Re: Just wondering ? - update on Sheldon

[Guest guest]

Verlene,

I am so glad that Sheldon's liver count has gone down. I am still

praying for both of you. Let us know about Sheldon's test.

God Bless

Belinda

> Vera,

> Thank you for asking. Sheldon was in the hospital for two weeks.

He was

> released after 10 days to recover at home. He was home for a day

and I had

> to call 911 because he blacked out and I couldn't wake him up, so

he ended

> up right back in the hospital. I brought him home late Wednesday,

but he is

> very weak, is still not eating well (although he is keeping what he

eats

> down), and he is still very yellow. The doctor wanted him to see a

blood

> disorder specialist before we left the hospital because his blood

platelet

> count is going down. The blood specialist had already left for the

day so

> Sheldon talked them into going home.

> We are going to the blood specialist today and then back to the

kidney

> specialist this afternoon. They have taken all medications away

from

> Sheldon until his liver gets a chance to heal. Finally two days

ago the

> liver count starting going down, which we are very thankful for.

They did a

> liver biopsy checking for 's disease. If all of the tests in

the

> biopsy come back negative, they are assuming that the liver damage

is from

> the medications he is taking for MSA Shy-Drager.

> I did go to the Support Meeting in Thousand Oaks. It was very

worthwhile,

> although I was the only person from a MSA family. The speaker was

> excellent. She was a neurological opthamologist from UCLA and the

Veteran's

> Hospitals. She spoke about how the neurological diseases effect

the eyes.

> In MSA when the eyes have trouble focusing she suggested using a

ruler so

> the eyes know where to go back to on the page. She also assured

everyone

> who was concerned that they would go blind, that this does not lead

to

> blindness. On May 25th and there will be a neurological doctor

from a

> movement disorder clinic as a speaker. I would suggest that anyone

in the

> Los Angeles area who can make it try to go. The meeting is casual

with very

> nice people. Although the neurological diseases have a different

name, they

> are all similar and all of us are all dealing with the same

concerns.

> Take care of yourselves and your loved ones. God Bless.

>

> Verlene

> Just wondering ?

>

>

> > I was just wondering:

> >

> > 1. Elaine how is Bob doing? and how are you?

> > 2. Verlene how is Your husband doing and did you get to the L.A

support

> > group?

> > 3. Wanda did you get to the Neurologist and did he send you to the

> Urologist?

> >

> > 4. Steve did you get any help yet?

> > 5. Jean how is Chrissie doing now?

> >

> > these are just a few question's that was on my mind and just was

> wondering.

> >

> > Hugs to all of you

> > Vera

> >

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