Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Deborah, I have a question. Ralph never have had a "PET", he has had an EEG and CAT Scan. Is an EEG better, or a different type of test? Could I insist that he has a PET, or since he has been diagnosed now along with Parkinson, Shy Drager? Thanks! Shirley "I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly" OmegaMom43@..., OmegaMom44 (AOL Instant Messenger) All mail scanned for viruses by Norton Antivirus 2002. -- Everything you ever wanted to know about PET http://www.crump.ucla.edu/software/lpp/lpphome.htmlVery comprehensive info about PET imaging studies.Deborah aka Tenacity_________________________________________________________________Chat with friends online, try MSN Messenger: http://messenger.msn.comIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Deborah, I have a question. Ralph never have had a "PET", he has had an EEG and CAT Scan. Is an EEG better, or a different type of test? Could I insist that he has a PET, or since he has been diagnosed now along with Parkinson, Shy Drager? Thanks! Shirley "I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly" OmegaMom43@..., OmegaMom44 (AOL Instant Messenger) All mail scanned for viruses by Norton Antivirus 2002. -- Everything you ever wanted to know about PET http://www.crump.ucla.edu/software/lpp/lpphome.htmlVery comprehensive info about PET imaging studies.Deborah aka Tenacity_________________________________________________________________Chat with friends online, try MSN Messenger: http://messenger.msn.comIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Shirley, Not being a doctor, I don't have an answer for all of your questions. I had an EEG which was normal. I have had 12 CT scans and 10 MRI's since November because of all my problems. I requested a PET last March but due to limited availability here in the US at that time, insurance denied my request. This go round, my internists requested a PET imaging study to differentiate between my having MSA and PD or something else. My test is scheduled for June 12. I am very excited about this. So, I guess if you want to you could insist that one be done. I asked my doc for one and it took 2 - 3 times before the yes answer came. The main question that was asked each time was, if you find out that this is PD or PD+ how do you expect it to change your current treatment. At first my answer was simply I don't know... I just want to know for sure what is going on in my brain and this seems to be the most definitive answer. That was not good enough. The answer that got the " yes " was the use of different medications and different surgical/non-surgical options that might be available for me based on the results. Also, the fact that my current medication regime might be causing more harm than good. I don't know if my answers were correct but I have been scheduled for the FDG-PET on June 12. I'll keep you informed about what it shows. In the meantime, I'm just reading all I can to educate myself as much as possible. The links I provided were the " most informative " that I have run across so far. So, in a nutshell, I guess I am saying that I am still in the learning stages about this. Maybe someone else on the list would have better information about it than me. Sorry. When in Washington DC for the PAN advocacy forum, a neurologist from England talked about PET imaging and the importance of being able to have one to show the difference between PD and PD+ syndromes. I just don't want to leave any stone unturned. I am going down kicking and screaming. I'm still hoping for a miracle. My perfect delusion is that they find a vitamin deficiency, give me a over-the-counter vitamin and viola... I'm well. Until this happens, I'll keep kicking the rocks and see what I and my doc's can come up with. Hugs, Deborah aka Tenacity Deborah, I have a question. Ralph never have had a " PET " , he has had an EEG and CAT Scan. Is an EEG better, or a different type of test? Could I insist that he has a PET, or since he has been diagnosed now along with Parkinson, Shy Drager? Thanks! Shirley -- Everything you ever wanted to know about PET http://www.crump.ucla.edu/software/lpp/lpphome.html Very comprehensive info about PET imaging studies. Deborah aka Tenacity _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Shirley, Not being a doctor, I don't have an answer for all of your questions. I had an EEG which was normal. I have had 12 CT scans and 10 MRI's since November because of all my problems. I requested a PET last March but due to limited availability here in the US at that time, insurance denied my request. This go round, my internists requested a PET imaging study to differentiate between my having MSA and PD or something else. My test is scheduled for June 12. I am very excited about this. So, I guess if you want to you could insist that one be done. I asked my doc for one and it took 2 - 3 times before the yes answer came. The main question that was asked each time was, if you find out that this is PD or PD+ how do you expect it to change your current treatment. At first my answer was simply I don't know... I just want to know for sure what is going on in my brain and this seems to be the most definitive answer. That was not good enough. The answer that got the " yes " was the use of different medications and different surgical/non-surgical options that might be available for me based on the results. Also, the fact that my current medication regime might be causing more harm than good. I don't know if my answers were correct but I have been scheduled for the FDG-PET on June 12. I'll keep you informed about what it shows. In the meantime, I'm just reading all I can to educate myself as much as possible. The links I provided were the " most informative " that I have run across so far. So, in a nutshell, I guess I am saying that I am still in the learning stages about this. Maybe someone else on the list would have better information about it than me. Sorry. When in Washington DC for the PAN advocacy forum, a neurologist from England talked about PET imaging and the importance of being able to have one to show the difference between PD and PD+ syndromes. I just don't want to leave any stone unturned. I am going down kicking and screaming. I'm still hoping for a miracle. My perfect delusion is that they find a vitamin deficiency, give me a over-the-counter vitamin and viola... I'm