Simone's question

[Guest guest]

Hi Simone,

My husband Jerry has MSA and was diagnosed 5 yrs. ago with Cerebellar

Ataxia and 2 yr. later changed to probable MSA (OPCA). I think any

one of the caregivers could have written your letter. I can hear the

frustration we have all gone through. The wish we all have to know

the answers regarding how, when, what and where of this disease. I

have been on the list for a approx a month now and have learned a lot

from the others. One thing is for sure, everyone is different in

regards to the disease, its progression and its time table for

displaying symptoms. Some things are universal depending on whether

your dad has OPCA first or Parkinson symptoms appearing first or Shy

Dragger symptoms first. Go ahead and ask specific questions and give

specific information and others with similar dx will answer. I am

sorry to hear your dad is depressed as that makes it more difficult

for you. Is he on medication for the depression? Joining one of the

Sunday chats really helped Jerry. For the first time he saw that

others had MSA as well. Although he can not type he relayed his

questions for me to type and felt connected to others.

Please remember to post your questions. Take care and God Bless you

and your dad.

Hugs, Jan (AZ- where the Sun and the Mercury rise each day)