Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Dr. Shults has answered some of your questions below. Regards, Pam Re: MSA study > 21 May 2002 > > Dear Ms. Bower, > > My colleagues and I are gratified by your enthusiastic response. I will > try to answer each question below in caps. > > Thanks, > > Cliff > > > At 12:29 AM 5/21/2002 -0300, you wrote: > >Hi Dr. Shults, > > > >I was thrilled to receive your letter today and pass on the news to our MSA > >group. I'll do my best to help you come up with enough patients for your > >study. I've sent your questionnaire to over 1000 contacts so far and I'll > >continue to look for ways to reach more people. > > > >I'm getting alot of positive feedback. I'm also getting some questions with > >several common themes: > > > >1. Will travel be paid for people who live in Canada or elsewhere, or is > >this strictly for US residents? For instance, someone in Vancouver would be > >willing to travel to one of the centers in California. > > UNFORTUNATELY THE BUDGET (IF FUNDED) WILL BE VERY TIGHT, AND WE WILL NOT BE ABLE TO COVER TRAVEL EXPENSES. WE WISH THAT WE COULD. > > >2. Are any medications being tested in this study? > AT THIS POINT WE ARE TRYING TO UNDERSTAND BETTER THE FACTORS THAT TRIGGER MSA AND THE PROCESSES THAT CAUSE DEGENERATION OF THE BRAIN. AFTER WE HAVE SOME INSIGHTS, WE WILL BE ABLE TO RATIONALLY SELECT POSSIBLE TREATMENTS TO TRY IN CLINICAL TRIALS AND HOPE TO IN THE FUTURE. > > > >3. Many people have written whose loved ones have since passed on but they > >are hoping they might still have something useful to contribute to your > >study. Several have mentioned exposure to chemicals and pesticides. Many > >have had an autopsy confirm MSA. WE REALLY NEED THE MSA PATIENT FOR OUR STUDY, AS WE ARE DEPENDENT ON THE PATIENT TO PROVIDE THE HISTORY. MY COLLEAGUES AND I WILL TRY TO THINK OF WAYS ANY SUCH INFORMATION COULD BE USEFUL IN OTHER WAYS. > > > >Regards, > >Pam > > > > > > > Cliff Shults, MD > Professor of Neurosciences, UCSD > > Department of Neurosciences, 0662 > UCSD School of Medicine > 9500 Gilman Drive > La Jolla, California 92093-0662 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.