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Re: MSA Research Funding/Carol

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Carol,

After my father's death last week, my sisters and I

set up a charitable foundation to raise money

specifically for research into causes and treatments

of MSA. In the six days since we set up the

foundation, we have had a tremendous response, mostly

from friends and professional associates of our

father's. It is our intention to continue to raise

funds, and we're planning a number of fundraising

activities. Although we have received donations from

people all over the country, currently our focus is

local but we would like to expand that in the near

future. It would be great if groups in different parts

of the country could raise funds. While none of us has

access to millions, if several of us raise smaller

sums in our own towns, we can make a difference.

I think your idea of a large group of us working

together is great! The more people we have raising

money, the more we can do. My sisters and I have

already done all the legal paperwork to set up the

foundation, and through my father's professional

connections have access to many legal and financial

advisors, all willing to work on a volunteer basis. We

would be happy for our foundation to be the conduit

that you mentioned.

Let's discuss ideas for how we can work together. It's

probably best to keep the posts here " on-topic " , so

anyone who is interested in this project can email me

off-list.

Thanks!

in OK

__________________________________________________

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