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RE:{MSA} Re: Stress,Exertion and Symptoms>Janice

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Janice:

Fred had alot of pulmary Test done when he was in the hospital last September. They took him out of the room, so I wasn't about to see what kind they did, but it took over an hour before they came back with him and the first thing Fred tolded me was some of the test were hard to do. They also did other test and then the heart doctor did more, because he didn't think they were right. Most of the test that Fred has had done over the years haven't shown anything, all we can go by is the b/p and the other things he show's sign's of. I wouldn't worry about what other's are thinking Janice, they don't walk in your shoes. We know what it's like to have this illness and so little is known about it.Just try to do the test the best you can and let the doctors figure it out. Your not having all these test to please anyone, your there to try and fine what is wrong and what will help.

Hugs

Vera

******************************

From: janice harrell <jharrell07@y...>

Date: Thu Mar 7, 2002 11:28 am

Subject: Re: Re: Stress, Exertion and Symptoms

HELLO,I WAS WONDERING IF ANYONE HAS EVERY HAD A

PLUMARY FUNCTION TEST DONE BEFORE.I HAD ONE THE OTHER

DAY AND I FELT THAT THEY REALLY GOT MAD WITH ME

BECAUSE I COULDN,T DO THE THINGS THE WAY THAT THEY

WANTED THEM DONE,OR MAYBE IT IS JUST ME.THE WAY THAT I

HAD BEEN FEELING LATELY I FEEL LIKE THAT I CAN,T DO

ANYTHING TO PLEASE PEOPLE.THEYB ALSO HAD ME DO A

MUSCLE THING SAING THAT THEY WERE SEEING HOW MUCH

MUSCLE THAT I HAD,OR SOMTHING LIKE THAT.I AM ALSO DUE

TO HAVE A EMG DONE MONDAY.WILL THIS TEST DETEMINE WHAT

I HAVE.PLEASE LET ME KNOW IF ANY OF YA HAVE EVERY DONE

THESE TEST BEFORE..THANK YOU JANICE HARRELL 1-904

534-2882 OR 374-1362 YOU CAN CALL ANYTIME IT IS NICE

TALKING TO PEOPLE THAT KNOWS A LITTLE ABOUT WHAT WE

ARE ALL GOING THREW..

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Janice,

I dont believe is could have been said any better than what Vera told

you. You should not be bullied by any doctors because you are there

to find out what is wrong with you. Do the best you can and no more

should be asked of you. Also like others have said see if there is a

taxi service for seniors and/or disabled. This would be a great help

to you if its available. I know its hard being by yourself. Another

thing, not one test will be able to tell you what is wrong with you.

You will have to go through many test and alot of observation from

the doctors and even then you might not know exactly what is wrong

with you. Rare diseases are hard to diagnose since there is not just

one test or a series of test to find out what is wrong ex. Multiple

Sclerosis. Janice, hang in there we are here for you.

God Bless,

Belinda

> Janice:

> Fred had alot of pulmary Test done when he was in the hospital last

> September. They took him out of the room, so I wasn't about to see

what kind

> they did, but it took over an hour before they came back with him

and the

> first thing Fred tolded me was some of the test were hard to do.

They also

> did other test and then the heart doctor did more, because he

didn't think

> they were right. Most of the test that Fred has had done over the

years

> haven't shown anything, all we can go by is the b/p and the other

things he

> show's sign's of. I wouldn't worry about what other's are thinking

Janice,

> they don't walk in your shoes. We know what it's like to have this

illness

> and so little is known about it.Just try to do the test the best

you can and

> let the doctors figure it out. Your not having all these test to

please

> anyone, your there to try and fine what is wrong and what will help.

>

> Hugs[unable to display image]

> Vera

>

> ******************************

> From: janice harrell <http://groups.yahoo.com/group/shydrager/post?

protectID=045015113180127198138181152207114164134058066051209171188199

" >jharrell07@y...>

> Date: Thu Mar 7, 2002 11:28 am

> Subject: Re: Re: Stress, Exertion and Symptoms

>

> HELLO,I WAS WONDERING IF ANYONE HAS EVERY HAD A

> PLUMARY FUNCTION TEST DONE BEFORE.I HAD ONE THE OTHER

> DAY AND I FELT THAT THEY REALLY GOT MAD WITH ME

> BECAUSE I COULDN,T DO THE THINGS THE WAY THAT THEY

> WANTED THEM DONE,OR MAYBE IT IS JUST ME.THE WAY THAT I

> HAD BEEN FEELING LATELY I FEEL LIKE THAT I CAN,T DO

> ANYTHING TO PLEASE PEOPLE.THEYB ALSO HAD ME DO A

> MUSCLE THING SAING THAT THEY WERE SEEING HOW MUCH

> MUSCLE THAT I HAD,OR SOMTHING LIKE THAT.I AM ALSO DUE

> TO HAVE A EMG DONE MONDAY.WILL THIS TEST DETEMINE WHAT

> I HAVE.PLEASE LET ME KNOW IF ANY OF YA HAVE EVERY DONE

> THESE TEST BEFORE..THANK YOU JANICE HARRELL 1-904

> 534-2882 OR 374-1362 YOU CAN CALL ANYTIME IT IS NICE

> TALKING TO PEOPLE THAT KNOWS A LITTLE ABOUT WHAT WE

> ARE ALL GOING THREW..

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