Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 My husband has vision problems that they say are related to MSA. He has double vision caused by muscle imbalance in his eyes. He has verticle double vision when looking at a distance and horizontal when reading. He has tried prisms in his glasses but they don't seem to work very well. He was already in a wheelchair when this began, I can only imagine what a problem this would be were he still able to walk. Jan (caregiver to Jerry) > Hi Folks, > > When I am walking along a street and trying to look > straight ahead, anything I am focusing on such as a > sign 50 yards ahead, bounces an inch or so in my > vision as my feet hit the pavement. This has become so > disconcerting, I tend to look at the ground in front > of my feet while I am walking instead. I also note > that my upper body seems to move side to side a few > inches as I am walking (to the side which is taking > the next step) , wheras in years gone by I had a quite > normal, stady, upright style of walking. > > Does anyone else have any similar problems and are > they related to any particular facet of the MSA family > of illnesses ? > > Regards Sowter (Melbourne, Australia) > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Greetings Jan and Jerry! You noted of Jan: > He has verticle double vision when looking at a > distance and horizontal when reading. COOL! Err. Well, sorry Jerry has this problem. But I finally found someone else with a similar double vision problem. All the doctors tell me what I see is impossible to occur. Come and live in my head, I tell them. The way I describe it is that I see a ghost of EVERYTHING above and below (but not left and right). Sounds odd. It is. Messes up my vision in a big way. Thanks for sharing J&J !! Regards, =jbf= B. Fisher (also another J&J pair !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Greetings Jan and Jerry! You noted of Jan: > He has verticle double vision when looking at a > distance and horizontal when reading. COOL! Err. Well, sorry Jerry has this problem. But I finally found someone else with a similar double vision problem. All the doctors tell me what I see is impossible to occur. Come and live in my head, I tell them. The way I describe it is that I see a ghost of EVERYTHING above and below (but not left and right). Sounds odd. It is. Messes up my vision in a big way. Thanks for sharing J&J !! Regards, =jbf= B. Fisher (also another J&J pair !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Greetings back to you - When I mentioned your Ghosts to Jerry he agreed that you both are experiencing the same phenomenon. An exorcism may be in order. However, I imagine the ghosts would simply return. Do your ghosts take off when you read? Jerry's ghosts seem to like printed material as well. They have not figured out a way to ruin a good book on tape. Glad we could give some credence to your problem. J & J in Sunny AZ (AZ has several ghost towns do you think that's the problem? > Greetings Jan and Jerry! > > You noted of Jan: > > > He has verticle double vision when looking at a > > distance and horizontal when reading. > > COOL! Err. Well, sorry Jerry has this problem. > > But I finally found someone else with a similar double vision problem. > All the doctors tell me what I see is impossible to occur. Come and > live in my head, I tell them. > > The way I describe it is that I see a ghost of EVERYTHING above and > below (but not left and right). Sounds odd. It is. Messes up my > vision in a big way. > > Thanks for sharing J&J !! > > > Regards, > =jbf= > > B. Fisher > (also another J&J pair !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Greetings back to you - When I mentioned your Ghosts to Jerry he agreed that you both are experiencing the same phenomenon. An exorcism may be in order. However, I imagine the ghosts would simply return. Do your ghosts take off when you read? Jerry's ghosts seem to like printed material as well. They have not figured out a way to ruin a good book on tape. Glad we could give some credence to your problem. J & J in Sunny AZ (AZ has several ghost towns do you think that's the problem? > Greetings Jan and Jerry! > > You noted of Jan: > > > He has verticle double vision when looking at a > > distance and horizontal when reading. > > COOL! Err. Well, sorry Jerry has this problem. > > But I finally found someone else with a similar double vision problem. > All the doctors tell me what I see is impossible to occur. Come and > live in my head, I tell them. > > The way I describe it is that I see a ghost of EVERYTHING above and > below (but not left and right). Sounds odd. It is. Messes up my > vision in a big way. > > Thanks for sharing J&J !! > > > Regards, > =jbf= > > B. Fisher > (also another J&J pair !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 J, J & J, Rob's vision is haunted too, but only sometimes. He has described " paragraphs overlaping " when he reads, which sounds like your " ghosts " . Now that he has glasses that correct for one eye being nearsighted and one being farsighted, that doesn't happen very often -- only sometimes when he's tired. Lousy disease! Carol & Rob Lexington, MA > > Greetings Jan and Jerry! > > > > You noted of Jan: > > > > > He has verticle double vision when looking at a > > > distance and horizontal when reading. > > > > COOL! Err. Well, sorry Jerry has this problem. > > > > But I finally found someone else with a similar double vision > problem. > > All the doctors tell me what I see is impossible to occur. Come and > > live in my head, I tell them. > > > > The way I describe it is that I see a ghost of EVERYTHING above and > > below (but not left and right). Sounds odd. It is. Messes up my > > vision in a big way. > > > > Thanks for sharing J&J !! > > > > > > Regards, > > =jbf= > > > > B. Fisher > > (also another J&J pair !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 J, J & J, Rob's vision is haunted too, but only sometimes. He has described " paragraphs overlaping " when he reads, which sounds like your " ghosts " . Now that he has glasses that correct for one eye being nearsighted and one being farsighted, that doesn't happen very often -- only sometimes when he's tired. Lousy disease! Carol & Rob Lexington, MA > > Greetings Jan and Jerry! > > > > You noted of Jan: > > > > > He has verticle double vision when looking at a > > > distance and horizontal when reading. > > > > COOL! Err. Well, sorry Jerry has this problem. > > > > But I finally found someone else with a similar double vision > problem. > > All the doctors tell me what I see is impossible to occur. Come and > > live in my head, I tell them. > > > > The way I describe it is that I see a ghost of EVERYTHING above and > > below (but not left and right). Sounds odd. It is. Messes up my > > vision in a big way. > > > > Thanks for sharing J&J !! > > > > > > Regards, > > =jbf= > > > > B. Fisher > > (also another J&J pair !!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Vsually I have different dillemas on different days and often a whole assortment' 1. I see vague shadow spots (look like stains), in the beginning I would spend hours trying to remove these imaginary stains from the rug or floor - until someone stops me - mostly indoor artificial light 2. Often perceive shadows as solid, gives me one heck of a startle, happens day or night 3. while walking only the centre of vision is in focus 4. I use reading glasses when I am tired (stronger to weaker depends on the day), some days it all jumbles and then I cannot read 5. if I have time and peace to concentrate I can read almost anything without glasses as long as it is one small read (pricetag, address on an envelope) 6. I get severely motion sick while watching things that move, or if I'm turning around or rocking 7. I incorectly interpret what I am seeing (have learned to doublecheck everything, especially if about to step of a curb) - standout moment was falling off the curb into the side of a moving bus 8. some days all colour is drained out of what I see, and everything is dimmer 9. blue and green are the easiest and most pleasant colous, yellow and red are very dull, I paint very differently than I used to 10. depth perception is pretty much gone, I navigate by grid patters at home and in my very familiar neighbourhood, so as not to look like a fool, I check curbs with my foot, step lightly, reach gingerly before grabbing, and till I have dropped knives on my foot thinking it was being put on the counter - the checkboards all over the house (tiles and such) really have helped, at my sister's I sit like a potted plant because the decor is neutral and there are no sharp lines to guide me Most days I pass the drunk test fairly well, other days I have to stay home, using a wheelchair is not a possibility. At Thursday 5/23/02 03:07 AM, you wrote: Hi Folks, When I am walking along a street and trying to look straight ahead, anything I am focusing on such as a sign 50 yards ahead, bounces an inch or so in my vision as my feet hit the pavement. This has become so disconcerting, I tend to look at the ground in front of my feet while I am walking instead. I also note that my upper body seems to move side to side a few inches as I am walking (to the side which is taking the next step) , wheras in years gone by I had a quite normal, stady, upright style of walking. Does anyone else have any similar problems and are they related to any particular facet of the MSA family of illnesses ? Regards Sowter (Melbourne, Australia) > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.