Re: SUE< ANA-ANTI DNA-SUN-SKIN Question for the group

[Guest guest]

In a message dated 4/12/01 10:14:17 AM Central Daylight Time, grandm4@...

writes:

<< My doctor diagnosed it by my ears and very high ANA, (that's blood work)

plus

the joint pain, etc. Its a hit and miss type of thing. Sue

>>

SUE, I also have a high ANA (not before only after two years with RP) I also

get the lesions and rashes (real bad on face) although I do not have " Anti

DNA " so they this I have just the " SKIN " Lupus on top of the RP. The sunlight

is my worst enemy, If I am in the sun for 15 minn I am on benydrel (sp?) for

weeks at a time, and you would think I would know better by now? NOT I

keep doing it, I love going outside, that is one thing I will not under NO

circumstances stay out of the Sun! RP took to much away from me and its NOT

going to take my outdoor life away! All my skin is already damaged so how

much worse can it already get?

KP

[Guest guest]

In a message dated 4/12/01 10:14:17 AM Central Daylight Time, grandm4@...

writes:

<< My doctor diagnosed it by my ears and very high ANA, (that's blood work)

plus

the joint pain, etc. Its a hit and miss type of thing. Sue

>>

SUE, I also have a high ANA (not before only after two years with RP) I also

get the lesions and rashes (real bad on face) although I do not have " Anti

DNA " so they this I have just the " SKIN " Lupus on top of the RP. The sunlight

is my worst enemy, If I am in the sun for 15 minn I am on benydrel (sp?) for

weeks at a time, and you would think I would know better by now? NOT I

keep doing it, I love going outside, that is one thing I will not under NO

circumstances stay out of the Sun! RP took to much away from me and its NOT

going to take my outdoor life away! All my skin is already damaged so how

much worse can it already get?

KP

[Guest guest]

In a message dated 4/12/01 10:14:17 AM Central Daylight Time, grandm4@...

writes:

<< My doctor diagnosed it by my ears and very high ANA, (that's blood work)

plus

the joint pain, etc. Its a hit and miss type of thing. Sue

>>

SUE, I also have a high ANA (not before only after two years with RP) I also

get the lesions and rashes (real bad on face) although I do not have " Anti

DNA " so they this I have just the " SKIN " Lupus on top of the RP. The sunlight

is my worst enemy, If I am in the sun for 15 minn I am on benydrel (sp?) for

weeks at a time, and you would think I would know better by now? NOT I

keep doing it, I love going outside, that is one thing I will not under NO

circumstances stay out of the Sun! RP took to much away from me and its NOT

going to take my outdoor life away! All my skin is already damaged so how

much worse can it already get?

KP

[Guest guest]

Dear KP, luckily I don't have lesions on face, only arms and legs. Hands and

feet are also peeling. I agree with the sun, love it..need sun! Thanks for

the info...Sue