Re: Financial Support/Bill

[Guest guest]

Thanks, Bill. I always appreciate your input.

On the subject of MSA Research, do you have any feel

for which organizations/hospitals, etc., are doing the

most research right now? I assume Vanderbilt has a

large research program. Is that right? What about

Mayo? Where are we in terms of research? Is the main

focus on finding a cause for MSA? I need to talk

further with Dr. Parisi at Mayo and find out what

types of research they do with brain tissue donations.

On a different subject, how long did it take you to

get used to " not " caring for Charlotte? My mother is

really struggling with that right now. Of course, it's

only been a week and a couple of days since my father

passed away. For the past year, she spent her entire

day caring for him. (They never hired outside help).

She doesn't know what to do with herself now.

She is also really struggling with the question, " Is

there anything I could have done to save him? " She

wonders if he would still be here if she had taken him

to the Dr. when he first started feeling bad. Maybe he

had an infection we didn't know about. Also, she

doesn't know CPR and wonders if she had if he would

still be alive. It's a moot point, but I think that

even if she did know CPR he wouldn't have made it. If

he had, I don't think he would have been the same.

This is such a difficult time and we have so many more

questions than we have answers. In the end, it doesn't

really matter much because what happened happened and

we can't change it now. Still, I wish we all had just

one more day with him.

I'm rambling...

Thanks!

--- Werre b.werre@...> wrote:

> ,

>

> You didn't start anything, you just asked a good

> question. I know this is a

> tough time for you and your family, don't let this

> misunderstanding get you

> down. I don't think anyone is really upset.

> Remember we are still family

> here on the list.

>

> I just think some of the newer people don't realize

> the ties between this

> list, Vanderbilt University and the SDS/MSA Support

> Group. That coupled with

> the outbreak of SPAM on the list recently has many a

> little perturbed (the

> SPAM has Pam and me uptight also). I just wanted to

> let newer members know

> that Don is a member of the list and was before I

> came on the list.

> Vanderbilt University started this list (with the

> SDS/MSA Support Group) in

> 1995 and provided the server (actually it still

> works) until July 2000, when

> they moved us here to get more services. Pam and I

> are generally the only

> ones on the old list and refer people here when they

> find that one.

>

> Hugs to you, Bill Werre

>

>

--------------------------------------------------------

>

> M Bruner wrote:

>

> > I think Don was just responding to my email asking

> > about possible organizations to whom my family and

> I

> > could donate the money that was contributed in my

> > father's memory. Sorry if I started something.

> >

> >

>

>

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