Re: Just wondering ? - update on Sheldon

[Guest guest]

Vera,

Thank you for asking. Sheldon was in the hospital for two weeks. He was

released after 10 days to recover at home. He was home for a day and I had

to call 911 because he blacked out and I couldn't wake him up, so he ended

up right back in the hospital. I brought him home late Wednesday, but he is

very weak, is still not eating well (although he is keeping what he eats

down), and he is still very yellow. The doctor wanted him to see a blood

disorder specialist before we left the hospital because his blood platelet

count is going down. The blood specialist had already left for the day so

Sheldon talked them into going home.

We are going to the blood specialist today and then back to the kidney

specialist this afternoon. They have taken all medications away from

Sheldon until his liver gets a chance to heal. Finally two days ago the

liver count starting going down, which we are very thankful for. They did a

liver biopsy checking for 's disease. If all of the tests in the

biopsy come back negative, they are assuming that the liver damage is from

the medications he is taking for MSA Shy-Drager.

I did go to the Support Meeting in Thousand Oaks. It was very worthwhile,

although I was the only person from a MSA family. The speaker was

excellent. She was a neurological opthamologist from UCLA and the Veteran's

Hospitals. She spoke about how the neurological diseases effect the eyes.

In MSA when the eyes have trouble focusing she suggested using a ruler so

the eyes know where to go back to on the page. She also assured everyone

who was concerned that they would go blind, that this does not lead to

blindness. On May 25th and there will be a neurological doctor from a

movement disorder clinic as a speaker. I would suggest that anyone in the

Los Angeles area who can make it try to go. The meeting is casual with very

nice people. Although the neurological diseases have a different name, they

are all similar and all of us are all dealing with the same concerns.

Take care of yourselves and your loved ones. God Bless.

Verlene

Just wondering ?

> I was just wondering:

>

> 1. Elaine how is Bob doing? and how are you?

> 2. Verlene how is Your husband doing and did you get to the L.A support

> group?

> 3. Wanda did you get to the Neurologist and did he send you to the

Urologist?

>

> 4. Steve did you get any help yet?

> 5. Jean how is Chrissie doing now?

>

> these are just a few question's that was on my mind and just was

wondering.

>

> Hugs to all of you

> Vera

>

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> shydrager-unsubscribe

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>

>

>

>

[Guest guest]

Verlene,

Just a warning on $$$. If Sheldon has an infection and leaves the hospital,

then they find out and have to him him IV antibiotics, they may have to put him

into a nursing home (rehab) for a period. If he goes directly to a nursing home

from the hospital, Medicare pays for a great deal of the cost for the first

20-30 days (which is often enough time). BUT it he goes from home or the

doctor's office to a nursing home, you have to pay it all.

Make sure you know where you stand on treatment, it can cost you. Sheldon needs

to realize this sort of thing can cost you big bucks and let the doctors do

their thing. I know getting home always sounds good, but until Medicare changes

their rules to allow better home care, watch out.

Take care, Bill Werre

--------------------------------------------------------

Verlene Mooney wrote:

> Vera,

> Thank you for asking. Sheldon was in the hospital for two weeks. He was

> released after 10 days to recover at home. He was home for a day and I had

> to call 911 because he blacked out and I couldn't wake him up, so he ended

> up right back in the hospital. I brought him home late Wednesday, but he is

> very weak, is still not eating well (although he is keeping what he eats

> down), and he is still very yellow. The doctor wanted him to see a blood

> disorder specialist before we left the hospital because his blood platelet

> count is going down. The blood specialist had already left for the day so

> Sheldon talked them into going home.

> We are going to the blood specialist today and then back to the kidney

> specialist this afternoon. They have taken all medications away from

> Sheldon until his liver gets a chance to heal. Finally two days ago the

> liver count starting going down, which we are very thankful for. They did a

> liver biopsy checking for 's disease. If all of the tests in the

> biopsy come back negative, they are assuming that the liver damage is from

> the medications he is taking for MSA Shy-Drager.

> I did go to the Support Meeting in Thousand Oaks. It was very worthwhile,

> although I was the only person from a MSA family. The speaker was

> excellent. She was a neurological opthamologist from UCLA and the Veteran's

> Hospitals. She spoke about how the neurological diseases effect the eyes.

> In MSA when the eyes have trouble focusing she suggested using a ruler so

> the eyes know where to go back to on the page. She also assured everyone

> who was concerned that they would go blind, that this does not lead to

> blindness. On May 25th and there will be a neurological doctor from a

> movement disorder clinic as a speaker. I would suggest that anyone in the

> Los Angeles area who can make it try to go. The meeting is casual with very

> nice people. Although the neurological diseases have a different name, they

> are all similar and all of us are all dealing with the same concerns.

> Take care of yourselves and your loved ones. God Bless.

>

> Verlene

[Guest guest]

Verlene,

I am so glad that Sheldon's liver count has gone down. I am still

praying for both of you. Let us know about Sheldon's test.

God Bless

Belinda

> Vera,

> Thank you for asking. Sheldon was in the hospital for two weeks.

He was

> released after 10 days to recover at home. He was home for a day

and I had

> to call 911 because he blacked out and I couldn't wake him up, so

he ended

> up right back in the hospital. I brought him home late Wednesday,

but he is

> very weak, is still not eating well (although he is keeping what he

eats

> down), and he is still very yellow. The doctor wanted him to see a

blood

> disorder specialist before we left the hospital because his blood

platelet

> count is going down. The blood specialist had already left for the

day so

> Sheldon talked them into going home.

> We are going to the blood specialist today and then back to the

kidney

> specialist this afternoon. They have taken all medications away

from

> Sheldon until his liver gets a chance to heal. Finally two days

ago the

> liver count starting going down, which we are very thankful for.

They did a

> liver biopsy checking for 's disease. If all of the tests in

the

> biopsy come back negative, they are assuming that the liver damage

is from

> the medications he is taking for MSA Shy-Drager.

> I did go to the Support Meeting in Thousand Oaks. It was very

worthwhile,

> although I was the only person from a MSA family. The speaker was

> excellent. She was a neurological opthamologist from UCLA and the

Veteran's

> Hospitals. She spoke about how the neurological diseases effect

the eyes.

> In MSA when the eyes have trouble focusing she suggested using a

ruler so

> the eyes know where to go back to on the page. She also assured

everyone

> who was concerned that they would go blind, that this does not lead

to

> blindness. On May 25th and there will be a neurological doctor

from a

> movement disorder clinic as a speaker. I would suggest that anyone

in the

> Los Angeles area who can make it try to go. The meeting is casual

with very

> nice people. Although the neurological diseases have a different

name, they

> are all similar and all of us are all dealing with the same

concerns.

> Take care of yourselves and your loved ones. God Bless.

>

> Verlene

> Just wondering ?

>

>

> > I was just wondering:

> >

> > 1. Elaine how is Bob doing? and how are you?

> > 2. Verlene how is Your husband doing and did you get to the L.A

support

> > group?

> > 3. Wanda did you get to the Neurologist and did he send you to the

> Urologist?

> >

> > 4. Steve did you get any help yet?

> > 5. Jean how is Chrissie doing now?

> >

> > these are just a few question's that was on my mind and just was

> wondering.

> >

> > Hugs to all of you

> > Vera

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >