Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 In a message dated 6/18/00 12:56:44 AM Eastern Daylight Time, MiniGastricBypass (AT) e writes: > The surgeon said I was a little arrogant, telling the group to look at my > results and to confirm them for themselves if they were skeptical. He > thought is was just right given how they were speaking to me. I can be a > little abrupt at times. I was very sure of myself because our results are > so much better than anyone else. Dr. R ANYONE who is a leader in their field can't help but be a little arrogant. ly, it made me feel MORE confident. I knew that you would do EVERYTHING possible to have me have a good outcome, and that you expected a good outcome. Remember, you just planted the seed, everyone who does something differently has experienced what you have experienced. Besides, (except for the possible exception of MY peers, lawyers) IS there a more arrogant group than surgeons? You hang in there. We know that your results speak for themselves. As for the internet, THANK GOD we have the ability to educate ourselves, communicate with you and other patients on the internet! I still remember contacting a lady that a friend THOUGHT you had operated on. When I asked her what surgery she had had, she had NO IDEA!!! Spent several weeks in the hosptial and went home for MONTHS to recover. Thank you for your sweet, compassionate, arrogant self! You have given us our life back! If I sound like a groupie, well that's what happens when you get another chance at life. Happy Father's Day, dear man! Safe journey, MGB 03 MAY 00 Safely on the other side!!!! Dr. Rutledge clos.net Self-funded company plan administered by Interactive Medical Denied on appeal as an excluded benefit Self Pay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 In a message dated 6/18/00 12:56:44 AM Eastern Daylight Time, MiniGastricBypass (AT) e writes: > The surgeon said I was a little arrogant, telling the group to look at my > results and to confirm them for themselves if they were skeptical. He > thought is was just right given how they were speaking to me. I can be a > little abrupt at times. I was very sure of myself because our results are > so much better than anyone else. Dr. R ANYONE who is a leader in their field can't help but be a little arrogant. ly, it made me feel MORE confident. I knew that you would do EVERYTHING possible to have me have a good outcome, and that you expected a good outcome. Remember, you just planted the seed, everyone who does something differently has experienced what you have experienced. Besides, (except for the possible exception of MY peers, lawyers) IS there a more arrogant group than surgeons? You hang in there. We know that your results speak for themselves. As for the internet, THANK GOD we have the ability to educate ourselves, communicate with you and other patients on the internet! I still remember contacting a lady that a friend THOUGHT you had operated on. When I asked her what surgery she had had, she had NO IDEA!!! Spent several weeks in the hosptial and went home for MONTHS to recover. Thank you for your sweet, compassionate, arrogant self! You have given us our life back! If I sound like a groupie, well that's what happens when you get another chance at life. Happy Father's Day, dear man! Safe journey, MGB 03 MAY 00 Safely on the other side!!!! Dr. Rutledge clos.net Self-funded company plan administered by Interactive Medical Denied on appeal as an excluded benefit Self Pay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 In a message dated 6/18/00 12:56:44 AM Eastern Daylight Time, MiniGastricBypass (AT) e writes: > The surgeon said I was a little arrogant, telling the group to look at my > results and to confirm them for themselves if they were skeptical. He > thought is was just right given how they were speaking to me. I can be a > little abrupt at times. I was very sure of myself because our results are > so much better than anyone else. Dr. R ANYONE who is a leader in their field can't help but be a little arrogant. ly, it made me feel MORE confident. I knew that you would do EVERYTHING possible to have me have a good outcome, and that you expected a good outcome. Remember, you just planted the seed, everyone who does something differently has experienced what you have experienced. Besides, (except for the possible exception of MY peers, lawyers) IS there a more arrogant group than surgeons? You hang in there. We know that your results speak for themselves. As for the internet, THANK GOD we have the ability to educate ourselves, communicate with you and other patients on the internet! I still remember contacting a lady that a friend THOUGHT you had operated on. When I asked her what surgery she had had, she had NO IDEA!!! Spent several weeks in the hosptial and went home for MONTHS to recover. Thank you for your sweet, compassionate, arrogant self! You have given us our life back! If I sound like a groupie, well that's what happens when you get another chance at life. Happy Father's Day, dear man! Safe journey, MGB 03 MAY 00 Safely on the other side!!!! Dr. Rutledge clos.net Self-funded company plan administered by Interactive Medical Denied on appeal as an excluded benefit Self Pay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 To Dr. R.: I'm still pre-op and working on the requirements, but I wanted to add my vote of confidence and support. About 6 years ago, I began researching the different kinds of bariatric surgery. The thought had never cross my mind before, until a coworker had it done. He was well over 600 lbs. I'm not sure exactly which procedure he had, but I know that within 30 minutes of eating, everything that had gone in one hole (mouth) came out the other end! I contacted a surgeon in Boston for mine. I went thru all the required counseling ... psychological, nutritional and others. I went thru numerous physical tests. And essentially learned as much as I could about it. By the time I was " ready " for the surgery, I changed my mind! The procedure he was using required 30 days in the hospital (!), and you were on liquids only for another 3 months after that, and " solids " super blended, were introduced only after the 4th month. His " pouch " was only 2 ounces! And the " dumping syndrome " was extremely high for just about all the patients. I just could not subject myself to that! I still had a 6 year old with severe Attention Deficit Hyperactivy Disorder at home. There was no way I could be " sick " that long. My family would have disowned me! Now I am extremely happy that my daughter-in-law found you, and that I did not have it done then! A neighbor of ours had one done about 20 years ago ... she did lose weight, but no where near what she had expected. And ever since the surgery she has lived going from one specialist to another! She has more medical problems now, than 's has " little liver pills " (if you are old enough, you'll remember that one! LOL!). I know she never recommended it to anyone else after! Since your results are obviously miles better, I know that I will be much happier than she was. And I can't wait to lose the weight and then show up where I used to work and show off! I'm so glad that I won't have to go through what these 2 people went and are still, going through! Don't give up the fight ... a prophet is never accepted in his own land! Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 To Dr. R.: I'm still pre-op and working on the requirements, but I wanted to add my vote of confidence and support. About 6 years ago, I began researching the different kinds of bariatric surgery. The thought had never cross my mind before, until a coworker had it done. He was well over 600 lbs. I'm not sure exactly which procedure he had, but I know that within 30 minutes of eating, everything that had gone in one hole (mouth) came out the other end! I contacted a surgeon in Boston for mine. I went thru all the required counseling ... psychological, nutritional and others. I went thru numerous physical tests. And essentially learned as much as I could about it. By the time I was " ready " for the surgery, I changed my mind! The procedure he was using required 30 days in the hospital (!), and you were on liquids only for another 3 months after that, and " solids " super blended, were introduced only after the 4th month. His " pouch " was only 2 ounces! And the " dumping syndrome " was extremely high for just about all the patients. I just could not subject myself to that! I still had a 6 year old with severe Attention Deficit Hyperactivy Disorder at home. There was no way I could be " sick " that long. My family would have disowned me! Now I am extremely happy that my daughter-in-law found you, and that I did not have it done then! A neighbor of ours had one done about 20 years ago ... she did lose weight, but no where near what she had expected. And ever since the surgery she has lived going from one specialist to another! She has more medical problems now, than 's has " little liver pills " (if you are old enough, you'll remember that one! LOL!). I know she never recommended it to anyone else after! Since your results are obviously miles better, I know that I will be much happier than she was. And I can't wait to lose the weight and then show up where I used to work and show off! I'm so glad that I won't have to go through what these 2 people went and are still, going through! Don't give up the fight ... a prophet is never accepted in his own land! Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 To Dr. R.: I'm still pre-op and working on the requirements, but I wanted to add my vote of confidence and support. About 6 years ago, I began researching the different kinds of bariatric surgery. The thought had never cross my mind before, until a coworker had it done. He was well over 600 lbs. I'm not sure exactly which procedure he had, but I know that within 30 minutes of eating, everything that had gone in one hole (mouth) came out the other end! I contacted a surgeon in Boston for mine. I went thru all the required counseling ... psychological, nutritional and others. I went thru numerous physical tests. And essentially learned as much as I could about it. By the time I was " ready " for the surgery, I changed my mind! The procedure he was using required 30 days in the hospital (!), and you were on liquids only for another 3 months after that, and " solids " super blended, were introduced only after the 4th month. His " pouch " was only 2 ounces! And the " dumping syndrome " was extremely high for just about all the patients. I just could not subject myself to that! I still had a 6 year old with severe Attention Deficit Hyperactivy Disorder at home. There was no way I could be " sick " that long. My family would have disowned me! Now I am extremely happy that my daughter-in-law found you, and that I did not have it done then! A neighbor of ours had one done about 20 years ago ... she did lose weight, but no where near what she had expected. And ever since the surgery she has lived going from one specialist to another! She has more medical problems now, than 's has " little liver pills " (if you are old enough, you'll remember that one! LOL!). I know she never recommended it to anyone else after! Since your results are obviously miles better, I know that I will be much happier than she was. And I can't wait to lose the weight and then show up where I used to work and show off! I'm so glad that I won't have to go through what these 2 people went and are still, going through! Don't give up the fight ... a prophet is never accepted in his own land! Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 We have a link to a database of neurologists on the homepage of PSPInformation.com. I imagine Charlotte may be an attractive destination from Clinton SC. It does have a large medical community. My experience (which was with PSP) was that after the diagnosis was made - the interest of our neurologist was noticibly less than intense. In fact our doctor said quite early that there was really nothing of any real value he could do. Office visits consisted of him taking notes and asking us questions about what we had learned. Eventually we found that a general internal medicine doctor best served our ongoing needs. I'm in Charlotte - if I can help please get in touch. Ron Ritch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Sadly I noticed too, that while everyone thought I had MS the interest in my well-being seemed higher. Lost causes I suppose. At 6/5/02 04:35 PM Wednesday, you wrote: We have a link to a database of neurologists on the homepage of PSPInformation.com. I imagine Charlotte may be an attractive destination from Clinton SC. It does have a large medical community. My experience (which was with PSP) was that after the diagnosis was made - the interest of our neurologist was noticibly less than intense. In fact our doctor said quite early that there was really nothing of any real value he could do. Office visits consisted of him taking notes and asking us questions about what we had learned. Eventually we found that a general internal medicine doctor best served our ongoing needs. I'm in Charlotte - if I can help please get in touch. Ron Ritch If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Ron, I am in Indian Trail, my dad died one month ago with a diagnosis of shydragers, but I had a spinal to see if I had ms, but it was negative, but because of the lesion and symptoms they still want me to do the avonex injections, because even though the spinal was negative they want to treat me for three years. I asked about shydragers being hereditary and they said no. I see neurologist at Mecklenburg Neurology across from Presbyterian Hospital. There is another person on this site from Charlotte and her name is Deborah aka Tenacitywins. What exactly is your diagnosis. Dee/NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Ron, Did your father have confirmed diagnosis by autopsy? If not, others on the list will tell you that some of the hereditary neurological conditions (such as OPCA and the Ataxias) cannot be distinguished conclusively from MSA/Shydrager except by autopsy. Since it sounds as though you are having neurological symptoms that cause you to wonder if you could also have what your father had, have you had any testing for the hereditary ataxias, etc. Regards, Jerry Cash Re: Digest Number 1535 Hi Ron, I am in Indian Trail, my dad died one month ago with a diagnosis of shydragers, but I had a spinal to see if I had ms, but it was negative, but because of the lesion and symptoms they still want me to do the avonex injections, because even though the spinal was negative they want to treat me for three years. I asked about shydragers being hereditary and they said no. I see neurologist at Mecklenburg Neurology across from Presbyterian Hospital. There is another person on this site from Charlotte and her name is Deborah aka Tenacitywins. What exactly is your diagnosis. Dee/NC If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Dear Jerry, I noticed you included OPCA as being hereditary. My husband was diagnosed with OPCA conclusively by Dr. Sid Gilman. He said, however, that is was not hereditary. Just wondering where you got your information. We were told genetic testing was not recommended. I'm wondering because I have 2 children. > >Reply-To: shydrager >To: " shydrager shydrager > >Subject: RE: Digest Number 1535 >Date: Thu, 6 Jun 2002 10:28:51 -0500 > >Ron, > >Did your father have confirmed diagnosis by autopsy? If not, others on the >list will tell you that some of the hereditary neurological conditions >(such >as OPCA and the Ataxias) cannot be distinguished conclusively from >MSA/Shydrager except by autopsy. > >Since it sounds as though you are having neurological symptoms that cause >you to wonder if you could also have what your father had, have you had any >testing for the hereditary ataxias, etc. > >Regards, > >Jerry Cash > > Re: Digest Number 1535 > > >Hi Ron, >I am in Indian Trail, my dad died one month ago with a diagnosis of >shydragers, but I had a spinal to see if I had ms, but it was negative, but >because of the lesion and symptoms they still want me to do the avonex >injections, because even though the spinal was negative they want to treat >me >for three years. I asked about shydragers being hereditary and they said >no. > I see neurologist at Mecklenburg Neurology across from Presbyterian >Hospital. There is another person on this site from Charlotte and her name >is Deborah aka Tenacitywins. What exactly is your diagnosis. >Dee/NC > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 If you look back in the archives at some of the information Pam and others have posted previously I think it has been explained that there are two types of OPCA - hereditary and sporadic. However, maybe some of the others on the list will want to clarify since I believe Pam is currently away on business. But, basically, yes it is my understanding that some OPCAs are heredity while others are sporadic and that some of the sporadic OPCA (which is apparently what your husband has) can progess to become MSA (which of course is thought to be exclusively sporadic or non-hereditary). I'm certainly not the expert on the list to be answering with much authority, but I assume one of the key criteria in evaluating heredity vs. sporadic OPCA is family history. If there are no relatives (parents, grandparents, etc.) then it is almost a given that the condition was not inherited and must have developed as a sporadic condition. Didn't mean to confuse anything, hope this helps to clarify, Jerry Re: Digest Number 1535 > > >Hi Ron, >I am in Indian Trail, my dad died one month ago with a diagnosis of >shydragers, but I had a spinal to see if I had ms, but it was negative, but >because of the lesion and symptoms they still want me to do the avonex >injections, because even though the spinal was negative they want to treat >me >for three years. I asked about shydragers being hereditary and they said >no. > I see neurologist at Mecklenburg Neurology across from Presbyterian >Hospital. There is another person on this site from Charlotte and her name >is Deborah aka Tenacitywins. What exactly is your diagnosis. >Dee/NC > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 on's, Note OPCA can be hereditary, BUT the sporatic version (no previous family members had it) is considered MSA. My wife had sporatic OPCA, therefore it was MSA. If your husband had an autopsy and they determined that it was indeed sporatic OPCA, there is no need for genetic testing. Take care, Bill Werre ------------------ The on's wrote: > Dear Jerry, > > I noticed you included OPCA as being hereditary. My husband was diagnosed > with OPCA conclusively by Dr. Sid Gilman. He said, however, that is was not > hereditary. Just wondering where you got your information. We were told > genetic testing was not recommended. I'm wondering because I have 2 > children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 on's, Note OPCA can be hereditary, BUT the sporatic version (no previous family members had it) is considered MSA. My wife had sporatic OPCA, therefore it was MSA. If your husband had an autopsy and they determined that it was indeed sporatic OPCA, there is no need for genetic testing. Take care, Bill Werre ------------------ The on's wrote: > Dear Jerry, > > I noticed you included OPCA as