well. Until this happens, I'll keep kicking the rocks and see what I and my doc's can come up with. Hugs, Deborah aka Tenacity Deborah, I have a question. Ralph never have had a " PET " , he has had an EEG and CAT Scan. Is an EEG better, or a different type of test? Could I insist that he has a PET, or since he has been diagnosed now along with Parkinson, Shy Drager? Thanks! Shirley -- Everything you ever wanted to know about PET http://www.crump.ucla.edu/software/lpp/lpphome.html Very comprehensive info about PET imaging studies. Deborah aka Tenacity _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Shirley, Not being a doctor, I don't have an answer for all of your questions. I had an EEG which was normal. I have had 12 CT scans and 10 MRI's since November because of all my problems. I requested a PET last March but due to limited availability here in the US at that time, insurance denied my request. This go round, my internists requested a PET imaging study to differentiate between my having MSA and PD or something else. My test is scheduled for June 12. I am very excited about this. So, I guess if you want to you could insist that one be done. I asked my doc for one and it took 2 - 3 times before the yes answer came. The main question that was asked each time was, if you find out that this is PD or PD+ how do you expect it to change your current treatment. At first my answer was simply I don't know... I just want to know for sure what is going on in my brain and this seems to be the most definitive answer. That was not good enough. The answer that got the " yes " was the use of different medications and different surgical/non-surgical options that might be available for me based on the results. Also, the fact that my current medication regime might be causing more harm than good. I don't know if my answers were correct but I have been scheduled for the FDG-PET on June 12. I'll keep you informed about what it shows. In the meantime, I'm just reading all I can to educate myself as much as possible. The links I provided were the " most informative " that I have run across so far. So, in a nutshell, I guess I am saying that I am still in the learning stages about this. Maybe someone else on the list would have better information about it than me. Sorry. When in Washington DC for the PAN advocacy forum, a neurologist from England talked about PET imaging and the importance of being able to have one to show the difference between PD and PD+ syndromes. I just don't want to leave any stone unturned. I am going down kicking and screaming. I'm still hoping for a miracle. My perfect delusion is that they find a vitamin deficiency, give me a over-the-counter vitamin and viola... I'm well. Until this happens, I'll keep kicking the rocks and see what I and my doc's can come up with. Hugs, Deborah aka Tenacity Deborah, I have a question. Ralph never have had a " PET " , he has had an EEG and CAT Scan. Is an EEG better, or a different type of test? Could I insist that he has a PET, or since he has been diagnosed now along with Parkinson, Shy Drager? Thanks! Shirley -- Everything you ever wanted to know about PET http://www.crump.ucla.edu/software/lpp/lpphome.html Very comprehensive info about PET imaging studies. Deborah aka Tenacity _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Debbie, YOU GO GIRL!!!!!!!!!! Let us know what you find out! God bless with lots of love and gentle hugs, Belinda > Shirley, > > Not being a doctor, I don't have an answer for all of your questions. I > had an EEG which was normal. I have had 12 CT scans and 10 MRI's since > November because of all my problems. I requested a PET last March but due > to limited availability here in the US at that time, insurance denied my > request. > > This go round, my internists requested a PET imaging study to > differentiate between my having MSA and PD or something else. My test is > scheduled for June 12. I am very excited about this. So, I guess if you > want to you could insist that one be done. I asked my doc for one and it > took 2 - 3 times before the yes answer came. > > The main question that was asked each time was, if you find out that this > is PD or PD+ how do you expect it to change your current treatment. At > first my answer was simply I don't know... I just want to know for sure what > is going on in my brain and this seems to be the most definitive answer. > That was not good enough. The answer that got the " yes " was the use of > different medications and different surgical/non-surgical options that might > be available for me based on the results. Also, the fact that my current > medication regime might be causing more harm than good. > > I don't know if my answers were correct but I have been scheduled for the > FDG-PET on June 12. I'll keep you informed about what it shows. In the > meantime, I'm just reading all I can to educate myself as much as possible. > The links I provided were the " most informative " that I have run across so > far. > > So, in a nutshell, I guess I am saying that I am still in the learning > stages about this. Maybe someone else on the list would have better > information about it than me. Sorry. > > When in Washington DC for the PAN advocacy forum, a neurologist from > England talked about PET imaging and the importance of being able to have > one to show the difference between PD and PD+ syndromes. > > I just don't want to leave any stone unturned. I am going down kicking > and screaming. I'm still hoping for a miracle. My perfect delusion is that > they find a vitamin deficiency, give me a over-the-counter vitamin and > viola... I'm well. Until this happens, I'll keep kicking the rocks and see > what I and my doc's can come up with. > > Hugs, > Deborah aka Tenacity > > > > Deborah, > > I have a question. Ralph never have had a " PET " , he has had an EEG and CAT > Scan. Is an EEG better, or a different type of test? Could I insist that > he has a PET, or since he has been diagnosed now along with Parkinson, Shy > Drager? Thanks! Shirley > > > > > -- Everything you ever wanted to know about PET > > http://www.crump.ucla.edu/software/lpp/lpphome.html > > Very comprehensive info about PET imaging studies. > > Deborah aka Tenacity > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe@y... > > > > > Quote Link to comment Share on other sites More sharing options...
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