Re: MSA-age when disgnosed-1st onset of symptoms

[Guest guest]

,

You can write letters like this one anytime you want. It gave my wife ( the

care giver) and me (the Patient) a blessing.

Your description of our family is most eloquent and right on.

You wrote " > As far as the value of this support site, I have much

appreciated

> reading the posts of all of the wonderful people here at the support

> group. My sister came on here once, and then never returned. She

> probably found it depressing, as she is easily depressed at the

> thought of her condition, and it is difficult for her to sit at her

> computer now. I find this support to be good, however, and I have

> been happy to meet many wonderful people through this site. I feel

> mountains of love, and faith in the goodness of God's people, here,

> amongst all of you. You are people who know how to turn the burden

> of catastrophic and disabling conditions, into a blessing " .

I believe we have some of the most compassionate and understanding people on

earth.

God Bless You and your sister,

Judy and Jim Stark

MSA-age when disgnosed-1st onset of symptoms

> My sister started having symptoms in 1999, at the age of 51. When

> she was 52, she was diagnosed with Orthostatic Hypotension, and was

> told to increase the amount of salt in her diet. At the age of 53,

> she had to stop working, because she was fainting so much, and she

> had also developed cardiac arythmia. During the same year, she was

> diagnosed with MSA by Dr. Low, at the Mayo Clinic, after 3 days of

> tests.

>

> My sister is now 54, and Dr. Low has ordered her into her local

> hospice program. She has little will left to fight her symptoms,

> which include (among other things) pain, inability to walk more than

> a few feet at a time, frequent infections, difficulty speaking and

> swallowing, alternating diarrhea or constipation. I think that the

> pain is the hardest part for her right now, although I don't read

> much mention of pain as a symptom of the MSA patients here on the

> support site, so I am not sure why she is feeling it. The doctors

> mention the possibility of " neuropathy, " in regards to the pain.

>

> My sister lives in a remote area of New Mexico, and it is difficult

> or impossible for her to travel, due to her inability to remain

> upright for any substantial amount of time. She has an appointment

> with Dr. Low in June, but heaven knows if she will be able to travel

> at that time, because she is already so weak. We have learned that

> even after being at her worst, she may be able to rebound somewhat,

> at least for awhile.

>

> At this time, we are praying for comfort and peace, for my sister,

> and if this means that she will not be with us much longer, then so

> be it. We don't want her to continue to live with the pain as she

> feels it now. She does not want to burden any of us, as she is less

> and less able to care for herself.

>

> As far as the value of this support site, I have much appreciated

> reading the posts of all of the wonderful people here at the support

> group. My sister came on here once, and then never returned. She

> probably found it depressing, as she is easily depressed at the

> thought of her condition, and it is difficult for her to sit at her

> computer now. I find this support to be good, however, and I have

> been happy to meet many wonderful people through this site. I feel

> mountains of love, and faith in the goodness of God's people, here,

> amongst all of you. You are people who know how to turn the burden

> of catastrophic and disabling conditions, into a blessing.

>

> As J. Fox says of his own experience with PD, he finally

> knows what a blessing his life is - how fortunate he has been, that

> through his diagnosis, he has become more grounded and he appreciates

> all that he has in his life, that many people never have in their

> entire lifetimes. He has many good fortunes, including having had

> the time to sort through all of his feelings - and he has had his ups

> and downs through it all.

>

> For whatever reasons, some of us have conditions that we cannot

> control, and some of us need more help just to be able to do normal

> daily functions. The more independent our personalities are, the

> more difficult it can be for us to rely on others to care for us.

> It's not always easy for the needy one to accept dependence on others.

>

> The physically needy may not understand what gifts they are to the

> more able-bodied. Caregiving is God's work, and the caregiver has a

> place with God's angels, for the remainder of eternity. Just being

> able to lighten someone else's burden, is a gift. I can see that

> many of you, here in this group, realize how blessed you are, by your

> experiences, and by your ability to see good when others are still in

> the dark.

>

> As for the cause of my sister's condition - everything started

> happening to her, after the fires at the Los Alamos nuclear reactor

> plant. When the fires were burning, she, and everyone else in her

> area, breathed in the ash from the fires, as it was in the air,

> everywhere. There was no way to escape it. No one is saying for

> sure, but it is speculated that environmental factors may be a

> contributing factor in the development of MSA.

>

> Oh boy... I just wanted to answer a few simple questions, and here I

> am, rambling on...... Sorry for the epistle. For me, writing is

> good therapy. I hope that this helps in determining ages of onset of

> symptoms, and diagnosis of MSA patients. Peace to everyone

> here....... - (pistachio53)

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

> ,

>

> You can write letters like this one anytime you want. It gave my

wife ( the

> care giver) and me (the Patient) a blessing.

>

> Your description of our family is most eloquent and right on.

