(No subject)

[Guest guest]

Still hanging in, thanks for keeping me in your thoughts. It

helps. Still have not spoke to one doctor about my son (no time,

they tell me), maybe tomorrow. No movement anywhere (bowels incl.

LOL). Keep forgetting to eat and take meds, so used to meals and

stuff being part of the structure of being a mom. My mother isn't

speaking to me (I guess she quit taking meds). My sister's being

sweet but with full-time job and five kids and another on the way, can't

expect much time. My mother in law is very sweet and supportive

(Naples FL), and the X and I speak daily. Son's god-father called

to. Unfortunately they're on the other side of the continent.

Coathanger pain galore (to much time spent upright and

unsupportive).

Guess I chose the wrong time to quit smoking, huh?LOL

Letters I emailed to Church etc. are slowly being responded to.

But, I still know very few details about what really happened. Hope

to speak to my parish priest tomorrow, he responded very quickly (as is

his nature), but I was at the hospital when he called. My friend

who lives upstairs came down last night and we chatted till

about 4 am or so.

Anyone have any info on this: Inherited Dysautomania listed as a

'Jewish " (Askenasi Jews in particular) disease, matches me in some

ways better than MSA (breech births - mine, my son's), swallowing

problems, childhood pneumonia (6 times before age 20) inability to cry,

(have been called insensitive all my life), some other things which

escape me right now. I'm a total mut with lots of 'bastards' on

both sides of the family (including Paiute, Maori, Flemish, Dutch,

Spanish). There is a genetic test for it, but they keep saying

'Jewish' on these websites as though it is an absolute requirement.

In Vancouver we have no Jewish hospital (my kids were both born at Mt.

Sinai in Toronto). Not that there is a cure, but it has been

identified as a genetic defect.

aletta mes, vancouver, bc canada

http://www.aletta.0catch.com