Re: EMG done

[Guest guest]

hello,it sound like that you are dealing with a lot that i have.my dr. has been telling me for two years that i had msa,and then she comes up about two months ago and said that she don,t think that i have it,because she said if i did then i would be dead by now..so i finally got to go in and see dr.chesire at the mayo clinic(thank god my daughter was able to put me on her ins.) and he has done a lot of blood work,plus i had plus monday i am due to have a emg,plus a autonomic reflex test,i guess that is what it is or he also has here somatosensory evoked pote,i have never had any of this done.they did a mri brain complete also i had a complete pulmonary functions test done .will all of these test detemine what i have,this is the first time that i have every had anything like this done.if anyone can help me on this please let me know..also has any one heard of dr.chesire

belnorest wrote: I want to thank you for asking about my EMG. I went yesterday and I guess I should have studied because I didn't do well. My muscles are bad. I also had the nerve test and it wasn't too bad but wasn't normal either. I also got back my blood test and the enzymes in my muscles is very high. The doctor said his diagnoses was that I have Parkinson's Disease and also a Mitchondrial disease. He wants me to come back in 3 weeks and have the blood test done again. If it is still high then he might do a muscle test. He said he wasn't sure if he wanted to put me through that or not. He also mentioned it could be OPCA. I asked him about MSA and he said I had a lot of the symptoms except for the rise and falling of blood pressure. I just thought about it and I have never been tested for that. Isn't there a test for that also. I don't know but my blood pressure was high again yesterday 90/110. He said there was 16 different diseases in the Mitrochondrial list. He said it has been narrowed down to 16 now. He also said the reason doctors didn't know before because it was very rare. I feel comfortable with this doctor being that he said he has had 10 patients with this problem. He has worked at 2 research hospitals including NIH. He said he will have to watch me and see how my symptoms go to definetly tell me what I have and then might not be totally right. I have to research mitrochondrial diseases now so I will know something about them. God bless you all,BelindaIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

[Guest guest]

Hi Belinda,

Sheldon had never been tested for blood pressure drop until we went

to the neurologist at UCLA. She took his blood pressure lying down.

It was very high. She had him stand up and then took his blood

pressure again and there was a drop of 100 points. She had us take

his blood pressure before he got up in the morning and then stand up

and take it again and keep a record. There was always a big drop.

This is why he had been getting dizzy for several years and we never

knew why.

It sounds like you have a good doctor. I hope they will finally be

able to tell you what is wrong with you. It is harder knowing

that something is wrong, when the doctors can't find anything.

God Bless you,

Verlene

EMG done

> I want to thank you for asking about my EMG. I went yesterday and I

> guess I should have studied because I didn't do well. My muscles are

> bad. I also had the nerve test and it wasn't too bad but wasn't

> normal either. I also got back my blood test and the enzymes in my

> muscles is very high. The doctor said his diagnoses was that I have

> Parkinson's Disease and also a Mitchondrial disease. He wants me to

> come back in 3 weeks and have the blood test done again. If it is

> still high then he might do a muscle test. He said he wasn't sure if

> he wanted to put me through that or not. He also mentioned it could

> be OPCA. I asked him about MSA and he said I had a lot of the

> symptoms except for the rise and falling of blood pressure. I just

> thought about it and I have never been tested for that. Isn't there a

> test for that also. I don't know but my blood pressure was high again

> yesterday 90/110. He said there was 16 different diseases in the

> Mitrochondrial list. He said it has been narrowed down to 16 now. He

> also said the reason doctors didn't know before because it was very

> rare. I feel comfortable with this doctor being that he said he has

> had 10 patients with this problem. He has worked at 2 research

> hospitals including NIH. He said he will have to watch me and see how

> my symptoms go to definetly tell me what I have and then might not be

> totally right. I have to research mitrochondrial diseases now so I

> will know something about them.

> God bless you all,

> Belinda

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>