>

> You wrote " > As far as the value of this support site, I have much

> appreciated

> > reading the posts of all of the wonderful people here at the

support

> > group. My sister came on here once, and then never returned. She

> > probably found it depressing, as she is easily depressed at the

> > thought of her condition, and it is difficult for her to sit at

her

> > computer now. I find this support to be good, however, and I have

> > been happy to meet many wonderful people through this site. I

feel

> > mountains of love, and faith in the goodness of God's people,

here,

> > amongst all of you. You are people who know how to turn the

burden

> > of catastrophic and disabling conditions, into a blessing " .

>

> I believe we have some of the most compassionate and understanding

people on

> earth.

>

> God Bless You and your sister,

> Judy and Jim Stark

>

>

>

> MSA-age when disgnosed-1st onset of symptoms

>

>

> > My sister started having symptoms in 1999, at the age of 51. When

> > she was 52, she was diagnosed with Orthostatic Hypotension, and

was

> > told to increase the amount of salt in her diet. At the age of

53,

> > she had to stop working, because she was fainting so much, and she

> > had also developed cardiac arythmia. During the same year, she

was

> > diagnosed with MSA by Dr. Low, at the Mayo Clinic, after 3 days of

> > tests.

> >

> > My sister is now 54, and Dr. Low has ordered her into her local

> > hospice program. She has little will left to fight her symptoms,

> > which include (among other things) pain, inability to walk more

than

> > a few feet at a time, frequent infections, difficulty speaking and

> > swallowing, alternating diarrhea or constipation. I think that

the

> > pain is the hardest part for her right now, although I don't read

> > much mention of pain as a symptom of the MSA patients here on the

> > support site, so I am not sure why she is feeling it. The doctors

> > mention the possibility of " neuropathy, " in regards to the pain.

> >

> > My sister lives in a remote area of New Mexico, and it is

difficult

> > or impossible for her to travel, due to her inability to remain

> > upright for any substantial amount of time. She has an

appointment

> > with Dr. Low in June, but heaven knows if she will be able to

travel

> > at that time, because she is already so weak. We have learned

that

> > even after being at her worst, she may be able to rebound

somewhat,

> > at least for awhile.

> >

> > At this time, we are praying for comfort and peace, for my sister,

> > and if this means that she will not be with us much longer, then

so

> > be it. We don't want her to continue to live with the pain as she

> > feels it now. She does not want to burden any of us, as she is

less

> > and less able to care for herself.

> >

> > As far as the value of this support site, I have much appreciated

> > reading the posts of all of the wonderful people here at the

support

> > group. My sister came on here once, and then never returned. She

> > probably found it depressing, as she is easily depressed at the

> > thought of her condition, and it is difficult for her to sit at

her

> > computer now. I find this support to be good, however, and I have

> > been happy to meet many wonderful people through this site. I

feel

> > mountains of love, and faith in the goodness of God's people,

here,

> > amongst all of you. You are people who know how to turn the

burden

> > of catastrophic and disabling conditions, into a blessing.

> >

> > As J. Fox says of his own experience with PD, he finally

> > knows what a blessing his life is - how fortunate he has been,

that

> > through his diagnosis, he has become more grounded and he

appreciates

> > all that he has in his life, that many people never have in their

> > entire lifetimes. He has many good fortunes, including having had

> > the time to sort through all of his feelings - and he has had his

ups

> > and downs through it all.

> >

> > For whatever reasons, some of us have conditions that we cannot

> > control, and some of us need more help just to be able to do

normal

> > daily functions. The more independent our personalities are, the

> > more difficult it can be for us to rely on others to care for us.

> > It's not always easy for the needy one to accept dependence on

others.

> >

> > The physically needy may not understand what gifts they are to the

> > more able-bodied. Caregiving is God's work, and the caregiver

has a

> > place with God's angels, for the remainder of eternity. Just

being

> > able to lighten someone else's burden, is a gift. I can see that

> > many of you, here in this group, realize how blessed you are, by

your

> > experiences, and by your ability to see good when others are

still in

> > the dark.

> >

> > As for the cause of my sister's condition - everything started

> > happening to her, after the fires at the Los Alamos nuclear

reactor

> > plant. When the fires were burning, she, and everyone else in her

> > area, breathed in the ash from the fires, as it was in the air,

> > everywhere. There was no way to escape it. No one is saying for

> > sure, but it is speculated that environmental factors may be a

> > contributing factor in the development of MSA.

> >

> > Oh boy... I just wanted to answer a few simple questions, and

here I

> > am, rambling on...... Sorry for the epistle. For me, writing is

> > good therapy. I hope that this helps in determining ages of

onset of

> > symptoms, and diagnosis of MSA patients. Peace to everyone

> > here....... - (pistachio53)

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >

[Guest guest]

Thank you, Jim, for being so understanding. - (pistachio53)

> ,

>

> You can write letters like this one anytime you want. It gave my

wife ( the

> care giver) and me (the Patient) a blessing.

