Re: Related diseases, symptoms . . .

[Guest guest]

Hi Mark,

I've not heard of Pallid Infantile Syncope before but I imagine it's in the

Dysautonomia (http://www.ndrf.org) family of disorders.

Multiple System Atrophy is NOT hereditary as far as the researchers can tell

us.

I'm interested in your family history though. You mentioned an aunt and a

grandmother with MSA symptoms... is this in the same side of the family? If

yes, then I'll want to discuss the Hereditary Ataxias with you as their

symptoms can mimic MSA to some extent.

Take care,

Pam

Nova Scotia, Canada

My mother-in-law had OPCA/MSA, passed in 1998.

Related diseases, symptoms . . .

> Hello.

>

> After a dozen of what seem to be fainting spells, my 19 month-old daughter

> was diagnosed with Pallid Infantile Syncope.

>

> However, I have a grandmother who died of Olivopontocerebella Atrophy and

> an Aunt that was recently diagnosed with Shy Drager, both in the Multiple

> Systems Atrophy category.

>

> I was wondering if there is any research indicating a connection between

> these diseases and Pallid Infantile Syncope.

>

> Thanks.

>

> Mark

>

>

[Guest guest]

Mark,

My heart goes out to you for your daughter. It is hard enough being 40

years old and battling this disease. I don't know if I could handle it if

it were my child instead of me. I'll look around and see if I can find any

information for you.

Sincerely,

Deborah Setzer

Reply-To: shydrager

To: shydrager

Subject: Related diseases, symptoms . . .

Date: Thu, 09 May 2002 04:18:46 -0000

Hello.

After a dozen of what seem to be fainting spells, my 19 month-old daughter

was diagnosed with Pallid Infantile Syncope.

However, I have a grandmother who died of Olivopontocerebella Atrophy and

an Aunt that was recently diagnosed with Shy Drager, both in the Multiple

Systems Atrophy category.

I was wondering if there is any research indicating a connection between

these diseases and Pallid Infantile Syncope.

Thanks.

Mark

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[Guest guest]

Yes, these are from the same side of the family. They are

mother and daughter. There is also a study going on about a

third generation. My aunt with Shy Drager has a son with

LandauKleffner Syndrome. They do think that they may all be

connected.

So naturally, we're curious if our daughter's condition is either

an early symptom or has been misdiagnosed.

It may just be Pallid Infantile Syncope, but given the family

history, we want to rule out MSA.

Thanks.

> Hi Mark,

>

> I've not heard of Pallid Infantile Syncope before but I imagine

it's in the

> Dysautonomia (http://www.ndrf.org) family of disorders.

>

> Multiple System Atrophy is NOT hereditary as far as the

researchers can tell

> us.

>

> I'm interested in your family history though. You mentioned an

aunt and a

> grandmother with MSA symptoms... is this in the same side of

the family? If

> yes, then I'll want to discuss the Hereditary Ataxias with you as

their

> symptoms can mimic MSA to some extent.

>

> Take care,

> Pam

> Nova Scotia, Canada

> My mother-in-law had OPCA/MSA, passed in 1998.

>

>

> Related diseases, symptoms . . .

>

>

> > Hello.

> >

> > After a dozen of what seem to be fainting spells, my 19

month-old daughter

> > was diagnosed with Pallid Infantile Syncope.

> >

> > However, I have a grandmother who died of

Olivopontocerebella Atrophy and

> > an Aunt that was recently diagnosed with Shy Drager, both in

the Multiple

> > Systems Atrophy category.

> >

> > I was wondering if there is any research indicating a

connection between

> > these diseases and Pallid Infantile Syncope.

> >

> > Thanks.

> >

> > Mark

> >

> >