Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Hello everyone, Want to introduce Myself. I am a 30 year old female who now lives in Arizona. After 2 years of hospital admittions, medical problems, firing docotors who didnt know what they were talking about, they now think they may have a diagnosis of Shy-. I was living in New Mexico,and was sent to see a neuro disease specialist from my regular nero. Unfortuntely, there is only one in that city, four month wait. Husband got laid off, and we moved to Arizona. Kinda scared, because I had to apply for county medcial ,(had blue cross) Now the process has to start all over with new doctors:(( I have lived the last two years, with fainting spells, due to low blood pressure. Severe constipation as my bowels dont work. Only can go using mag citrate now, which also causes me to faint:(( But the option is removing most of the bowel, and dont want that. Dytonia in my neck, sleep apnea, muscle twitching,... irregular hb, list goes on....... THey do now think its Shy-. The disesase specialist was supposed to do a battery of tests on that. Im so tierd of living life not able to plan for tommorow. Not being able to walk my daughter to the park. Im kinda in a down mode. Sorry to meet you all this way. Im normaly very upbeat, but just havnt had any good days latley:(( Im still kinda aghast. All the reading I have found on this, says it is usualy men in thier 50's, but Im female 30. I would love any information you guys have. How you deal with sleeping, constipation etc..... THankyou for hearing me Quote Link to comment Share on other sites More sharing options...
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