Frustrated

[Guest guest]

Hi Everyone, Maybe someone can help me help the doctors figure this one out.

I am miserable. I am back in the hospital again with a rash covering my

body head to toe. I burn and itch. My skin is bright red. My fingernails

have almost no color. My muscles hurt and the joints in my body feel like I

have been hit with a baseball bat every time I move anything.

So far, CAT scan is normal, chest x-ray is normal, white blood cell count

is normal. glucose level is high, iron level low, cholesterol is high. I

have been running a temperature up to 103 degrees though my normal temp is

97.4 The infectious disease specialist almost went rounds with this

morning when he told that I couldn't have a normal temp of 97.4 and

that he goes by the standard and 101 is low grade no matter what we think my

normal temp is.

Strep culture came back normal.

What should we do? We have an internest and infectious disease doc that

has showed up. We have been waiting for 2 days for the dermatologist and

neurologist and rhumatologist to show up. This is the 3ed out break of this

rash since February. We are at a loss to all of this an I am sick of

hurting and itching and being the receipent of any more " I really don't

know's " from the docs. Surely there is something that they can do to

figure this out! Today marks my 4th hospitalization and my 27th day in the

hospital since Dec. 20. Enough is enough.

Deborah

aka Tenacity

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