(No subject)

[Guest guest]

Hi everyone

I do not know if most of you know that I have not been diagnosed yet.

I am hoping to get an appointment at Wake Forest Baptist Hospital. I

spoke with my brother last night and there seems to be some confusion

there who would be more knowledgable to help me. It has been very

challenging to me and my family to say the least. I have been asked

why does it matter if you haven't been diagnosed yet if they can only

treat the symptoms. This may be so, but I still want to know what is

wrong with me. One doctor told me he thinks I have Spinocellerebra

ataxia. I go to another doctor who said he thinks I have Parkinson's

Plus and maybe some ataxia. I have read alot about MSA and feel that

I have alot of the symptoms of MSA. I feel like I have to be the one

who finds out about it as much as I can because I know no one else

who will do it for me.(family and close friends). My husband is

wonderful when it comes to working, cooking, laundry, child care,

taxi driver but when it comes to constant caregiving I dont know how

he will be. I know that there are times that nursing homes are

necessary and I dont have any hard feelings for someone who uses them

but I am terrified of being put in one. I hear nothing but horror

stories of the nursing homes around us. I have read everyones post

and seen the trials that everyone has gone through. I am afraid

without a diagnose that when I need equipment for something I won't

be able to get it. I hope that pouring my heart out to you all that

you won't see me as being a whiner because I am not. I am trying to

be very realistic in which my family for generations has always had

trouble facing what they do not want to face as well as my husband

and his family. If anyone knows of a doctor who can help me in or

around Georgia please let me know. I am on a HMO and have to go to

providers that are listed in my book which also narrows the field for

me. If you can help me please let me know and if not all prayers are

always appreciated.

Love and God Bless,

Belinda