Jump to content
RemedySpot.com

Re: Digest Number 826

Rate this topic


Guest guest

Recommended Posts

> Wow I had no idea you were on this listserve . Small world huh We

already mest up by leaving New Jersey. WE had the best of services there.

When my hubby retired he didnt want to stay as he hated New Jersey. So we

cant mess up any worse then we did and that was coming to Colorado. I

emailed Albuquerque and seems they had more to offer then Colorado. The

only good districts here are Boulder and Cherry Creek Denver. Colorado has

money its just displaced other places. So by moving to Albuquerque I dont

think I could do any worse then I have. I do admit small towns like Artesia

and such probably have nothing. We mest up by moving and I just have to

do something. We were in NJ for 3 years military and that is the place to

be. They helped my daughter out so so much got her to holding a pencil . I

talked to APS and was told they do ABA and that is more then what colorado

does. Also been discriminated here in Colorado so much I cant even pay

taxes anymore so New Mexico I can pay there taxes. Then told to put my son

on zyprexia. See I made my bed now I have to lye in it. My son should not

have to pay for my mistake. Charlene

>

> Message: 9

> Date: Mon, 25 Feb 2002 15:57:29 -0700

> From: " cheezer " <cheezer@...>

> Subject: Fw: New Mexico Schools

>

> I need to know what you all think of Albuquerque for services. I

> live in Trinidad CO and there are NO services here. Charlene

> New Mexico Schools

>

>

> > Charlene,

> > I believe I've written you before. My advice remains the same. Don't

> come

> > to New Mexico unless you have no choice. I spent three hours last week

> > observing a child at Inez Elementary, and I don't believe that would be

an

> > ideal placement for most children with autism.

> > I'd look to Arizona, California, Wisconsin, Oregon, New Jersey, Indiana,

> or

> > North Carolina. New Mexico is too poor to offer good services in the

> schools

> > or in the community.

> > Gay Finlayson

> > Health Education Consultant

> > Southwest Autism Network/ Center for Development and Disability

> > University of New Mexico Health Sciences Center

>

>

>

>

Link to comment
Share on other sites

  • 1 month later...
Guest guest

I have been reading at this site for about a week. I am wondering if it is

too late to start my AS daughter on enzymes. She is now 13 years old.

Medical field failed us as she was not diagnosed correctly all these years.

AS material really explained all the challenges we went through so many

years. No one ever suggested an Autism spectrum syndrome until last year.

Now I am looking for some ideas to try and thought the enzyme approach might

be worth trying..Has too much damage been done by this age? She is taking

Risperdal which helped her get her behavior in control immediately. But we

have raised the dosage twice and I don't know if any higher dose will be safe

or possible. We tried the Feingold diet when she was 6 for the ADHD label

she was " wearing " back then. No results from that to speak of. Never tried

the gfcf diet as I only just heard of it about the same time as the enzymes.

She has always had excellent eye contact, is overly affectionate--not age

appropriate. Expressive language is good now but when she was small she was

echolaic. Hand flapping and wringing are habitual. Other repetetive

movements have calmed down since Risperdal was initiated. Should we even

bother with the enzymes at this age? What do you think? Lucinda

Link to comment
Share on other sites

Guest guest

Why would it be to late ? I have a son that's 13 and I'm constantly thinking

about ways to make him feel better and thus progress. He keeps making progress,

not dramatic, but progress anyway. Don't look at the age factor. Sometimes I get

down and say to myself, all this that I'm doing is just useless, because he's "

so old " ( he's had interventions since he was 4, it's not like I just started )

I honestly think that if we had not done anything for him and if I had left him

on all those medicines that the doctors had him on, well, he wouldn't be doing

as good. He's not recovered and at this stage I realistically know he probably

never will, but if I can make his quality of life better, hey, why not ?

Sharon

Re: [ ] Digest Number 826

I have been reading at this site for about a week. I am wondering if it is

too late to start my AS daughter on enzymes. She is now 13 years old.

Medical field failed us as she was not diagnosed correctly all these years.

AS material really explained all the challenges we went through so many

years. No one ever suggested an Autism spectrum syndrome until last year.

Now I am looking for some ideas to try and thought the enzyme approach might

be worth trying..Has too much damage been done by this age? She is taking

Risperdal which helped her get her behavior in control immediately. But we

have raised the dosage twice and I don't know if any higher dose will be safe

or possible. We tried the Feingold diet when she was 6 for the ADHD label

she was " wearing " back then. No results from that to speak of. Never tried

the gfcf diet as I only just heard of it about the same time as the enzymes.

She has always had excellent eye contact, is overly affectionate--not age

appropriate. Expressive language is good now but when she was small she was

echolaic. Hand flapping and wringing are habitual. Other repetetive

movements have calmed down since Risperdal was initiated. Should we even

bother with the enzymes at this age? What do you think? Lucinda

Link to comment
Share on other sites

Guest guest

Dear Lucinda,

YES! My daughter is also 13 and we started her on both the Houston

Enzymes back in August. It was a slow process but we started seeing results.

We were able to wean her off Luvox for obsessive compulsive stuff and also

reduce her Risperdol. Please feel free to email me privately as I've been

dying to talk to another mom who has a daughter like my own.

Re: [ ] Digest Number 826

> I have been reading at this site for about a week. I am wondering if it

is

> too late to start my AS daughter on enzymes. She is now 13 years old.

> Medical field failed us as she was not diagnosed correctly all these

years.

> AS material really explained all the challenges we went through so many

> years. No one ever suggested an Autism spectrum syndrome until last year.

> Now I am looking for some ideas to try and thought the enzyme approach

might

> be worth trying..Has too much damage been done by this age? She is taking

> Risperdal which helped her get her behavior in control immediately. But

we

> have raised the dosage twice and I don't know if any higher dose will be

safe

> or possible. We tried the Feingold diet when she was 6 for the ADHD label

> she was " wearing " back then. No results from that to speak of. Never

tried

> the gfcf diet as I only just heard of it about the same time as the

enzymes.

> She has always had excellent eye contact, is overly affectionate--not age

> appropriate. Expressive language is good now but when she was small she

was

> echolaic. Hand flapping and wringing are habitual. Other repetetive

> movements have calmed down since Risperdal was initiated. Should we even

> bother with the enzymes at this age? What do you think? Lucinda

>

>

>

Link to comment
Share on other sites

  • 9 months later...

Re: Standards for New Birth Visit

Our Trust has been working to Hall recommendations for some time for the

Primary Visit & only measures weight (no midwife weight check is carried

out, & weight, head circumference and length are checked at 6-8 week

assessment). However, we have had in existence for some years a very handy

page in the Personal Child Health Record which summarises the physical,

child protection & health promotional aspects of this visit. This was

introduced partly because of Child Protection requirements when records of

the Primary Visit didn't provide enough information for Courts. Hall 's

emphasis on the unecessary repetition of checks by different professionals

has caused us to look again at the what & why of our assessments at this

time. There are opposing reasons for checking several of the points on the

summary page eg do we need to be re-checking descent of testes? This is

versus our local poor stats on early detection of maldescent of testes. The

current situation is that we tend to carry out a very speedy physical review

of the baby as it is weighed. The need for a thorough assessment including

possible bruises, conjunctival haemorrhage etc is crucial & I can see

dangers of these being missed depending upon interpretation of Hall. As most

of you are, we are working on updating our Standards too. You are very

welcome to a copy of the Summary Page if you e-mail me.

Regards

Maggie

Digest Number 826

>

Link to comment
Share on other sites

Re: Standards for New Birth Visit

Our Trust has been working to Hall recommendations for some time for the

Primary Visit & only measures weight (no midwife weight check is carried

out, & weight, head circumference and length are checked at 6-8 week

assessment). However, we have had in existence for some years a very handy

page in the Personal Child Health Record which summarises the physical,

child protection & health promotional aspects of this visit. This was

introduced partly because of Child Protection requirements when records of

the Primary Visit didn't provide enough information for Courts. Hall 's

emphasis on the unecessary repetition of checks by different professionals

has caused us to look again at the what & why of our assessments at this

time. There are opposing reasons for checking several of the points on the

summary page eg do we need to be re-checking descent of testes? This is

versus our local poor stats on early detection of maldescent of testes. The

current situation is that we tend to carry out a very speedy physical review

of the baby as it is weighed. The need for a thorough assessment including

possible bruises, conjunctival haemorrhage etc is crucial & I can see

dangers of these being missed depending upon interpretation of Hall. As most

of you are, we are working on updating our Standards too. You are very

welcome to a copy of the Summary Page if you e-mail me.

Regards

Maggie

Digest Number 826

>

Link to comment
Share on other sites

  • 9 months later...

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...