Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 Aletta, Glad you can be there for your son. I know that it is hard not to over do when your son needs you. Glad that his worries are being taken care of. Keep being the pushy broad. That is the only way to survive all that we are put through. Yes, it is bad when untrue assumptions are made about any of us. God Bless, Belinda > There was a 60 Minute's featuring Dudley and his struggle with > PSP. He was fired from set from an assumption that he was intoxicated, > when in fact it was the beginnings of PSP. He too, like so many of us lost > everything including dignity before finding out what was wrong with > him. It progresses differently than MSA (progressive, without > plateaus). Largely destitute he was taken in by a kindly fan who cared for > him until his death (a round of applause for her). As a fellow artist I > felt for his sorrow when his ability to play the piano faded from him. I > saw that program just months before my diagnosis became 'probable', he was > an inspiration to go on in spite of this illness. I imagine the produced > who fired, and the industry who largely abandoned him must be feeling > pretty rotten by now. > > Hey, Louise. You're so right about the dentist and eye doctor they were > pivotal not only with diagnosis but also with symptom management (reading > glasses, saliva substitutes) and preventing infections (what to do about > dry eyes, dry mouth etc.) > > Annie, glad you're back. > > Harold, my two cents, tell her the truth armed with facts as soon as you > have your own horror under control. In the beginning I suffered more about > how this was affecting my family than ever about myself. Once they stopped > treating me as though I was dying, no problems. > > I've been a thorn in the hospital's side no doubt, but my son was moved to > a room with a view and he was elated and resigned to getting better. Still > have more 'pushy broad' days in front of me but it is starting to look > up. Had a lovely visit with him. My mother in law has offered to help out > with the rent in case he becomes long-term, knowing for certain he has a > home (and therefore assorted pets) to come back to gave him a visible lift, > he's not good at speaking about his inner worries (but mom's are psychic > aren't they?) He's fine with the meds after I told him they're used in > treatment of bi-polar disorder, he can accept that as a diagnosis, much > less frightening than schizophrenia (and they could be wrong about that > anyway). See Harold, tell the truth, just don't make it more frightening > than it has to be, being found out for telling white lies or gilded truths > makes you untrustworthy, and believe me trust is key. The days are long > going back and forth to hospital, but I'm holding up rather well. The > added adrenaline of having to fight for my son helps keep me going. Like > we all know I'll probably pay for it later. > > Well, I'm wiped. Take care. > > aletta mes, vancouver, bc canada > http://www.aletta.0catch.com Quote Link to comment Share on other sites More sharing options...
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