Re: newbeee-- personal perspective

[Guest guest]

Harold,

I welcome you to the group with sad and open arms. I don't know what

it is like for caregivers to face awful unknown things happening to

your loved one. I do know as a patient (not yet DX'd)it is very hard

to watch others 'hurt' for you. Many patients here so many times

repeat the frustration I feel, trying to deal with the unknown DX. I

don't know your wife as you do, perhaps she is the type that wouldn't

handle news as well as others. I can only say this has been one of

the hardest things to handle 'fear of the unknown'. I do know I would

be very upset if I thought my husband kept info from me even if he

did it with the most loving intentions. As with everything else in

life I would say ask yourself " what would I want if that were me? "

Please don't think I'm coming down on you for your decision. I can

tell you are a loving husband trying to do the very best for your

Emma. Just thought I would give you one patient's perspective. Many

may disagree with me. I would get another opinion as you seem to

think you need it and get the info together. I just hate to see you

having the fear of her finding out info added to all the other things

you deal with daily. I guess I'm a patcher too, if Emma is, then I

think she will face the future with more strengh than you think.

Thank you for the 'patches'message it was very inspirational. Best of

luck to you both. God Bless you and all the other love-givers out

there. We do appreciate everything you do for us! with hugs...Rose