Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Hi all, Is there any research that shows that people with one form of MSA live longer than those with another (generally speaking, of course)? Most of my father's symptoms were of the " SND variety " and he lived just over a year after his dx, considerably less than the 3-7 years I've read is typical. I realize that he had MSA for several years before his dx, but even looking back, his symptoms were present for just 3-4 years before he was dx. It seems to me that, when compared to many on this list whose symptoms are predominantly " non-SND " (for lack of a better term), his progression/decline was much more rapid and the disease seemed quite a bit more insidious...(Not to minimize what anyone else is going through. It's terrible regardless of where you are in the disease). Just wondering... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Hi . I have read some research studies that tried to compare progression rates of the various flavours of MSA. I don't recall the exact details but I can try to dig it up for you sometime. You can also try hunting for it yourself. Go to: http://www.ncbi.nlm.nih.gov/entrez Try typing in " multiple system atrophy progression " as your search term. Hugs, Pam Prognosis Hi all, Is there any research that shows that people with one form of MSA live longer than those with another (generally speaking, of course)? Most of my father's symptoms were of the " SND variety " and he lived just over a year after his dx, considerably less than the 3-7 years I've read is typical. I realize that he had MSA for several years before his dx, but even looking back, his symptoms were present for just 3-4 years before he was dx. It seems to me that, when compared to many on this list whose symptoms are predominantly " non-SND " (for lack of a better term), his progression/decline was much more rapid and the disease seemed quite a bit more insidious...(Not to minimize what anyone else is going through. It's terrible regardless of where you are in the disease). Just wondering... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Hi . I have read some research studies that tried to compare progression rates of the various flavours of MSA. I don't recall the exact details but I can try to dig it up for you sometime. You can also try hunting for it yourself. Go to: http://www.ncbi.nlm.nih.gov/entrez Try typing in " multiple system atrophy progression " as your search term. Hugs, Pam Prognosis Hi all, Is there any research that shows that people with one form of MSA live longer than those with another (generally speaking, of course)? Most of my father's symptoms were of the " SND variety " and he lived just over a year after his dx, considerably less than the 3-7 years I've read is typical. I realize that he had MSA for several years before his dx, but even looking back, his symptoms were present for just 3-4 years before he was dx. It seems to me that, when compared to many on this list whose symptoms are predominantly " non-SND " (for lack of a better term), his progression/decline was much more rapid and the disease seemed quite a bit more insidious...(Not to minimize what anyone else is going through. It's terrible regardless of where you are in the disease). Just wondering... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Hi . I have read some research studies that tried to compare progression rates of the various flavours of MSA. I don't recall the exact details but I can try to dig it up for you sometime. You can also try hunting for it yourself. Go to: http://www.ncbi.nlm.nih.gov/entrez Try typing in " multiple system atrophy progression " as your search term. Hugs, Pam Prognosis Hi all, Is there any research that shows that people with one form of MSA live longer than those with another (generally speaking, of course)? Most of my father's symptoms were of the " SND variety " and he lived just over a year after his dx, considerably less than the 3-7 years I've read is typical. I realize that he had MSA for several years before his dx, but even looking back, his symptoms were present for just 3-4 years before he was dx. It seems to me that, when compared to many on this list whose symptoms are predominantly " non-SND " (for lack of a better term), his progression/decline was much more rapid and the disease seemed quite a bit more insidious...(Not to minimize what anyone else is going through. It's terrible regardless of where you are in the disease). Just wondering... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 --My mother JOyce (71, died 11/5/00) had the SND form, too, and lived less than 2 years after her MSA diagnosis and less than 4 after her PD diagnosis. I thought I had read somewhere that one form of MSA had a better prognosis than the others. It's hard to believe you have had MSA and be luckier than others with it. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 --My mother JOyce (71, died 11/5/00) had the SND form, too, and lived less than 2 years after her MSA diagnosis and less than 4 after her PD diagnosis. I thought I had read somewhere that one form of MSA had a better prognosis than the others. It's hard to believe you have had MSA and be luckier than others with it. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 --My mother JOyce (71, died 11/5/00) had the SND form, too, and lived less than 2 years after her MSA diagnosis and less than 4 after her PD diagnosis. I thought I had read somewhere that one form of MSA had a better prognosis than the others. It's hard to believe you have had MSA and be luckier than others with it. Debbie Quote Link to comment Share on other sites More sharing options...
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