ************************** Subject: Re: Vera Vera, I don't think he will ever learn and in a way, you don't really want him too if you think about it. He is still fighting in whatever way he can to stay above this disease, like me. There, since you don't know which posts to respond to, I put your name in the subject line...lol... & I had a nice 2 days in Myrtle Beach. Only one mishap. We had a suite with a bedroom, small hallway then a living room. The living room had a view over the ocean. We opened up the window late in the evening night before last so that we could hear the waves. I feel asleep on the murphy bed and did not want to disturb me so when he got tired he went into the other room and went to sleep. I woke during the night, did not know where I was, got out of bed, hit a few walls walking to the restroom, fell on the door, jammed it into the kitchen cabinets and then fell and hit my head. slept through all of this. By the time I got to the bed he was sleeping in I was fit to be tied. Poor man, trying to let me sleep and all he gets is "Didn't you think I would be disoriented," "Didn't you hear me fall," Didn't you this, didn't you that" ... well, poor darlin' it's tough being the caregiver. The worse part is that now that I have a little hair, it is sticking straight out on 3 sides so I look like a chimpanzee and this makes it all the more difficult for anyone to take me seriously when talking. He is a sweetie and we survived abate a bruise on my head. Hugs, Deborah aka Tenacity _________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Vera, I must correct one thing that you said. It is not I that is right, it is you and . I get frustrated and overdo or do something stupid just because I don't want to accept that I can't do it anymore. That does not make me right, it does however provide my husband/caregiver with incidents that he can write down and show me in the future. I have always been independent, always worked more than one job, always laughed when someone told me something was impossible, always DID what I wanted to do and received much positive reinforcement for the effort because I was rarely unsuccessful. My how times have changed. I still have the attitude that I used to have but not the graceful, strong, cooperation of my body. The neurological problems and the medications fool me sometimes into believing that I can still climb, run, dance or do as I used to. This is very difficult for my husband who " buys into " me being able to do more than I can. Funny, my paradox here is that I want to be normal so bad that I overdo and sees me doing some things some days and crying when he asks me to do the same thing on another day. I have created a nightmare where he is at a loss of what my capabilities are any more. I can admit when I am wrong and in this case, I am! If it were only mind over matter, I would be one well woman. Deborah _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Vera, I must correct one thing that you said. It is not I that is right, it is you and . I get frustrated and overdo or do something stupid just because I don't want to accept that I can't do it anymore. That does not make me right, it does however provide my husband/caregiver with incidents that he can write down and show me in the future. I have always been independent, always worked more than one job, always laughed when someone told me something was impossible, always DID what I wanted to do and received much positive reinforcement for the effort because I was rarely unsuccessful. My how times have changed. I still have the attitude that I used to have but not the graceful, strong, cooperation of my body. The neurological problems and the medications fool me sometimes into believing that I can still climb, run, dance or do as I used to. This is very difficult for my husband who " buys into " me being able to do more than I can. Funny, my paradox here is that I want to be normal so bad that I overdo and sees me doing some things some days and crying when he asks me to do the same thing on another day. I have created a nightmare where he is at a loss of what my capabilities are any more. I can admit when I am wrong and in this case, I am! If it were only mind over matter, I would be one well woman. Deborah _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Vera, I must correct one thing that you said. It is not I that is right, it is you and . I get frustrated and overdo or do something stupid just because I don't want to accept that I can't do it anymore. That does not make me right, it does however provide my husband/caregiver with incidents that he can write down and show me in the future. I have always been independent, always worked more than one job, always laughed when someone told me something was impossible, always DID what I wanted to do and received much positive reinforcement for the effort because I was rarely unsuccessful. My how times have changed. I still have the attitude that I used to have but not the graceful, strong, cooperation of my body. The neurological problems and the medications fool me sometimes into believing that I can still climb, run, dance or do as I used to. This is very difficult for my husband who " buys into " me being able to do more than I can. Funny, my paradox here is that I want to be normal so bad that I overdo and sees me doing some things some days and crying when he asks me to do the same thing on another day. I have created a nightmare where he is at a loss of what my capabilities are any more. I can admit when I am wrong and in this case, I am! If it were only mind over matter, I would be one well woman. Deborah _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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