Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hi all, Older members of the list will remember Bbbbbbeeeeecky. She has MSA. Last year her husband/caregiver was killed by a drunk driver. I was searching this evening and ran across an old email from her daughter Jenyfer with a phone number and called Jenyfer. Becky is doing well presently. She now has a live-in caregiver who gets her out of the house more. Becky is no longer able to talk as Medicare cut her off speech therapy, but is getting more social contact, so hopefully that will help. As a group we need to start pressuring our Congress. If they are cutting our research funds, in the name of " saving " the life of a blastocyst, they need to save " quality of life " in living patients. When speech goes, so does swallowing capability. By not allowing speech therapy, they are drowning patients in their own saliva. Take care, Bill Werre Quote Link to comment Share on other sites More sharing options...
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