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[Guest guest]

There was a 60 Minute's featuring Dudley and his struggle with

PSP. He was fired from set from an assumption that he was

intoxicated, when in fact it was the beginnings of PSP. He too,

like so many of us lost everything including dignity before finding out

what was wrong with him. It progresses differently than MSA

(progressive, without plateaus). Largely destitute he was taken in

by a kindly fan who cared for him until his death (a round of applause

for her). As a fellow artist I felt for his sorrow when his ability to

play the piano faded from him. I saw that program just months

before my diagnosis became 'probable', he was an inspiration to go on in

spite of this illness. I imagine the produced who fired, and the

industry who largely abandoned him must be feeling pretty rotten by

now.

Hey, Louise. You're so right about the dentist and eye doctor they

were pivotal not only with diagnosis but also with symptom management

(reading glasses, saliva substitutes) and preventing infections (what to

do about dry eyes, dry mouth etc.)

Annie, glad you're back.

Harold, my two cents, tell her the truth armed with facts as soon as you

have your own horror under control. In the beginning I suffered

more about how this was affecting my family than ever about myself.

Once they stopped treating me as though I was dying, no problems.

I've been a thorn in the hospital's side no doubt, but my son was moved

to a room with a view and he was elated and resigned to getting

better. Still have more 'pushy broad' days in front of me but it is

starting to look up. Had a lovely visit with him. My mother

in law has offered to help out with the rent in case he becomes

long-term, knowing for certain he has a home (and therefore assorted

pets) to come back to gave him a visible lift, he's not good at speaking

about his inner worries (but mom's are psychic aren't they?) He's

fine with the meds after I told him they're used in treatment of bi-polar

disorder, he can accept that as a diagnosis, much less frightening than

schizophrenia (and they could be wrong about that anyway). See

Harold, tell the truth, just don't make it more frightening than it has

to be, being found out for telling white lies or gilded truths makes you

untrustworthy, and believe me trust is key. The days are long going

back and forth to hospital, but I'm holding up rather well. The

added adrenaline of having to fight for my son helps keep me going.

Like we all know I'll probably pay for it later.

Well, I'm wiped. Take care.

aletta mes, vancouver, bc canada

http://www.aletta.0catch.com