Re: information on MSA - Shari

[Guest guest]

Hi Shari,

Do you mean she is a patient at Vanderbilt in Nashville? Mayo is in

Rochester, MN. Are you sure it's high blood pressure she has?

Usually MSA patients have low blood pressure, or " orthostatic

hypotension " .. sometimes they faint when they stand up. There are

drugs to take to help this, if she's a patient at Vanderbilt she's in

good hands. There are sometimes support group meetings in Nashville,

ask her if she's interested in being in touch with others from the

Nashville area and I can give you some names.

Take care,

Pam

> My cousinhas this. We know so very little about it. The info I

have

> gotten so far is so dry. No feeling in it. She is a patient at

Mayo

> in Nashville. She doesn't just have some of the illnesses

involved.

> She has ALL of them. She is the only patient there at that clinic

> that has had ALL of them. She is reasonibly young. Only 50. They

> told her last month that she has had it about 2 years. She now has

> parkinsons, high blood pressure along with all the rest plus she is

> numb down the left side like a stroke, alot or wieght gain also.

I

> would love to talk to anyone that can tell me anything about this.

> She is dear to me but refuses to talk about it. It makes her sad,

> and she wants to live her life to the fullest as long as possible.

>

> I have yahoo shadylady0114

>

> and MSN shariblackwell

>

> I will chat on either one of these if someone is willing.

>

> Thank you

>

> Shari Blackwell