Re: Re: Resources in Florida - Janice Harrell

[Guest guest]

THANK YOU VERY MUCH FOR THE INFORMATION,I WILL CALL

THEM TOMORROW.THE THINGS IS IS THAT THEY DON,T THINK

THAT I HAVE MSA NOW ,DR.CHESIRE IS JUST SAYING THAT IT

IS A CEREBULLAR DEGENERATION,SO I DON,T EVEN KNOW IF I

SHOULD GO BACK TO A NEROGIST,I AM JUST WONDERING WHY

AM I GOING BLIND,AND THEY KEEP TELLING ME THAT IS IT

DUE TO MY NEROGISTS PROBLEM.IF IT IS NOTHING WHY CAN,T

THEY JUST FIX MY EYES,AND LET ME GET MY LICENSICE

BACK,AND GO BACK TO WORK,THAT IS ALL I WANT,I HATE

GOING BACK AND FOURTH TO THESE DR.AND I HATE BOTHERING

THEM.I SORRY FOR SOUNDING LIKE I DO,I AM JUST TIRED OF

EVERYTHING.I JUST WONDER IF IT IS JUST ALL IN MY

HEAD.AND I KEEP TELLING MYSELF THAT THERE IS NOTHING

WRONG,AND I WANT TO JUST STOP THE MEDICINE AND SEE IF

I START FEELING BETTER.IF I DO,I QUITE TAKING SOME

LIKE MY ANTIDEPRESSANTS BECAUSE ONE OF MY DR.TOLD ME

THAT I WAS TAKING TO MUCH,AND DR.CHESIRE SAID THAT I

CAN STOP THE SINMET SO I AM HOPING THAT THIS IS GOING

TO HELP ME A LOT,I HOPE.AGAIN THANK YA ALL

--- Pam Bower pbower@...> wrote:

> Hi Janice,

>

> I just found this new information... there are 5 new

> Parkinsons Care Centers

> in Florida, including one in ville. Call

> them and ask how they can

> help you. Tell them you were diagnosed with

> Multiple System Atrophy - a

> Parkinson Plus disorder.

>

> NPF ville Satellite Office

> Department of Neurology

> UF University Medical Center

> 655 W 8th Street, 4th floor

> ville, FL 32209

>

>

> http://www.parkinson.org/npfcc.htm

>

>

> With a grant from the state, the National Parkinson

> Foundation has

> established National Parkinson Foundation Care

> Center of Florida, Inc.

> (NPFCC), to open five specialized Parkinson's

> Centers in Tallahassee,

> ville, Orlando, Palm Beach and Fort

> Lauderdale. The five centers,

> which opened in February, provide diagnostic

> services, specialized treatment

> and counseling that will have a positive effect on

> the quality of life of

> persons with Parkinson's disease.

> Present at each Center will be a full time

> nurse-patient coordinator to

> educate Parkinson's patients, caregivers, family

> members and the community;

> counsel patients and caregivers on how to better

> cope with Parkinson's

> disease; implement special programs; and coordinate

> with Parkinson's support

> groups. A neurologist with specialized training in

> Parkinson's disease will

> be available at each Center 32 hours per month to

> provide diagnostic

> services and medical care. In addition, each Center

> will feature a resource

> library containing educational brochures, books,

> videos, and magazines about

> care and treatment of persons with Parkinson's

> disease. Respite care to

> assist Parkinson's caregivers will be available at

> the Palm Beach Center.

>

> Creation of the five Parkinson's Centers will reduce

> the need for emergency

> room visits due to over-medication as well as

> state-assisted nursing home

> and long4erm care for patients, in turn reducing the

> economic burden on the

> state of Florida for Medicaid-funded care.

> Recognizing this, NPF submitted a

> grant to the Florida Legislature to establish the

> additional patient

> centers. The grant was sponsored by Representatives

> Villalobos and

> Elaine Bloom. Respective Appropriation Chairs,

> Senator Doc Meyers and

> Representative Debby on, approved the

> funding.

>

> NPFCC is a program for the treatment, education, and

> cure of Florida's

> growing Parkinson's disease patient population.

> Future projections include

> possible expansion of this program to other states.

>

>

> Five NPFCC Parkinson Center Locations in Florida

>

> NPF Tallahassee Satellite Office

> Tallahassee Memory Disorder Clinic

> 1213 Hodges Drive

> Tallahassee, FL 32308

>

>

> NPF ville Satellite Office

> Department of Neurology

> UF University Medical Center

> 655 W 8th Street, 4th floor

> ville, FL 32209

>

>

> NPF Orlando Satellite Office

> Memory Disorder Clinic

> Neuroscience Center

> Outpatient Center

> 1404 Kuhl Avenue

> Orlando, FL 32806

>

>

> NPF Palm Beach Satellite Office

> St. 's Medical Center

> 901 45th Street

> West Palm Beach, FL 33407

>

>

> NPF Fort Lauderdale Satellite Office

> North Ridge Medical Center

> Neuroscience Center

> 5757 North Dixie Hwy.

> Ft. Lauderdale, FL 33334

>

>

>

>

>

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