Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 My husband was diagnosed with Parkinson Disease in 98. We knew something was going on before but did not know what for awhile. My husband uses a cathe four times a day, this started over 2-3 years ago, he has trouble with drooling at times, dizziness (upon raising from sitting), he does not have the shaking as much, but the slowness, hot and cold feet, freezing, balance, speech, trouble swallowing and breathing (he started out with Atria Fibrillation and is on Coumadin, Tambocor, Sinimet, Trazodone, and Macrobid for UTI prevention. Should I be questioning the diagnoses, should he see another type of doctor? From the time this started has been very progressing. Ralph came down Monday with a rash on his feet and up his legs. Went to the doctors, he sent Ralph to the dermatologist this morning. He said he has leukocytoclastic vascular and does not what caused it, some reaction to one of the medicine's he is on? They put him on steroids for 28-days and then he needs to go back to see him. They took him off the antibiotic for UTI prevention, until is blood work comes back, thought that might be the problem. Now they called and have him on Cipro 500mg for 10 days and then 250mg as maintenance after that. Any help would be appreciated! Shirley "I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly" All mail scanned for viruses by Norton Antivirus 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Shirley, Your husband's symptoms sound a lot like my mother Joyce's (71, died 11/5/00 from complications). She as diagnosed with PD around '98, too. That was changed to MSA about 1.5 years later because of fast progression and poor drug benefit. They also knew my mom had more than PD because she showed both pyramidal and extrapyramidal signs (there is an explanation for this but all I know is that you show only the latter with PD). Has your husband seen a movement disorder specialist? Has he tried the standard PD drugs--any benefit (many with MSA do have a benefit). MSA affects people as differently as PD does. One things to watch out for with MSA is a lower than normal body temp (you should be taking your husband's temp to get a baseline). Also, rapid progression usually indicates an infection--UTI, blood, etc. This list will provide you with unparallel information and support. Good luck, Debbie Quote Link to comment Share on other sites More sharing options...
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