being hereditary. My husband was diagnosed > with OPCA conclusively by Dr. Sid Gilman. He said, however, that is was not > hereditary. Just wondering where you got your information. We were told > genetic testing was not recommended. I'm wondering because I have 2 > children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 on's, Note OPCA can be hereditary, BUT the sporatic version (no previous family members had it) is considered MSA. My wife had sporatic OPCA, therefore it was MSA. If your husband had an autopsy and they determined that it was indeed sporatic OPCA, there is no need for genetic testing. Take care, Bill Werre ------------------ The on's wrote: > Dear Jerry, > > I noticed you included OPCA as being hereditary. My husband was diagnosed > with OPCA conclusively by Dr. Sid Gilman. He said, however, that is was not > hereditary. Just wondering where you got your information. We were told > genetic testing was not recommended. I'm wondering because I have 2 > children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Bill, Thanks for the clarification to the ons. Just a note of further clarification though, it is my understanding from what we've learned on this list that sporadic OPCA does not necessarily progress to MSA even though we often speak of MSA of the OPCA variety. Sporadic OPCA (which has not progressed to MSA of the OPCA variety) has a much different life expectancy (which is typically I believe around 20 years post diagnosis) and a slower rate of progression of symptoms than MSA of any variety. Do you agree? Regards, jerry Cash Re: Digest Number 1535 on's, Note OPCA can be hereditary, BUT the sporatic version (no previous family members had it) is considered MSA. My wife had sporatic OPCA, therefore it was MSA. If your husband had an autopsy and they determined that it was indeed sporatic OPCA, there is no need for genetic testing. Take care, Bill Werre ------------------ The on's wrote: > Dear Jerry, > > I noticed you included OPCA as being hereditary. My husband was diagnosed > with OPCA conclusively by Dr. Sid Gilman. He said, however, that is was not > hereditary. Just wondering where you got your information. We were told > genetic testing was not recommended. I'm wondering because I have 2 > children. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Bill, Thanks for the clarification to the ons. Just a note of further clarification though, it is my understanding from what we've learned on this list that sporadic OPCA does not necessarily progress to MSA even though we often speak of MSA of the OPCA variety. Sporadic OPCA (which has not progressed to MSA of the OPCA variety) has a much different life expectancy (which is typically I believe around 20 years post diagnosis) and a slower rate of progression of symptoms than MSA of any variety. Do you agree? Regards, jerry Cash Re: Digest Number 1535 on's, Note OPCA can be hereditary, BUT the sporatic version (no previous family members had it) is considered MSA. My wife had sporatic OPCA, therefore it was MSA. If your husband had an autopsy and they determined that it was indeed sporatic OPCA, there is no need for genetic testing. Take care, Bill Werre ------------------ The on's wrote: > Dear Jerry, > > I noticed you included OPCA as being hereditary. My husband was diagnosed > with OPCA conclusively by Dr. Sid Gilman. He said, however, that is was not > hereditary. Just wondering where you got your information. We were told > genetic testing was not recommended. I'm wondering because I have 2 > children. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Bill, Thanks for the clarification to the ons. Just a note of further clarification though, it is my understanding from what we've learned on this list that sporadic OPCA does not necessarily progress to MSA even though we often speak of MSA of the OPCA variety. Sporadic OPCA (which has not progressed to MSA of the OPCA variety) has a much different life expectancy (which is typically I believe around 20 years post diagnosis) and a slower rate of progression of symptoms than MSA of any variety. Do you agree? Regards, jerry Cash Re: Digest Number 1535 on's, Note OPCA can be hereditary, BUT the sporatic version (no previous family members had it) is considered MSA. My wife had sporatic OPCA, therefore it was MSA. If your husband had an autopsy and they determined that it was indeed sporatic OPCA, there is no need for genetic testing. Take care, Bill Werre ------------------ The on's wrote: > Dear Jerry, > > I noticed you included OPCA as being hereditary. My husband was diagnosed > with OPCA conclusively by Dr. Sid Gilman. He said, however, that is was not > hereditary. Just wondering where you got your information. We were told > genetic testing was not recommended. I'm wondering because I have 2 > children. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.