Re: newbeee-- personal perspective>Harold

[Guest guest]

Harold,

I can not say anything else to go along with what Rose said other

than I agree with her 100%. I am sorry that your Emma is ill but you

have come to a wonderful group who will help you as much as possible.

God Bless,

Belinda

> Harold,

> I welcome you to the group with sad and open arms. I don't know

what

> it is like for caregivers to face awful unknown things happening to

> your loved one. I do know as a patient (not yet DX'd)it is very

hard

> to watch others 'hurt' for you. Many patients here so many times

> repeat the frustration I feel, trying to deal with the unknown DX.

I

> don't know your wife as you do, perhaps she is the type that

wouldn't

> handle news as well as others. I can only say this has been one of

> the hardest things to handle 'fear of the unknown'. I do know I

would

> be very upset if I thought my husband kept info from me even if he

> did it with the most loving intentions. As with everything else in

> life I would say ask yourself " what would I want if that were me? "

> Please don't think I'm coming down on you for your decision. I can

> tell you are a loving husband trying to do the very best for your

> Emma. Just thought I would give you one patient's perspective. Many

> may disagree with me. I would get another opinion as you seem to

> think you need it and get the info together. I just hate to see you

> having the fear of her finding out info added to all the other

things

> you deal with daily. I guess I'm a patcher too, if Emma is, then I

> think she will face the future with more strengh than you think.

> Thank you for the 'patches'message it was very inspirational. Best

of

> luck to you both. God Bless you and all the other love-givers out

> there. We do appreciate everything you do for us! with hugs...Rose