Re: My dexascan results

[Guest guest]

Jacque, this is so scary, but, I suppose, not surprising. I remember a few

years ago when they came out with a report on people who read mammograms, and

how something like 60% were read incorrectly. I don't know if these people

are not trained correctly or just not qualified to do these jobs. But, at

the very least, it's quite unnerving.

Just curious, are you taking Evista? My doc wants me to take it, just

haven't gotten the scrip filled yet.

in NJ

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In a message dated 9/10/2002 6:47:18 AM Eastern Daylight Time,

Graduate-OSSG writes:

> Seems this other bogus lab...my words,

> not hers, as she was careful not to malign them...didn't even run the test

> correctly!!

[Guest guest]

from experience i can say that different labs use different computer

programs and i suppose not all techs are trained the same either.

i had to use a different lab also in the second year and it was like

comparing apples to oranges with the reports - i couldn't do it, my surgeon

couldn't do it and my ortho guy couldn't beleive the difference in the

reports.

a lot of times the lab we use is out of our control but if possible go to

the same place year after year.

the only suggestion i have jacque is to up your ostivone dose and weight

bearing exercise.

sue

> Sorry about the crosspost, but felt like venting on both lists. I believe

I

> mentioned before I was going to a new clinic for my next bonescan since my

> insurance had dropped the contract on the old one. Well, seems it was a

very

> good thing this happened. You'd think I'da gotten a clue when I went in

for

> my second bone scan there, and they bold-faced told me that they couldn't

> even get a reading on me the previous time due to my being so over

> weight...(in excess of 300 lbs.) But, where did the glowing report of my

> good bones come from that went to my doctor from their radiologist, I'm

still

> wondering about? So, I figured, we had one bad experience, it isn't going

to

> happen again right? Wrong!! I posted my wonderful results of my last

bone

> scan...which sue looked at and confirmed that they were normal. I was

> happy...even though they had showed a loss of bone from the previous

" scan "

> that didn't happen! So at that time, I decided to run an experiment on

> myself..and really up my calcium, taking it throughout the day...almost

> hourly figuring it would in a years time at least keep me level and not

> losing any more bone. Scene changes to new clinic...and I'm told by the

tech

> that my " bones really rock!! " Amazing for my age and circumstances...I'm

> still happy!! Then we go to the wall where she measures my height. I've

> lost 1/8 of an inch in just a years time...hmmmm...what's this about?

Well,

> I'm not worrying yet...maybe I just wasn't standing up so straight. Seems

> she does three measurements...which it turns out, is a good thing. First

she

> did my wrist. Then, I hopped up on the table, and she did my spine and my

> hip. I waited for the computer to spit out my results. The readings on

my

> spine...still look great...but hold that thought....I show osteopenia in

my

> hip and in my wrist both! An extremely dramatic drop for just one year's

> time...even in her mind in the worst of circumstances. I had my results

with

> me, and she asked to see them again. Seems this other bogus lab...my

words,

> not hers, as she was careful not to malign them...didn't even run the test

> correctly!! What was measured, wouldn't give them a correct reading at

> all...but would take my pelvis into consideration..and give the computer a

> higher reading! Also, upon looking closer at my spine...it is obvious

that

> it is extremely calcified with osteoarthritis...and is more than likely

> giving a false reading...and she feels the radiologist will probably throw

> out that reading altogether! So, the sum of all of this is...I have and

have

> had osteopenia all this time when I felt I had good bones..and my doctor

had

> it reported to her that I was just fine. How dangerous are these people

> anyway? Two skewed tests in a row...for me...what are they doing to other

> women out there? You can believe my doc is going to get an earful!! I

have

> to wait for her to read my results and hit the ceiling..and call me on the

> phone...which she will do, later this week...you can say...I am just a

little

> bit on the angry side about this. What if I hadn't taken that little

> difference in the false readings as seriously as I had...as most people

would

> not have...and taken the corrective measures that I did when I did? I

don't

> even want to imagine! I don't even know what my purpose is in posting

this

> right now. Nothing any of us can do because we are at the mercy of

whoever

> it is that reads these things. You'd sure think they would note that

> something wasn't right. I neglected to get a copy of the first

report...and

> now wish I had...wondering if it is the same radiologist...and why did my

> insurance company drop their contract...I have lots of unanswered

questions

> going around in my head right now. Sorry to have bent your ears..(eyes)

for

> so long...but just had to do some thinking out loud here. Thanks!

>

> Regards~

>

> Jacque

>

>

>

[Guest guest]

No Les, I haven't yet heard from the doc...but am wondering what I'm going to

say when she calls besides the rant that I have stored up about the place she

has been sending me to. What about Evista? I've heard about it...but

haven't been curious enough until now to really delve into it. Is it WLS

friendly? I know the other things aren't. What do you know about it?

Hugs~

Jacque

Just curious, are you taking Evista? My doc wants me to take it, just

haven't gotten the scrip filled yet.