Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Bill Werre recently responded to a Zoloft story I told. I shared my story and asked for people to please be careful because the use of the medication has been advocated on the board. I simply cared to to share with MSA patients that there are people (doctors and researchers included) who think that Zoloft is more dangerous than advertisers and family physicians let on. Bill in part writes: " It is never good to condemn a specific medicine with MSA. Many here take medicines (like Tasmar) which are no longer on the market, BECAUSE they help specific people. I find it hard to believe that a doctor told you that " many MSA patients " react so bad to Zoloft, as that has not been the experience here. It sounds as if your doctors have taken you off ANY SSRI not just Zoloft. That may work well for you, but not all MSA patients. " First, I never condemned a specific medicine. So, Bill should not make it sound as if I did. Second, regardless of Bill's surprise above, he is not warranted in making it sound as if I have any thoughts on MSA patients coming off of SSRIs. I am not particularly worried about those already on SSRIs. Again, I was simply relating my own anxiety and providing a reminder to those patients looking into Zoloft to be careful, that is all. Bill also writes: " All MSA patients should CAREFULLY check out possible side effects of new medicines. That is a given. Note too that SSRI's do not go well with alcohol, so be aware of that item. There are a whole list of drug interactions with SSRI's so you must tell your doctors ALL of the medicines you take as well as any natural supplements you take. In addition, you must " ramp up " on SSRI's. Charlotte took one a day for two weeks, then two a day for some time before going up to three. Any " ramp up " medicine, should also be " ramped down " when coming off of it. " If this part is addressed to others, then fine. I agree with Bill. It is hard to tell at times, though, who he is addressing himself too. Don't get me wrong, I think those are fine suggestions. Bill continues: " There are over 600 patients represented here with MSA and I can only remember about 4 or 5 who had adverse reactions to Zoloft. We have seen well over 1000 people with MSA in the three years I have been here. Do NOT stop taking Zoloft on the adverse reaction of one person, always talk to your doctor. " I sincerely hope that I am not supposed to be the 'one person' Bill indicates here. I never told anyone to stop taking Zoloft. Moreover, I never told anyone not to start taking Zoloft. Rather I wrote: " My advice is just be cautious in regards to antidepressants, and get the presciption from a doctor you really trust with your MSA. " I fail to see how that is bad advice or in call for Bill comments. I may or may not be back on this board for awhile. It irks me too much. That, I do not need. I wish you all well. Zac _______________ > > > To all those considering Zoloft, please be careful. When my bp > > was high sitting for the first time while having dysautonomia but > > still hypotensive upon standing, one of my previous doctors > > thought Zoloft would help me. Why, I asked? He said that I was > > serotonin deficient. I told him that I did not think so. I lived in > > Wales for awhile where it rains almost everyday, and I was not > > deppressed at all. . . In the end, I tried Zoloft hoping that having > > more serotonin would help speed up the blood pressure > > response mechanism. I reacted terribly to it though even starting > > out with a very small dose and trying to remain on it for two > > weeks. I curled up in the corner, could not be around people, > > wanted to cut my face off with a razor, cried for no reason, > > besides having some odd spaciness and some precursors of > > motor symptoms to come later. Terrible... The nurse told me to > > increase the medication, it should help with those feelings. > > What? I did not have depression and all of these feelings before. > > I called a pharmacologist friend of mine who told me to tapper > > back off the Zoloft and get another doctor. > > > > The neurologists I am seeing now said not to ake any > > antidepressant and if I felt I really needed one discuss it with > > them first. Interestingly, they also added that many MSA patients > > do not react well to Zoloft. > > > > My advice is just be cautious in regards to antidepressants, and > > get the presciption from a doctor you really trust with your MSA. > > Perhaps, patients with POTS, etc. considering Zoloft or another > > serotonin reputake inhibitor could have there serotonin levels > > checked to at least avoid a reaction to too much serotonin? I do > > not know about such tests though and whether they even exist. > > > > Nevertheless, I just wanted to share my anxiety about Zoloft. I > > hope those with depression do find a medication that helps. > > > > Zac > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Hey Zac, We know what you meant and your input is very much appreciated. Hugs, Pam Re: Zoloft and Bill Werre > Bill Werre recently responded to a Zoloft story I told. I shared my > story and asked for people to please be careful because the use of > the medication has been advocated on the board. I simply cared to to > share with MSA patients that there are people (doctors and > researchers included) who think that Zoloft is more dangerous than > advertisers and family physicians let on. Quote Link to comment Share on other sites More sharing options...
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