>

> Your description of our family is most eloquent and right on.

>

> You wrote " > As far as the value of this support site, I have much

> appreciated

> > reading the posts of all of the wonderful people here at the

support

> > group. My sister came on here once, and then never returned. She

> > probably found it depressing, as she is easily depressed at the

> > thought of her condition, and it is difficult for her to sit at

her

> > computer now. I find this support to be good, however, and I have

> > been happy to meet many wonderful people through this site. I

feel

> > mountains of love, and faith in the goodness of God's people,

here,

> > amongst all of you. You are people who know how to turn the

burden

> > of catastrophic and disabling conditions, into a blessing " .

>

> I believe we have some of the most compassionate and understanding

people on

> earth.

>

> God Bless You and your sister,

> Judy and Jim Stark

>

>

>

> MSA-age when disgnosed-1st onset of symptoms

>

>

> > My sister started having symptoms in 1999, at the age of 51. When

> > she was 52, she was diagnosed with Orthostatic Hypotension, and

was

> > told to increase the amount of salt in her diet. At the age of

53,

> > she had to stop working, because she was fainting so much, and she

> > had also developed cardiac arythmia. During the same year, she

was

> > diagnosed with MSA by Dr. Low, at the Mayo Clinic, after 3 days of

> > tests.

> >

> > My sister is now 54, and Dr. Low has ordered her into her local

> > hospice program. She has little will left to fight her symptoms,

> > which include (among other things) pain, inability to walk more

than

> > a few feet at a time, frequent infections, difficulty speaking and

> > swallowing, alternating diarrhea or constipation. I think that

the

> > pain is the hardest part for her right now, although I don't read

> > much mention of pain as a symptom of the MSA patients here on the

> > support site, so I am not sure why she is feeling it. The doctors

> > mention the possibility of " neuropathy, " in regards to the pain.

> >

> > My sister lives in a remote area of New Mexico, and it is

difficult

> > or impossible for her to travel, due to her inability to remain

> > upright for any substantial amount of time. She has an

appointment

> > with Dr. Low in June, but heaven knows if she will be able to

travel

> > at that time, because she is already so weak. We have learned

that

> > even after being at her worst, she may be able to rebound

somewhat,

> > at least for awhile.

> >

> > At this time, we are praying for comfort and peace, for my sister,

> > and if this means that she will not be with us much longer, then

so

> > be it. We don't want her to continue to live with the pain as she

> > feels it now. She does not want to burden any of us, as she is

less

> > and less able to care for herself.

> >

> > As far as the value of this support site, I have much appreciated

> > reading the posts of all of the wonderful people here at the

support

> > group. My sister came on here once, and then never returned. She

> > probably found it depressing, as she is easily depressed at the

> > thought of her condition, and it is difficult for her to sit at

her

> > computer now. I find this support to be good, however, and I have

> > been happy to meet many wonderful people through this site. I

feel

> > mountains of love, and faith in the goodness of God's people,

here,

> > amongst all of you. You are people who know how to turn the

burden

> > of catastrophic and disabling conditions, into a blessing.

> >

> > As J. Fox says of his own experience with PD, he finally

> > knows what a blessing his life is - how fortunate he has been,

that

> > through his diagnosis, he has become more grounded and he

appreciates

> > all that he has in his life, that many people never have in their

> > entire lifetimes. He has many good fortunes, including having had

> > the time to sort through all of his feelings - and he has had his

ups

> > and downs through it all.

> >

> > For whatever reasons, some of us have conditions that we cannot

> > control, and some of us need more help just to be able to do

normal

> > daily functions. The more independent our personalities are, the

> > more difficult it can be for us to rely on others to care for us.

> > It's not always easy for the needy one to accept dependence on

others.

> >

> > The physically needy may not understand what gifts they are to the

> > more able-bodied. Caregiving is God's work, and the caregiver

has a

> > place with God's angels, for the remainder of eternity. Just

being

> > able to lighten someone else's burden, is a gift. I can see that

> > many of you, here in this group, realize how blessed you are, by

your

> > experiences, and by your ability to see good when others are

still in

> > the dark.

> >

> > As for the cause of my sister's condition - everything started

> > happening to her, after the fires at the Los Alamos nuclear

reactor

> > plant. When the fires were burning, she, and everyone else in her

> > area, breathed in the ash from the fires, as it was in the air,

> > everywhere. There was no way to escape it. No one is saying for

> > sure, but it is speculated that environmental factors may be a

> > contributing factor in the development of MSA.

> >

> > Oh boy... I just wanted to answer a few simple questions, and

here I

> > am, rambling on...... Sorry for the epistle. For me, writing is

> > good therapy. I hope that this helps in determining ages of

onset of

> > symptoms, and diagnosis of MSA patients. Peace to everyone

> > here....... - (pistachio53)

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >