RE: possible MSA of my father

[Guest guest]

Hello

Sorry that you had to come looking for us. Be aware that it is still too

early to tell what your dad has, there are other things such as PAF that are

less drastic than MSA and mimic the MSA symptoms. Unfortunately at this

point, you are forced to " wait and see " . That is not fun as we all know.

If it is MSA there is a good chance your dad will live another ten years or

more as the average is about ten years. Many people are able to compensate

and work about four years, depending on the job. Hopefully Germany has a

better system for caring for disabled people than the USA. I know that

several European countries and Australia, do help their disabled out. Have

they tried Fludrocortisone or Midodrine (Sympathomimetic amines ) for the

blood pressure drop?

Have you tried these websites?

http://emedicine.com/NEURO/topic671.htm (very good site,

speaks of medicines and therapy which may help)

http://freepages.health.rootsweb.com/~charmayn/index.html (another good

site - also has pictures of some of the people on the MSA email list and lots

of helpful links)

Take care, Bill Werre, Herndon, Virginia, USA

[Guest guest]

Hello

Sorry that you had to come looking for us. Be aware that it is still too

early to tell what your dad has, there are other things such as PAF that are

less drastic than MSA and mimic the MSA symptoms. Unfortunately at this

point, you are forced to " wait and see " . That is not fun as we all know.

If it is MSA there is a good chance your dad will live another ten years or

more as the average is about ten years. Many people are able to compensate

and work about four years, depending on the job. Hopefully Germany has a

better system for caring for disabled people than the USA. I know that

several European countries and Australia, do help their disabled out. Have

they tried Fludrocortisone or Midodrine (Sympathomimetic amines ) for the

blood pressure drop?

Have you tried these websites?

http://emedicine.com/NEURO/topic671.htm (very good site,

speaks of medicines and therapy which may help)

http://freepages.health.rootsweb.com/~charmayn/index.html (another good

site - also has pictures of some of the people on the MSA email list and lots

of helpful links)

Take care, Bill Werre, Herndon, Virginia, USA

[Guest guest]

Bill what is PAF?

Thanks, AL

[Guest guest]

Bill what is PAF?

Thanks, AL

[Guest guest]

Very clear. Yhank you.

AL

[Guest guest]

Very clear. Yhank you.

AL

[Guest guest]

Very clear. Yhank you.

AL

[Guest guest]

Thanks.

AL

[Guest guest]

Thanks.

AL

[Guest guest]

Thanks.

AL

[Guest guest]

PAF = Pure Autonomic Failure.

That is, there are no other complications, such as Parkinson's like

symptoms, or problems with the cerebellum. MSA assumes and requires these

other symptoms be present. If not, PAF is the most likely diagnosis.

Regards,

=jbf=

B. Fisher

[Guest guest]

Al,

PAF is Pure Autonomic Failure, sorry.

Bill

-------------------------------------------------

aslb@... wrote:

> Bill what is PAF?

>

> Thanks, AL

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

[Guest guest]

Al,

PAF is Pure Autonomic Failure, sorry.

Bill

-------------------------------------------------

aslb@... wrote:

> Bill what is PAF?

>

> Thanks, AL

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

[Guest guest]

Al,

PAF is Pure Autonomic Failure, sorry.

Bill

-------------------------------------------------

aslb@... wrote:

> Bill what is PAF?

>

> Thanks, AL

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>