Re: Subject: Los Angeles Meeting With Bill Were>Vera and Verlene

[Guest guest]

Thank you so much for sharing your day with us. It almost makes me

feel like I was there with you all. I am sure it was a day that you

all will not forget. I am glad that you all are forming a support

group there. I think it will mean so much to all of you. Vera, I know

that Steve will be so happy to meet you and Fred in person. I am

sorry that he was not able to attend that day. It seems like any time

you prepare food for a group there is always so much left over when

you are always afraid there won't be enough. I think that happens to

all of us. As far as Anne is concerned we know she is so small but

really Bill the bird???? Please!!!! LOL!!! I know Anne won't let him

live that down!!! Thank you again for sharing!

God bless,

Belinda

> As Verlene said we did have our meeting with Bill Werre today. His

plane was

> early and Barb hit no traffic, so they were here to my house

about

> 12:30 , so Bill had the chance to show us his pictures. Most

everyone was

> here between 1:30pm and 2pm. There was Bill Werre , Barb ,

Verlene,

> Cindy V, Bill , Fred and I.

> Steve had called and wanted to come, but the way the metrolink ran,

he

> wouldn't be able to make it, but I did give Steve a call when Bill

Werre got

> here and Bill talked to him. We had more food then we needed, Fred

and I will

> be eating leftover's for awhile now. I think they all enjoyed my

garden. I

> think that's how most of them knew it was my house. Only house with

flower's

> everywhere. After we ate, Bill Werre showed the other's the

picture's that he

> took. Bill tolded Verlene and Cindy V that the third picture down

was a

> picture of Anne. They said this is Anne? (We know Anne is putting

on weigh,

> but not the feather.. ) Turned out the picture was a large bird

with it's

> behind sunny side up with all these feather's. Anne I wouldn't let

Bill live

> this one down...ever .Bill talked about the Boston meeting, then we

talked

> about the study and testing that is going on. Other things that we

talked

> about were med's and what did or didn't work for some on the group.

We also

> tolded story's of different things, just not talking about the MSA.

We also

> talked about a support group out here, one that would meet once a

month and

> maybe take place at a different house everytime. This way the same

people

> wouldn't have to drive along ways every month. This group today

were mainly

> caregiver's, Fred was the only one that had the MSA, but he did say

that he

> enjoyed the meeting and found out some stuff that would help him. I

think we

> all were glad to see the face that went with the name. I know I

was . I have

> to say I would love the recipe Verlene for your beans. Also Grammy

Rose,

> Steve tolded me to tell Bill hi for you , so I did so. Was really

sorry to

> see that Steve couldn't make it, but I plan to get Fred up to see

Steve soon.

>

> We left for the airport at 7pm and I had Bill to the airport by

8pm. Rigth

> now he should be starting for home. I think he will sleep most of

the way

> home , if not all the way.

> It was a really a good day. Only other thing now I'd like to say

Anne you can

> keep the weight, but lose those feather's .. )

>

> Going to get some coffee and have some cake that Barb made

> Take Care

> Vera

> ***********************

> Subject: Los Angeles Meeting With Bill Were

>

> A special thanks to Vera and Fred for sharing their home with

> us today, for the wonderful food and great company. It was so nice

> to put faces to some of the nice people we see on the web site:

Bill

> Were, Vera and Fred, Bill , Cindy, and Barbara . Thanks

> to Bill for his great skill at barbecueing and to Vera for

the

> delicious food she prepared. We decided we would meet again, date

> and time will be announced. We are hoping that more of you in the

> Los Angeles area will join us.

> Love and Gentle Hugs,

> Verlene

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