Re: Hallo from London, England

[Guest guest]

Hello (Hallo) ,

Welcome to the list. I'm sorry to hear about your mother. My

husband Rob was diagnosed with MSA about 4 years ago, at age 51.

I'm sure Pam Bower will respond with the number of folks on the list

from the UK, since she is the list moderator and is a huge

contributor of information to all. In terms of searching, the best

thing to do is to go to the main page

(http://groups.yahoo.com/group/shydrager)and to look at the bookmarks

and the files. There is a great deal of information there and it is

organized in a way that is easy to find what you are looking for. In

the meantime, please feel free to jump in with questions and comments

at any time.

Carol & Rob

Lexington, MA (USA)

> Hallo everyone

>

> I joined the group a few weeks ago and have been reading the posts,

but

> thought it was time to introduce myself. I am currently caring for

my

> 82 year old mother who was diagnosed as having MSA in early 2000.

>

> My mum, who's called Groodles by our family (a long story!), started

> having problems with her balance in early 1997, and has gone from

being

> extremely fit and active to someone who now can only walk about 10

yards

> and then at a very slow pace. She has occasional falls which are

> complicated by her having osteoporosis. Whenever we go out she goes

to

> the car in her wheelchair and then uses her wheelchair wherever we

go.

> She makes lots of noise when she sleeps, and seems to be tired /

sleepy

> all the time - I think I might ask about sleep apnoea (UK

spelling!).

> She also has some difficulty in swallowing, and most of the time her

> speech is very difficult to understand. She has problems coughing,

and

> this is another difficulty for her because her chest is very

crackly.

> She has had pneumonia twice and has been in hospital on both

occasions.

>

> I have 2 questions for the group:

>

> 1. How many people from the UK are on the list?

>

> 2. I've tried searching the archives of the group to find other

hints

> and tips, but it's very difficult - the archive's so huge! Is there

> anywhere particular on the archive to look, or could people share

> (again?) any particular hints and tips that they've found have

helped

> with particular aspects of MSA?

>

> Thank you to everyone who's shared their experience of MSA. I've

found

> the postings really helpful.

> Best wishes

> Cannon

[Guest guest]

Hello ,

I am sorry you had a reason to join this group but I am glad to meet

you. I know that we do have people on here from the U.K. If you go to

Files and look at members you will see everyone listed by country and

state as far at the U.S.A. is concerned. There might even be a

support group in your area. That would also be a big help to you. I

am sure Pam will email and let you know. There is a lot of people on

here who can help you with any questions that you might have. A lot

of them have been there and done that already. Welcome to our group

and never be shy to ask anything. We talk about it all.

God bless,

Belinda

living in the state of Georgia

> Hallo everyone

>

> I joined the group a few weeks ago and have been reading the posts,

but

> thought it was time to introduce myself. I am currently caring for

my

> 82 year old mother who was diagnosed as having MSA in early 2000.

>

> My mum, who's called Groodles by our family (a long story!), started

> having problems with her balance in early 1997, and has gone from

being

> extremely fit and active to someone who now can only walk about 10

yards

> and then at a very slow pace. She has occasional falls which are

> complicated by her having osteoporosis. Whenever we go out she goes

to

> the car in her wheelchair and then uses her wheelchair wherever we

go.

> She makes lots of noise when she sleeps, and seems to be tired /

sleepy

> all the time - I think I might ask about sleep apnoea (UK

spelling!).

> She also has some difficulty in swallowing, and most of the time her

> speech is very difficult to understand. She has problems coughing,

and

> this is another difficulty for her because her chest is very

crackly.

> She has had pneumonia twice and has been in hospital on both

occasions.

>

> I have 2 questions for the group:

>

> 1. How many people from the UK are on the list?

>

> 2. I've tried searching the archives of the group to find other

hints

> and tips, but it's very difficult - the archive's so huge! Is there

> anywhere particular on the archive to look, or could people share

> (again?) any particular hints and tips that they've found have

helped

> with particular aspects of MSA?

>

> Thank you to everyone who's shared their experience of MSA. I've

found

> the postings really helpful.

> Best wishes

> Cannon

[Guest guest]

Hi , Glad you found us. Are you aware of the Matheson Trust for

Multiple System Atrophy in London? See

http://glaxocentre.merseyside.org/msa2.html

There are about 40 or 50 people from the UK on my database, they may or may

not be currently subscribed. If you'd like I can write to people on your

behalf and ask them to contact you if they're interested, let me know.

To find our hints and tips about handling MSA symptoms you can look at our

bookmarks on the yahoo site.

http://groups.yahoo.com/group/shydrager

You must sign in first and then you can click on " Bookmarks " . There is a

folder called Symptoms. If you have any trouble at all navigating the site

please let me know. I really like people to be able to find all the

information we keep there.

Take care,

Pam

Hallo from London, England

> Hallo everyone

>

> I joined the group a few weeks ago and have been reading the posts, but

> thought it was time to introduce myself. I am currently caring for my

> 82 year old mother who was diagnosed as having MSA in early 2000.

>

> My mum, who's called Groodles by our family (a long story!), started

> having problems with her balance in early 1997, and has gone from being

> extremely fit and active to someone who now can only walk about 10 yards

> and then at a very slow pace. She has occasional falls which are

> complicated by her having osteoporosis. Whenever we go out she goes to

> the car in her wheelchair and then uses her wheelchair wherever we go.

> She makes lots of noise when she sleeps, and seems to be tired / sleepy

> all the time - I think I might ask about sleep apnoea (UK spelling!).

> She also has some difficulty in swallowing, and most of the time her

> speech is very difficult to understand. She has problems coughing, and

> this is another difficulty for her because her chest is very crackly.

> She has had pneumonia twice and has been in hospital on both occasions.

>

> I have 2 questions for the group:

>

> 1. How many people from the UK are on the list?

>

> 2. I've tried searching the archives of the group to find other hints

> and tips, but it's very difficult - the archive's so huge! Is there

> anywhere particular on the archive to look, or could people share

> (again?) any particular hints and tips that they've found have helped

> with particular aspects of MSA?

>

> Thank you to everyone who's shared their experience of MSA. I've found

> the postings really helpful.

> Best wishes

> Cannon

>

>

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